Skip to main content

Advertisement

Log in

Violation of Dignity and Life: Challenges and Prospects for Women and Girls with Albinism in Sub-Saharan Africa

  • Published:
Journal of Human Rights and Social Work Aims and scope Submit manuscript

Abstract

The mythology of most African societies includes the belief in patriarchy and primogeniture, holding the view that succession and the continuity of family lineage are only possible through the males. As such, women are considered inferior to men and often treated with prejudice. Albinism is also treated with prejudice in African societies. This includes the belief that sexual intercourse with a woman or a girl with albinism can cure serious infections like HIV/AIDS. Thus, in addition to common forms of discrimination and abuse suffered by women in Sub-Saharan Africa, those with albinism are particularly vulnerable to rape and sexual violation. In extreme cases, especially in East and Central Africa; these women and other persons with albinism are kidnapped for sacrifice or ritual purposes. Their vital organs are harvested for preparing “charms” for magic and spiritual powers. In other cases, they are simply murdered to ensure that they do not procreate. This paper explores common myth-based violations against women with albinism in Africa. It argues that these women suffer the tragedy of double prejudice and special violations to dignity and life, contrary to standard templates of international human rights. It then suggests specific measures for dealing with these violations at all levels: societal, municipal, regional, and international. Significantly, the paper raises global consciousness on the persecution of minorities, especially women and girls with albinism in Africa.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

Notes

  1. It entered into force on 4 January 1969, and part of its Preamble states that: “…any doctrine of superiority based on racial differentiation is scientifically false, morally condemnable, socially unjust and dangerous, and that there is no justification for racial discrimination, in theory or in practice, anywhere.” It also resolved “to adopt all necessary measures for speedily eliminating racial discrimination in all its forms and manifestations, and to prevent and combat racist doctrines and practices in order to promote understanding between races and to build an international community free from all forms of racial segregation and racial discrimination.”

  2. Also called the Banjul Charter. Its Article 18(3) recognizes and enjoins State Parties to “ensure the elimination of every discrimination against women and also ensure the protection of women and the child as stipulated in international declarations and conventions.” By its Article 4, “Human beings are inviolable” and entitled to respect for life and integrity. Article 2 entitles “every individual” to enjoy the rights and freedoms guaranteed by the charter “without distinction of any kind” such as race, ethnic group, color, sex, national or social origin, birth, or other status.” It is hereby proposed among others, that the Charter be further amended by Protocol to specifically recognize and protect the dignity, life, and other rights of women with albinism in Africa.

  3. Its Preamble recognizes that the inherent dignity, equal and inalienable rights of all members of the human family is the foundation of freedom, justice, and peace worldwide. Articles 2.1 guarantees equal protection of the law without distinction of any kind while Article 26 prohibits “any discrimination” on grounds including color, race, or other status.

  4. Its Preamble recognizes, among others, that cultural and socio-economic rights are inseparable from the “inherent dignity of the human person” and that “the enjoyment of the right and freedom against fear and want is only be achievable if conditions exists for enjoying of economic, socio-cultural, political and civil rights.”

  5. Similar agitations to specifically protect women’s rights globally (despite existing gender-neutral human rights instruments) led to the enactment of innovative women-specific international instruments. They include the Beijing Declaration and Platform for Action, 1995; the UN Convention on the Elimination of All Forms of Discrimination Against Women (CEDAW); African Charter on Human and Peoples’ Rights on the Rights of Women in Africa, 2003; and especially the Protocol to the African Charter on Human and Peoples’ Rights on the Rights of Women in Africa (also known as the Maputo Protocol) which enjoin states to ensure equal rights of women and men.

  6. The proposed instruments are UN Convention on the Elimination of All Forms of Discrimination against Persons with Albinism (CEDAPWA), UN Convention on the Rights of Albinos (CRA), African Charter on Human and Peoples’ Rights on the Rights of Albinos in Africa, as well as Albino Rights Act in Nigeria. Similar suggestions made by feminists and women rights advocates culminated in the enactment of a number of gender-specific domestic legislation and international instruments which form part of Nigeria’s current human rights jurisprudence.

  7. The cases arose at a time when there were no specific laws for protecting women’s dignity against sexual violations in custody and at their workplace, respectively. Nonetheless, the Indian Supreme Court invoked its judislative power and formulated appropriate elaborate rules to effectively fill these legislative voids. Those rules became known as The Rule in Sheela Barse and the Vishaka Guidelines, respectively and endured until Parliament enacted relevant substantive legislation.

References

  • Aceves, W. J. (2015). Two stories about skin color and international human rights advocacy. Washington University Global Studies Law Review, 14, 563.

