Skip to main content
Log in

Psychosocial Problems Faced by Parents of Children with Thalassemia: A Cross Sectional Study Conducted in Quetta Pakistan

  • Original Article
  • Published:
Journal of Psychosocial Rehabilitation and Mental Health Aims and scope Submit manuscript


Thalassemia is a chronic condition that imposes a great burden on the lives of the whole family. Parents of thalassemic patients go through a critical psychological effect, causing profound anxiety, isolation, and self-negligence.Therefore, this study aims to address the psychosocial problems experienced by parents of children with thalassemia in Quetta, Pakistan. This cross-sectional study was carried out at Thalassemia Center Civil Hospital, Quetta Pakistan. A total of 92 parents were interviewed with a non-probability convenient sampling technique. Parents’ levels of depression were evaluated using the PHQ-9, and depression was graded in accordance with the grading rubric. Out of Ninety-two parents, 72 fathers and 30 mothers with the mean age of 34 ± 0.3. 8% had severe depression and 34% of the parents were mildly depressed. Thirty percent of the parents live more than 40 km away from the thalassemia centre and 15/92 parents were unable to bring their children for regular transfusions. There is a significant relationship between being unable to attend social gatherings and depression (p-value < 0.05). There are a significant number of parents that suffer from psychological problems due to chronic disease of their child. Measures should be taken to arrange support programs and counselling for parents at each thalassemia centre.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Subscribe and save

Springer+ Basic
EUR 32.99 /Month
  • Get 10 units per month
  • Download Article/Chapter or Ebook
  • 1 Unit = 1 Article or 1 Chapter
  • Cancel anytime
Subscribe now

Buy Now

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1

Similar content being viewed by others

Data Availability

Data generated in this study are included in this article.


Download references


The authors would like to acknowledge the support from Thalassemia center, Civil Hospital SPH, Quetta for data collection. We would like to thank all participants for their cooperation.


The authors declare that no funds, grants, or other support were received during the preparation of this manuscript.

Author information

Authors and Affiliations



All authors contributed to the study conception and design. Z.J: Supervision, formal analysis, data collection and writing—original draft preparation. U.E: Formal analysis, data collection and methodology. A.N: Writing-original draft preparation, writing review, formatting and referencing. A.J: Writing-original draft preparation, data analysis and writing review and editing.

Corresponding author

Correspondence to Alishba Najeeb.

Ethics declarations

Conflict of interest

The authors have no relevant financial or non-financial interest to disclose.

Ethical Approval

This study was conducted with the ethical approval obtained from the Bio-ethics committee of Bolan University of Medical and Health Sciences, Quetta (0027/BUMHS/IRB/23). At the start of the questionnaire every participant was given an informed written consent form (translated in both English and Urdu) to ensure if they are willing to participate or not. Their identity was kept anonymous in the article. The survey was conducted by physical interviews at Thalassemia center SPH Quetta. This data was only handled by the authors themselves so no one else can have the access to the data.

Consent to Participate

Informed consent was obtained from all individual participants included in the study.

Consent to Publish

The authors affirm that participants provided informed consent for publication of data mentioned in Tables 1, 2, 3 and 4.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Supplementary Information

Below is the link to the electronic supplementary material.

Supplementary file1 (DOCX 436 kb)

Rights and permissions

Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Jamil, Z., Ejaz, U., Najeeb, A. et al. Psychosocial Problems Faced by Parents of Children with Thalassemia: A Cross Sectional Study Conducted in Quetta Pakistan. J. Psychosoc. Rehabil. Ment. Health (2024).

Download citation

  • Received:

  • Accepted:

  • Published:

  • DOI:


JEL Classification