Alzheimer Café: an approach focused on Alzheimer’s patients but with remarkable values on the quality of life of their caregivers
- 88 Downloads
Alzheimer’s disease (AD) affects the global quality of life of persons who suffer from it and their caregivers, because of the behavioral and psychological consequences associated with the pathology and its caring. The Alzheimer Café (AC) is one example of approach aimed to help persons and caregivers deal with their disease.
This is a pilot study focusing on the efficacy of AC in relieving caregivers’ and persons’ burdens due to dementia.
The quality of life of both caregivers and persons who attended the AC was compared with the quality of life of those who did not. Basic and instrumental daily activities and neuropsychiatric functioning were assessed. Caregivers also answered to general well-being and caregiving burden questionnaires. The evaluation took place at the beginning of the intervention and after 1, 3, 6, 9 and 12 months.
Caregivers who joined the AC with their persons with dementia showed to have significantly benefited in the daily care of persons with dementia, in terms of total well-being, vitality, and emotional burden.
Although improvements were not observed in persons with dementia who attended the AC, significant benefits were reported by their caregivers, suggesting that the intervention may produce better management of social and economic problems and lead to better emotional support.
The AC seems to help families of AD persons to better manage the disease, and also delay the institutionalization of these persons, which is certainly an ambitious goal for an incurable disorder such as Alzheimer’s disease.
KeywordsAlzheimer Café Alzheimer’s disease Caregivers Quality of life Burden
We are grateful to the Humanitas Foundation-Project Elios Humanitas Gavazzeni, Bergamo, and to all the Volunteers. This research did not receive any specific Grant from funding agencies in the public, commercial, or not-for-profit sectors.
Compliance with ethical standards
Conflict of interest
No potential conflict of interest was reported by the authors.
Statement of human and animal rights
This study was conducted with respect of animals and humans rights.
An Informed consent has been provided by all participants.
- 2.Fratiglioni L, Launer LJ, Andersen K (2000) Incidence of dementia and major subtypes in Europe: a collaborative study of population-based cohorts. Neurol Dis Elder Res Group Neurol 54(Suppl 5):10–15Google Scholar
- 3.Vanacore N, Maggini M, Raschetti R (2005) Centro Nazionale di Epidemiologia, Sorveglianza e Promozione della Salute, ISS “Epidemiologia della demenza di Alzheimer in Italia”. BEN-Notiziario ISS, vol 18, n. p 2Google Scholar
- 4.Elliott AF, Burgio LD, DeCoster J (2010) Enhancing caregiver Health: findings from the resources for enhancing Alzheimer’s caregiver Health II intervention, vol 58, p 30Google Scholar
- 9.Kitwood T (1997) The concept of personhood and its relevance for a new culture of dementia care. In: Caregiving in dementia research and applications, vol II. Routledge, London, pp 3–13Google Scholar
- 15.Martin-Carrasco M, Ballesteros-Rodríguez J et al (2013) Interventions for caregivers of patients with dementia. Actas Esp Psiquiatr 42:300–314Google Scholar
- 28.Grossi E, Mosconi P, Groth N (2002) Il Questionario Psychological General Well-Being. Versione Italiana.: Edizioni “Mario Negri”Google Scholar
- 31.Velentgas P, Dreyer NA, Nourjah P et al (2013) Developing a protocol for observational comparative effectiveness research: a user’s guide. Agency for Healthcare Research and Quality (US), RockvilleGoogle Scholar
- 32.Cohen Jacob (1988) Statistical power analysis for the behavioral sciences. Routledge, US. ISBN 1-134-74270-3Google Scholar