    Google Scholar 

  • African Committee of Experts on the Rights and Welfare of the Child (ACERWC) (2016). Report on investigative mission on the situation of children with albinism in temporary holding shelters - Tanzania.

  • Aquaron, R., Djatou, M., & Kamdem, L. (2009). Sociocultural aspects of albinism in sub-Saharan Africa: mutilations and ritual murders committed in east Africa (Burundi and Tanzania). Medecine tropicale: revue du Corps de sante colonial, 69(5), 449–453.

    Google Scholar 

  • Baker, C. (2008). Writing over the illness: the symbolic representation of albinism. In: P. L. Twohig, & V. Kalitzkuseds (Eds.), Social studies of health, illness and disease: perspectives from the social sciences (pp. 115–128).

  • Baker, C., & Lund, P. (2017). The role of African fiction in educating about albinism and human rights: Jenny Robson’s Because pula means rain and Ben Hanson’s Takadini. Journal of Literary & Cultural Disability Studies, 11(3), 271–284.

    Article  Google Scholar 

  • Baker, C., Lund, P., Nyathi, R., & Taylor, J. (2010). The myths surrounding people with albinism in South Africa and Zimbabwe. Journal of African Cultural Studies, 22(2), 169–181.

    Article  Google Scholar 

  • Barnicot, N. (1953). Albinism in South-Western Nigeria. Annals of Human Genetics, 18(1), 38–73.

    Google Scholar 

  • Basu, J. P. (2002). Law relating to protection of human rights: under the Indian constitution and allied Laws. Allahabad: Modern Law Publications.

    Google Scholar 

  • Benyah, F. (2017). Equally able, differently looking: discrimination and physical violence against persons with albinism in Ghana. Journal for the Study of Religion, 31(1), 161–188.

    Article  Google Scholar 

  • Bertolotti, A., Lasseaux, E., Plaisant, C., Trimouille, A., Morice-Picard, F., Rooryck, C., Lacombe, D., Couppie, P., & Arveiler, B. (2016). Identification of a homozygous mutation of SLC 24A5 (OCA 6) in two patients with oculocutaneous albinism from French Guiana. Pigment Cell & Melanoma Research, 29(1), 104–106.

    Article  Google Scholar 

  • Braathen, S. H., & Ingstad, B. (2006). Albinism in Malawi: knowledge and beliefs from an African setting. Disability & Society, 21(6), 599–611.

    Article  Google Scholar 

  • Brilliant, M. H. (2015). Albinism in Africa: a medical and social emergency. International Health, 7(4), 223–225.

    Article  Google Scholar 

  • Bryceson, D. F., Jønsson, J. B., & Sherrington, R. (2010). Miners’ magic: artisanal mining, the albino fetish and murder in Tanzania. The Journal of Modern African Studies, 48(3), 353–382.

    Article  Google Scholar 

  • Bucaro, S. (2009). A black market for magical bones: the current plight of east African albinos. Public Interest Law Reporter, 15, 131.

    Google Scholar 

  • Burke, J. (2013). Media framing of violence against Tanzanians with albinism in the Great Lakes region: A matter of culture, crime, poverty and human rights. Australasian Review of African Studies, The, 34(2), 57.

    Google Scholar 

  • Christopher, W. (2018). Economic sanctions as an indirect regional threat: the regional impact of sanctions on the level of human rights protection in non-sanctioned countries master’s thesis in human rights. Uppsala: Uppsala Universitet.

    Google Scholar 

  • Clarke, S., & Beale, J. (2018). Albinism and social marginalization. Albinism in Africa (pp. 257–270).

  • Creel, D., O'Donnell, F. E., & Witkop, C. J. (1978). Visual system anomalies in human ocular albinos. Science, 201(4359), 931–933.

    Article  Google Scholar 

  • Cross, R. (2009). Through albino eyes: the plight of albino people in Africa’s Great Lakes region and a red cross response. Geneva: International Federation of Red Cross and Red Crescent Societies.

    Google Scholar 

  • Cruz-Inigo, A. E., Ladizinski, B., & Sethi, A. (2011). Albinism in Africa: stigma, slaughter and awareness campaigns. Dermatologic Clinics, 29(1), 79–87.

    Article  Google Scholar 

  • Dapi, L. N., Tambe, B. A., & Monebenimp, F. (2018). Myths surrounding albinism and struggles of persons with albinism to achieve human rights in Yaoundé, Cameroon. Journal of Human Rights and Social Work, 3(1), 11–16.

    Article  Google Scholar 

  • Dave-Odigie, C. P. (2010). Albino killings in Tanzania: implications for security. Peace Studies Journal, 3(1), 68–75.

