Abstract
Fetal alcohol spectrum disorder (FASD) is a common disorder, yet one that is still under recognised in the UK. Both the public and professionals in the UK have a limited amount of knowledge about the subject, with the neuropsychological profiles and subtleties of presentation causing confusion. This often means that many people are mislabelled or not diagnosed. We report findings from the UK National FASD behavioural clinic and how these presentations lead to challenges in improving the clinical and research situation in the UK. The UK has the potential to improve research, recognition, provision and behavioural management strategies for this group quickly; however, this will need a more structured approach than is currently in existence.
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References
APPG FASD & FASD Trust. (2016). Initial report of the inquirey into the current picture of FASD in the UK Today. London: UK Parliment.
Astley, S. J. (2004). The diagnostic guide for FASD; the 4 digit code (3rd ed.). Seattle: University of Washington.
Behnke, M., & Smith, V. C. (2013). Prenatal substance abuse; short and long term effects on the developing fetus. Paediatrics, 131, e1009–e1024.
Bishop, D. V. M. (2003). Children’s communication checlklist (CCC-2). London: Pearson.
Blackburn, C., Carpenter, B., & Egerton, J. (2010). Shaping the future for children with foetal alcohol spectrum diorders. British Journal of Learning Support, 25, 139–145.
BMA Board of Science. (2008). Alcohol misuse: Tackling the UK experience. London: BMA.
BMA Board of Science. (2016). Fetal alcohol spectrum disorders, a guide for healthcare practitioners update. London: BMA Publishing.
Chandresenna, A., Mukherjee, R. A. S., & Turk, J. T. (2009). Fetal alcohol spectrum disorders: an overview of interventions for affected individuals. Child and Adolescent Mental Health, 14(4), 162–169.
Delis, D., Kaplan, E., & Kramer, J. (2001). Delis kaplan executive functioning system. San Antonio: Pschological Corporation.
Dunn, W. (1999). Short sensory profile. San Antonio: Psychological Corporation.
Einfeld, S. L., & Tonge, B. J. (2002). Developmental behaviour checklist. Melbourne: Monash University.
Gioia, G. A., Isquith, P. K., Guy, S. C., & Kenworthy, L. (2000). Behaviour rating inventory of executive function. Lutz FL: PAR.
Gregory, G., Reddy, V., & Young, C. (2015). Identifying children who are at risk of FASD in Peterborough: Working in a community clinic without access to gold standard dignosis. Journal of Adoption and Fostering, 39, 225–234.
International Centre for Alcohol Policies (2009). International Guidelines on Drinking in Pregnancy. http://www.icap.org/Table/InternationalGuidelinesOnDrinkingAndPregnancy
Karmiloff-Smith, A. (2009). Nativism versus neuroconstuctivism: Rethinking the study of developmental diorders. Developmental Psychology, 45, 56–63.
Kerns, K. A., Don, A., Mateer, C. A., & Streissguth, A. P. (1997). Cognitive deficits in nonretarded adults with fetal alcohol syndrome. Journal of Learning Disabilities, 30(6), 685–693.
Kodituwakku, P. W. (2009). Neurocognitive profile in children with FASD. Developmental Disabilities Research Reviews, 15, 218–224.
Larcher, V., & Brierley, J. (2014). Fetal alcohol syndrome and fetal alcohol spectrum diorders- diagnosing and moral policing; an ethical dilemma for paediatricians. Archives of Disease in Childhood, 99, 969–970.
Lea, W. (2016). Alcohol guidance review. London: Department of Health.
McAndrew, F., Thompson, J., Fellows, L., Large, A., Speed, M., & Renfrew, M. J. (2012). Infant feeding study 2010. Dundee: Health and Social Care Information Centre.
Morleo, M., Woolfall, K., Dedman, D., Mukherjee, R. A. S., Bellis, M. A., & Cook, P. A. (2011). Under-reporting of fetal alcohol spectrum disorders: an analysis of hospital episode statistics. BMC Paediatrics, 14, 1–6.
Mukherjee, R. A. S. (2016). The relationship between ADHD and FASD. Thrombus, 8, 4–7.
Mukherjee, R. A. S., Layton, M., Yacoub, E., & Turk, J. T. (2011). Autism and autistic traits in people exposed to heavy prenatal alcohol:data from a clinical series of 21 individuals and a nested case control study. Advances in Mental Health and Intellectual Disabilities, 5, 43–49.
