Monash Bioethics Review

, Volume 33, Issue 4, pp 295–300 | Cite as

Why governance? A challenge to good governance of biobanks

  • Katharine BrowneEmail author
Biobanking Eggs and Embryos for Research


In this commentary on Karla Stroud and Kieran O’Doherty’s ‘Ethically Sustainable Governance in the Biobanking of Eggs and Embryos for Research’ (2015) I call into question the need for good governance to overcome the challenges facing biobanking of eggs and embryos. I argue that the principles of good governance for biobanking that Stroud and O’Doherty outline come up short in providing concrete normative guidance to resolve the challenges associated with a biobank for eggs and embryos.


Biobank Eggs Embryos Governance Health research Informed consent 


  1. Budimir, D., O. Polasek, A. Marusic, I. Kolcic, T. Zemunik, V. Boraska, A. Jeroncic, M. Boban, H. Campbell, and I. Rudan. 2011. Ethical aspects of human biobanks: A systematic review. Croatian Medical Journal 52(3): 262–279.CrossRefGoogle Scholar
  2. Cambon-Thomsen, A. 2004. The social and ethical issues of post-genomic human biobanks. Nature Reviews Genetics 5(11): 866–873.CrossRefGoogle Scholar
  3. Caulfield, T., A.L. McGuire, M. Cho, J.A. Buchanan, M.M. Burgess, U. Danilczyk, C.M. Diaz, K. Fryer-Edwards, S.K. Green, M.A. Hodosh, J. Kaye, L. Kedes, B.M. Knoppers, T. Lemmens, E.M. Meslin, J. Murphy, R.L. Nussbaum, M. Otlowski, D. Pullman, P.N. Ray, J. Sugarman, and M. Timmons. 2008. Research ethics recommendations for whole-genome research: Consensus statement. PLoS Biology 6: 73.CrossRefGoogle Scholar
  4. Cohen, J. 1989. Deliberation and Democratic Legitimacy 1997: 67–92.Google Scholar
  5. Graham, J., B. Amos, and T. Plumptre. 2003. Principles for good governance in the 21st century. Policy Brief 15: 1–6.Google Scholar
  6. Greely, H.T. 2007. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annual Review of Genomics and Human Genetics 8: 343–364.CrossRefGoogle Scholar
  7. Lang, A. 2007. But is it for real? The British Columbia Citizens’ Assembly as a model of state-sponsored citizen empowerment. Politics and Society 35(1): 35–70.CrossRefGoogle Scholar
  8. O’Doherty, K.C., and M.M. Burgess. 2013. Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics 9(2): 55–77.CrossRefGoogle Scholar
  9. O’Doherty, K.C., M.M. Burgess, K. Edwards, R.P. Gallagher, A.K. Hawkins, J. Kaye, V. McCaffrey, and D.E. Winickoff. 2011. From consent to institutions: Designing adaptive governance for genomic biobanks. Social Science and Medicine 73(3): 367–374.CrossRefGoogle Scholar
  10. Rawls, J. 1993. Political Liberalism. Columbia University Press.Google Scholar
  11. Stroud, K., and K. O’Doherty. 2015. Ethically sustainable governance in the biobanking of eggs and embryos for research. Monash Bioethics Review. 1–18Google Scholar
  12. Warren, M. E., and H. Pearse, eds. 2008. Designing deliberative democracy: the British Columbia Citizens’ Assembly. Cambridge University Press.Google Scholar

Copyright information

© Monash University 2016

Authors and Affiliations

  1. 1.Novel Tech EthicsDalhousie UniversityHalifaxCanada

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