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Culturally Adapting and Refining “Descubriendo Soluciones Juntos” for Care Partners of Adults with Neurological Conditions

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Abstract

Culturally relevant evidence-based interventions for Spanish speaking Latinx care partners are needed to address negative outcomes often associated with caregiver burden. Problem Solving Training (PST), an evidence-based, problem-solving skills training intervention with a person-centered approach is optimal for adaptation to other languages and cultures. Our objective was to culturally adapt PST to Descubriendo Soluciones Juntos (DSJ) for Spanish-speaking Latinx care partners of adults with neurological disorders through and iterative process of translation and language validation and input from therapists and Spanish-speaking Latinx care partners engaged in the intervention. Three primarily Spanish-speaking care partners completed a single-group, pre-post-test design pilot study of DSJ, comprising six one-on-one sessions delivered via telephone or videoconference and baseline and post-intervention measures of caregiver burden, depressive symptoms, and positive aspects of caregiving. Iterative cultural adaptation occurred in concordance with Marsiglia and Booth’s (Res Soc Work Pract 25:423–432, 2015) roadmap for cultural adaptation. Process-based and content-based adaptations are described, resulting in a final protocol for DSJ that maintains the core components of PST. All participants were satisfied with DSJ and reported positive changes in caregiver burden, positive aspects of caregiving, and/or relationship quality with their care recipient. PST/DSJ is a bicultural problem-solving intervention with potential to provide much needed evidence-based support to Spanish-speaking Latinx care partners.

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Funding

This study was funded by Communities Foundation of Texas (Grant 20-D-99250). REDCap for data management was supported by CTSA NIH Grant 1UL1TR003163-01A1.

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Authors

Contributions

Dr. Shannon Juengst, Dr. Candice Osborne, and Dr. Marlene Vega contributed to the study conception and design. Material preparation and data collection were performed by Susan Herrera, Alexandra Holland, Chung Lin Kew, Valeria Silva, and Fangshouh Cheng. Data analysis was performed by Dr. Shannon Juengst. All authors contributed to writing the first draft of the manuscript and commented on subsequent versions of the manuscript. All authors read and approved the final manuscript.

Corresponding author

Correspondence to Shannon B. Juengst.

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Conflict of interest

Dr. Juengst has received travel support from the Western Michigan Brain Injury Network and from Angel MedFlight to present her work at professional meetings.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Informed consent was obtained from all individual participants included in this study.

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Vega, M., Osborne, C., Braga, M.B. et al. Culturally Adapting and Refining “Descubriendo Soluciones Juntos” for Care Partners of Adults with Neurological Conditions. J. Psychosoc. Rehabil. Ment. Health (2023). https://doi.org/10.1007/s40737-023-00346-3

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  • DOI: https://doi.org/10.1007/s40737-023-00346-3

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