    Google Scholar 

  • Duri, F. P. T., & Makama A. (2018). Disabilities and human insecurities: women and oculocutaneous albinism in post-colonial Zimbabwe. Rethinking securities in an emergent technoscientific new world order: retracing the contours for Africa’s hi-jacked futures (p. 77).

  • Edu, O. (2016). A critical analysis of the laws of inheritance in the southern states of Nigeria. Journal of African Law, 60(1), 141–155.

    Article  Google Scholar 

  • Fayoyin, A., & Ihebuzor, N. (2014). Advocacy for minorities in Africa: issues and lessons in advancing the rights of albinos in Tanzania and Osus in Nigeria. Asia Pacific Journal of Research, 1(XVII).

  • Fazel, A. (2012). “Albinos” lonely call for recognition. Mail & Guardian Health Supplement (pp. 18–24).

  • Frowein, J. A. (2004). Human dignity in international law. Völkerrecht—Menschenrechte—Verfassungsfragen Deutschlands und Europas (pp. 307–320).

  • George, A. (1980). Skin diseases in tropical africa. International Journal of Dermatology, 27(3), 187–189.

    Article  Google Scholar 

  • Hamad, P. A. (2018). Assessing social response over violence against disabled women in Zanzibar. Dar es Salaam: The Open University of Tanzania.

    Google Scholar 

  • Healey, N., McLoone, E., Saunders, K. J., Jackson, A. J., & McClelland, J. F. (2014). Are worldwide albinism prevalence figures an accurate reflection? An incidental finding from a Northern Ireland study. British Journal of Ophthalmology, 98(7), 990–990.

    Article  Google Scholar 

  • Herek, G. M. (2014). In P. W. Corrigan (Ed.), HIV-related stigma. The stigma of disease and disability: understanding causes and overcoming injustices. Washington, DC: American Psychological Association.

    Google Scholar 

  • Hong, E. S., Zeeb, H., & Repacholi, M. H. (2006). Albinism in Africa as a public health issue. BMC Public Health, 6(1), 212.

    Article  Google Scholar 

  • Ibenwa, C. N. (2014). Influences of Christian religion on African traditional religion and value system. World, 4(9).

  • Ikuomola, A. D. (2015). Socio-cultural conception of albinism and sexuality challenges among persons with albinism (PWA) in South-West, Nigeria. AFRREV IJAH: An International Journal of Arts and Humanities, 4(2), 189–208.

    Google Scholar 

  • Imperato, G. H., & Imperato, P. J. (2006). Beliefs and practices concerning twins, hermaphrodites, and albinos among the Bamana and Maninka of Mali. Journal of Community Health, 31(3), 198–224.

    Article  Google Scholar 

  • Jablonski, N. G., & Chaplin, G. (2014). The evolution of skin pigmentation and hair texture in people of African ancestry. Dermatologic Clinics, 33(2), 113–121.

    Article  Google Scholar 

  • Jell-Bahlsen, S. (2014). The dialectics of Igbo and Christian religion in contemporary Nigeria. Interface between Igbo theology and christianity (pp. 51–65).

  • Kane, I. (2008). Protecting the rights of minorities in Africa: a guide for human rights activists and civil society organizations. London: Minority Rights Group International.

    Google Scholar 

  • King, R. A., Creel, D., Arvenka, J., Okoro, A. N., & Witkop, C. J. (1980). Albinism in Nigeria with delineation of new recessive oculocutaneous type. Clinical Genetics, 17(4), 259–270.

    Article  Google Scholar 

  • Kinnear, P., Jay, B., & Witkop, C. A. (1985). Albinism. Survey of Ophthalmology, 30(2), 75–101.

    Article  Google Scholar 

  • Kiprono, S. K., Chaula, B. M., & Beltraminelli, H. (2014). Histological review of skin cancers in African albinos: a 10-year retrospective review. BMC Cancer, 14(1), 157.

    Article  Google Scholar 

  • Kruk, M. E., Kujawski, S., Mbaruku, G., Ramsey, K., Moyo, W., & Freedman, L. P. (2014). Disrespectful and abusive treatment during facility delivery in Tanzania: a facility and community survey. Health Policy and Planning, 33(1), e26–e33.

  • Kuster, R. (2000). White skin, black souls. New African, 382, 40–41.

    Google Scholar 

  • Lewin, J. (1938). The recognition of native law and custom in British Africa. Journal of Comparative Legislation and International Law, 20(1), 16–23.

    Google Scholar 

  • Lund, P. M. (2001). Health and education of children with albinism in Zimbabwe. Health Education Research, 16, 1–7.