Mukherjee, R. A. S., Hollins, S., & Curfs, L. (2012a). FASD is it something we should be more aware of? Journal Royal Society of Medicine Edinburgh, 42, 143–150.
Mukherjee, R. A. S., Wray, E., Curfs, L., & Hollins, S. (2012). Estimation of alcohol content of wine, beer and spirits to evaluate exposure risk in pregnancy: pilot study using a questionnaire and pouring task in England. International Journal of Alcohol and Drugs.
Mukherjee, R. A. S., Wray, E., Commers, M., Hollins, S., & Curfs, L. (2013). The impact of raising a child with FASD upon carers: findings from a mixed methodology study in the UK. Journal of Adoption and Fostering, 37, 43–56.
Mukherjee, R. A. S., Wray, E., Hollins, S., & Curfs, L. (2014). What does the general public in the UK know aout the risk to the developing foetus if exposed to alcohol in pregnancy? Findings from a/uk mixed methods study. Child: Care, Health and Development, 41, 467–474.
Mukherjee, R. A. S., Wray, E., Curfs, L., & Hollins, S. (2015). Knowledge and opinions of professional groups concerning FASD in the UK. Journal of Adoption and Fostering, 39, 212–224.
Nykjaer, C., Alwan, N. A., Greenwood, D. C., Simpson, N. A. B., Hay, A. W. M., White, K. L. M., et al. (2014). Maternal alcohol intake prior to and during pregnacy and risk of adverse irth outcomes: evidence from a British cohort. Journal of Epidemiology and Community Health, 68, 542–549.
O’Brien, G., & Yule, W. (1995). Behavioural phenotypes. London: Mac Kieth PRess.
Onofrio, B. M., Van Hulle, C. A., Waldman, I. D., Rodgers, J. L., Rathouz, P. J., & Lahey, B. B. (2007). Causal inferences regarding prental alcohol exposure and childhood externalising problems. Archives of General Psychiatry, 64(11), 1296–1304.
Rasmussen, C. (2005). Executive functioning and working memory in fetal alcohol spectrum disorder. Alcoholism: Clinical and Experimental Research, 29, 1359–1367.
Rutter, M., Bailey, A., & Lord, C. (2003). Social communication questionnaire. London: Hogrefe.
Sayal, K., Heron, J., Draper, E. S., Alati, R., Lewis, S. J., Fraser, R., & Gray, R. (2014). Prenatal exposure to binge patterns of alcohol consumption: Mental Health and learning outcomes at age 11. European Child and Adolescent Psychiatry, 23(10), 891–899.
Selwyn, J., & Wijedesa, D. (2011). Pathways to adoption for minority children in England. Child & Family Social Work, 16, 276–286.
Sparrow, S. S., Balla, D., & Cicchetti, D. V. (1984). Vineland adaptive behaviour scales (2nd ed.). Circle Pines, MN: American Guidance Service.
Suttie, M., Foroud, T., Wetherill, L., Jacobson, J. L., Molteno, C. D., Meintjes, E. M., & Hammond, P. (2013). Facial dysmorphism across the fetal alcohol spectrum. Pediatrics, 131(3), e779–e788.
Watts, M. (2015). Progress in adressing FASD in Scotland. Journal of Adoption and Fostering, 39, 256–262.
Wechsler, D. (2003). Wechsler intelligence scale for children (IVth ed.). San Antonio: Psychological Corporation.
Wig, E., Secord, W., & Semel, E. (2004). Clinical evaluation of language fundamentals (4th ed.). London: Pearson.
Wing, L., & Gould, J. (2003). The diagnostic interview for social and communicatory disorders (11th ed.). London: National Autistic Society.
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Conflict of Interest
Dr Mukherjee has received honoraria for speaking on the subject of FASD and is an unpaid medical advisor to various UK FASD Charities.
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Mukherjee, R.A.S., Carlisle, A.C.S. & Livesey, A.C. Neuropsychological Aspects of Prevention and Intervention for FASD in Great Britain. J Pediatr Neuropsychol 3, 61–67 (2017). https://doi.org/10.1007/s40817-017-0030-7
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DOI: https://doi.org/10.1007/s40817-017-0030-7