Abstract
Language holds great importance within clinical encounters, particularly when healthcare professionals are dealing with life-threatening diseases, such as cancer. This study is an attempt to explore the perceptions of women under treatment for breast cancer in Karachi, Pakistan, with respect to language employed by healthcare professionals for the disclosure of disease, and the impact that language used has on patients. Using exploratory qualitative methods consisting of 24 in-depth interviews with patients and one interview with a healthcare professional, this study reveals various nuances of language at play. We find that in Pakistani society, there is reluctance to use the word “cancer” during the disclosure of disease by healthcare professionals, family members and patients alike due to fear of imminent death and to retain hope in patients. Instead, colloquial language, such as “rasoli [mass]” and “this illness” is used to refer to the disease. The disease is disclosed with a deliberate attempt to avoid the use of the word “cancer”, and often done in a series of steps rather than the diagnosis being spelt out bluntly, with the former practice generally preferred than the latter. Despite this manner of disclosure, patients remain aware that they are suffering from a disease. This has important implications for clinicians in Pakistan, where there are no standardized practices for breaking bad news, and where clinicians have to tailor their communication styles according to the type of patient, thus the onus rests on physicians to impart information in an empathetic manner to patients suffering from serious diseases.
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Acknowledgements
Bushra Shirazi would like to thank and acknowledge some individuals without whom this study would have been impossible. Dr Rufina Soomro whose patients she interviewed and Prof Farhat Moazam, her mentor, who took her through this experience of qualitative research and changed her perspective towards research as a whole. Finally, both authors would like to thank and acknowledge Prof Aamir Jafarey who provided help and guidance in writing this manuscript.
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Shirazi, B., Shekhani, S.S. Impact of the Word “Cancer”: a Pilot Study on Breast Cancer Patients from Pakistan. ABR 9, 229–238 (2017). https://doi.org/10.1007/s41649-017-0017-9
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DOI: https://doi.org/10.1007/s41649-017-0017-9