    Article  Google Scholar 

  • Mazibuko, N. G., & Kromberg, J. G. (2018). A personal perspective: living with albinism. Albinism in Africa (pp. 295–307).

  • Minerva Mills v. Union of India 1789 (Supreme Court of India 1980).

  • Mostert, M. P., & Weich, M. M. (2017). Albanism in Africa: a proposed conceptual framework to understand and effectively address a continental crisis. African Disability Rights Yearbook, 5, 101.

    Google Scholar 

  • Mswela, M. (2013). The “evil albino” stereotype: an impediment to the right to equality. Medicine and Media, 32, 89–92.

    Google Scholar 

  • Mswela, M. (2017). Violent attacks against persons with albinism in South Africa: a human rights perspective. African Human Rights Law Journal, 17(1), 114–133.

    Article  Google Scholar 

  • Murray, B. H. (2015). Albinism in Africa: a medical and social emergency. International Health, 7, 223–225.

    Article  Google Scholar 

  • Nashtastic (2016). Our Son and Albinism: Is albino a derogatory word? Available at: https://nashtastic.com/2016/07/01/is-albino-a-derogatory-word/. Accessed 8 Nov 2018.

  • Nnadi, I. (2013). Son preference-a violation of women’s human rights: a case study of Igbo custom in Nigeria. Journal of Politics and Law, 6, 134.

    Google Scholar 

  • Ntinda, R. N. (2010). Customary practices and children with albinism in Namibia: a constitutional challenge? Available at: http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.616.6635&rep=rep1&type=pdf. Accessed 31 May 2018.

  • Nwankwo, O. (2013). Nigeria is notorious for violating international agreements. Lagos: Nigerian vanguard Newspaper.

    Google Scholar 

  • Nzagi, I. (2009). Securing the rights of people with albinism in Tanzania mainland: the fight against social exclusion MA. The Hague: International Institute of Social Studies.

    Google Scholar 

  • Oakford, S. (2014). Fuelled by superstition, people are violently attacking albinos in Tanzania. Vice News 27.

  • Ojilere, A. (2008). The implication of customary law and socio-religious mythology on the rights of women in Nigeria. Nigerian Journal of Public Law, 1(1), 257–266.

    Google Scholar 

  • Ojilere, A. N. (2015). Quest for a sustainable legal framework for the protection of women's right to dignity in Nigeria: lessons from India and South Africa. Ph.D, Faculty of Law, University of Malaya, Malaysia.

  • Ojilere, A. (2018a). African mythology in the violation of life and dignity of albino minorities in Nigeria. University of the Gambia Law Review, 1(1), 235–247.

    Google Scholar 

  • Ojilere, A. (2018b). The diplomacy of homocapitalism against Africa: same-sex marriage and the West’s promotion of homosexuality. World Affairs: The Journal of International Issues, 22(1), 152–163.

    Google Scholar 

  • Ojilere, A., & Chuan, G. C. (2015). The protection of women’s dignity and sexual rights in international law: basic lessons on core thematic human rights documents. Orient Law Journal, 2(January), 61–81.

    Google Scholar 

  • Ojilere, A., & Chukwumaeze, U. U. (2010). CEDAW and gender-based discriminations against women in Nigeria. Nigerian Journal of Food, Drug and Health Law, 3(1), 95–105.

    Google Scholar 

  • Okoro, A. (1975). Albinism in Nigeria. British Journal of Dermatology, 92(5), 485–492.

    Article  Google Scholar 

  • Okulicz, J., Shah, R., Schwartz, R., & Janniger, C. (2003). Oculocutaneous albinism. Journal of the European Academy of Dermatology and Venereology, 17(3), 251–256.

    Article  Google Scholar 

  • Olagunju, O. S. (2012). Towards a biblical response to myth and discrimination against the human right of albinos in Yorubaland. Journal of Studies in Social Sciences, 1(1), 46–58.

    Google Scholar 

  • Olowu, D. (2009). An integrative rights-based approach to human development in Africa, PULP.

  • Owusu-Addo, E., Owusu-Addo, S. B., Antoh, E. F., Sarpong, Y. A., Obeng-Okrah, K., & Annan, G. K. (2018). Ghanaian media coverage of violence against women and girls: implications for health promotion. BMC Women's Health, 18(1), 129.

    Article  Google Scholar 

  • Oyekanmi, F. D. (2004). Socioeconomic dimensions of gender equality in Nigeria. Paradox of gender equality in Nigerian politics: essays in honour of Dr.(Mrs.) Veronica Adeleke. S. O. Akinboye (pp. 41–61). Lagos: Concept Publications Ltd.

