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Table 1 Final quality-of-care attribute list (n = 53)

From: Quality of Care in Rheumatoid Disease from the Clinician Perspective: A Modified Delphi Panel Approach

Access to care/treatment
Access to clinicians and specialists
Access to supportive services, patient care, and counseling
Access to information/educational materials
Treatment adherence
Treatment adherence
Active patient involvement in decision making
Communication among clinicians
Ensuring that patients understand disease and treatment
Ensuring that family/significant others understand disease and treatment
Communication between patients and clinicians
Communication between clinicians and payers
Coordination of treatment-based care among clinicians
Coordination of treatment-based care among clinicians (patient level)
Cost of rheumatic disease management
Cost to hospital/facility
Cost to patients
Disease management
Treatment initiation
Treatment escalation
Dose optimization
Treatment change
Holistic treatment approaches
Treatment goals
Avoiding loss of work
Disease remission
Identification of treatment targets
Improved quality of life
Reduction of complications of disease (e.g., avoiding long-term damage to joints or bones)
Safety of treatment
Reduction of acute symptoms
Treatment efficacy
Use of pre-existing guidelines
Treatment guidelines
Monitoring (in general)
Monitoring of disease state
Patient self-monitoring
Monitoring quality of life
Monitoring of treatment efficacy
Remote monitoring
Remote monitoring (in general)
Maintaining patient’s privacy (e.g., protection of patient medical data and personal information)
Patient access to remote monitoring technology (e.g., e-mail, computers, smartphone applications)
Patient ability to use remote monitoring technology (e.g., email, computers, smartphone applications)
Cost to implement remote monitoring technology
Patient willingness to participate in remote monitoring
Appropriate staff/resources to manage remote monitoring system
Burden on patient and others
Impact on activities of daily living
Impact on emotional functioning
Impact on family
Impact on social activities
Impact on work
Patient centricity
Considering patient treatment preference
Individualized treatment plan for patient care
Active patient involvement in disease management
Understanding patient characteristics
Enabling patients to feel empowered
Clinician training/education
Clinicians up to date with current treatments and disease management approaches
Use of technology
Use of technology (e.g., communication between clinicians, digital access to patient medical records, advanced diagnostic tools)