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Evaluation of a Day-Care Rehabilitation Skill Training Programme on Burden and Quality of Life of Caregivers of Persons with Severe Mental Illness

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Abstract

Although studies have examined caregiver centred intervention programmes on caregiver wellbeing, patient focused interventions to improve caregiver outcome is less studied, especially in India. We examined the impact of a patient focused, structured day care skill training programme on caregiver burden and quality of life in Indian context. Using a post-test only design, we conducted this study among a naturalistic cohort of 60 caregivers of patients with severe mental illness. The carers were recruited from two-day care skill training units and outpatient department of a tertiary mental health centre in Kerala. Caregiver burden and quality of life were measured using Burden Assessment Scale (BAS) and WHOQOL-BREF. Independent sample t test was used to compare the outcomes. Caregivers of patients attending the day-care skill training programme have reported significantly lower burden on various domains of BAS including physical & mental health (t = − 4.758; P < .001; d = − 0.829), external support (t = − 4.563; P < .001; d = − 0.778), caregivers routine (t = − 7.104; P < .001; d = − 0.834), support of patient (t = − 4.038; P < .001; d = − 0.834), taking responsibility (t = − 2.320; P < .05; d = − 0.599), other relations (t = − 7.636; P < .001; d = − 0.972), patients behaviour (t = − 6.350: P < .001; d = − 0.640) and caregiver strategy (t = − 2.991; P < .05; d = − 0.772) as compared to the caregivers in comparison group. They also reported significantly higher quality of life on various domains of WHOQOL-BREF including physical quality of life (t = 4.62; P < .001; d = 0.793), psychological quality of life (t = 7.23; P < .001; d = 0.867), social relationship quality of life (t = 7.94; P < .001; d = 1.252) and environment quality of life (t = 7.93; P < .001; d = 1.349). Caregivers of patients attending the day care skill training demonstrated lesser burden and better quality of life. The findings underscore the importance of a long-term patient focused day-care skill training for caregivers’ health and wellbeing.

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This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors.

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Authors and Affiliations

  1. Department of Psychiatric Social Work, Institute of Mental Health and Neurosciences (IMHANS), Kozhikode, Kerala, India

    Neethumol Xaviour & Seema P. Uthaman

  2. Department of Psychiatry, Institute of Mental Health and Neurosciences (IMHANS), Kozhikode, Kerala, India

    P. K. Anish

  3. School of Public Health and National Suicide Research Foundation, WHO Collaborating Centre for Suicide Prevention, University College Cork, Cork, Ireland

    Anvar Sadath

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  1. Neethumol Xaviour
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Xaviour, N., Uthaman, S.P., Anish, P.K. et al. Evaluation of a Day-Care Rehabilitation Skill Training Programme on Burden and Quality of Life of Caregivers of Persons with Severe Mental Illness. J. Psychosoc. Rehabil. Ment. Health 9, 425–432 (2022). https://doi.org/10.1007/s40737-022-00282-8

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