    Google Scholar 

  • Oyewole, S. (2016). Kidnapping for rituals: article of faith and insecurity in Nigeria. Journal of Pan African Studies, 9(9), 35–53.

    Google Scholar 

  • Phatoli, R., Bila, N., & Ross, E. (2015). Being black in a white skin: Beliefs and stereotypes around albinism at a south African university. African Journal of Disability, 4(1).

  • Possi, A., & Possi, A. (2017). The identity question versus appropriateness of legal anti-discrimination measures: endorsing the disability rights approach to albinism. African Disability Rights Yearbook, 5, 118–140.

    Google Scholar 

  • Rao, P. (December 2017–March 2018). Ending albino persecution in Africa. Africa Renewal, United Nations.

  • Salewi, D. H. (2011). The killing of persons with albinism in Tanzania: a social-legal inquiry. LLM thesis, University of Ghana Legon.

  • Sharma, A. (2006). Human destiny: karma and reincarnation. A primal perspective on the philosophy of religion (pp. 189–197).

  • Shulztiner, D., & Carmi, G. E. (2014). Human dignity in national constitutions: functions, promises and dangers. The American Journal of Comparative Law, 62(2), 461–490.

    Article  Google Scholar 

  • Simona, B. E. A. i. B. A. I. j. o. d. (2004). Albinos in Black Africa. International Iournal of Dermatology, 43, 618–621.

  • Singh, K. (2017). KZN witchdoctor gets life for murder of woman with albinism. News 24 South Africa, News 24.

  • Societies, I. F. o. R. C. a. R. C. (2009). Through Albino Eyes: the Plight of Albino people in Africa’s Great Lakes region and a Red Cross response.

  • Steiner, H. J., Alston, P., & Goodman, R. (2008). International human rights in context: law, politics, morals: text and materials. Cary: Oxford University Press.

    Google Scholar 

  • Stevens, G., Ramsay, M., & Jenkins, T. (1997). Oculocutaneous albinism (OCA2) in sub-Saharan Africa: distribution of the common 2.7-kb P gene deletion mutation. Human Genetics, 99(4), 523–527.

    Article  Google Scholar 

  • SUN, U. T. S (2018). “Albino” vs “person with albinism (PWA)”- official position of under the same sun (UTSS).

  • Tanner, R. (2010). Ideology and the killing of albinos in Tanzania: a study in cultural relativities. Anthropologist, 12(4), 229–236.

    Article  Google Scholar 

  • Terreblanche, S. (2012). Failed transformation: where we went wrong. Sunday Times. South Africa, Press Reader.

  • Thuku, M. (2011). Myths, discrimination, and the call for special rights for persons with albinism in sub-Saharan Africa. Amnesty International editorial review on Special Programme on Africa.

  • Uchendu, V. C. (1976). Ancestorcide! Are African ancestors dead? Ancestors, 283.

  • Vallinder, T. (1995). When the courts go marching in. The global expansion of judicial power (p. 13).

  • Van Reenen, T. P., & Combrinck, H. (2011). The UN convention on the rights of persons with disabilities in Africa: progress after 5 years. SUR-International Journal on Human Rights, 14, 133.

    Google Scholar 

  • Viljoen, F. (1998). Supra-national human rights instruments for the protection of children in Africa: the convention on the rights of the child and the African charter on the rights and welfare of the child. Comparative and International Law Journal of Southern Africa, 31(2), 199–212.

    Google Scholar 

  • Wan, N. (2003). Orange in a world of Apples’: the voices of albinism. Disability & Society, 18(3), 277–296.

    Article  Google Scholar 

  • Wiafe-Akenten, B. C. (2016). Disharmony in diversity: traditional beliefs, attitudes and stigmatization of persons living with albinism in Ghana: or0666. International Journal of Psychology, 51, 438.

    Google Scholar 

  • Witkop, C. J. (1989). Albinism. Clinics in Dermatology, 7(2), 80–91.

    Article  Google Scholar 

  • Yoboue, P., Sangare, A., Kaloga, M., Kouadio, A., & Djedje, M. (2005). Epidemiologic and etiologic features of pigmentation disorders observed during consultation at the Dermatology Center of Abidjan, Ivory Coast. International Journal of Dermatology, 44, 33–34.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Aloy Ojilere.

Additional information

Publisher’s note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Ojilere, A., Saleh, M.M. Violation of Dignity and Life: Challenges and Prospects for Women and Girls with Albinism in Sub-Saharan Africa. J. Hum. Rights Soc. Work 4, 147–155 (2019). https://doi.org/10.1007/s41134-018-0085-0

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s41134-018-0085-0

Keywords

Navigation