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Psychosocial Problems Faced by Parents of Children with Thalassemia: A Cross Sectional Study Conducted in Quetta Pakistan

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Abstract

Thalassemia is a chronic condition that imposes a great burden on the lives of the whole family. Parents of thalassemic patients go through a critical psychological effect, causing profound anxiety, isolation, and self-negligence.Therefore, this study aims to address the psychosocial problems experienced by parents of children with thalassemia in Quetta, Pakistan. This cross-sectional study was carried out at Thalassemia Center Civil Hospital, Quetta Pakistan. A total of 92 parents were interviewed with a non-probability convenient sampling technique. Parents’ levels of depression were evaluated using the PHQ-9, and depression was graded in accordance with the grading rubric. Out of Ninety-two parents, 72 fathers and 30 mothers with the mean age of 34 ± 0.3. 8% had severe depression and 34% of the parents were mildly depressed. Thirty percent of the parents live more than 40 km away from the thalassemia centre and 15/92 parents were unable to bring their children for regular transfusions. There is a significant relationship between being unable to attend social gatherings and depression (p-value < 0.05). There are a significant number of parents that suffer from psychological problems due to chronic disease of their child. Measures should be taken to arrange support programs and counselling for parents at each thalassemia centre.

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Data generated in this study are included in this article.

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Acknowledgements

The authors would like to acknowledge the support from Thalassemia center, Civil Hospital SPH, Quetta for data collection. We would like to thank all participants for their cooperation.

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The authors declare that no funds, grants, or other support were received during the preparation of this manuscript.

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Authors

Contributions

All authors contributed to the study conception and design. Z.J: Supervision, formal analysis, data collection and writing—original draft preparation. U.E: Formal analysis, data collection and methodology. A.N: Writing-original draft preparation, writing review, formatting and referencing. A.J: Writing-original draft preparation, data analysis and writing review and editing.

Corresponding author

Correspondence to Alishba Najeeb.

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Conflict of interest

The authors have no relevant financial or non-financial interest to disclose.

Ethical Approval

This study was conducted with the ethical approval obtained from the Bio-ethics committee of Bolan University of Medical and Health Sciences, Quetta (0027/BUMHS/IRB/23). At the start of the questionnaire every participant was given an informed written consent form (translated in both English and Urdu) to ensure if they are willing to participate or not. Their identity was kept anonymous in the article. The survey was conducted by physical interviews at Thalassemia center SPH Quetta. This data was only handled by the authors themselves so no one else can have the access to the data.

Consent to Participate

Informed consent was obtained from all individual participants included in the study.

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The authors affirm that participants provided informed consent for publication of data mentioned in Tables 1, 2, 3 and 4.

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Jamil, Z., Ejaz, U., Najeeb, A. et al. Psychosocial Problems Faced by Parents of Children with Thalassemia: A Cross Sectional Study Conducted in Quetta Pakistan. J. Psychosoc. Rehabil. Ment. Health (2024). https://doi.org/10.1007/s40737-024-00400-8

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  • DOI: https://doi.org/10.1007/s40737-024-00400-8

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