Abstract
Parents of children with autism spectrum disorder (ASD) risk higher levels of stress and a lower quality of life compared to parents of typically developing children. Few parent training programs focus on parenting outcomes, and few authors evaluate the implementation fidelity of their program. A systematic review was conducted to target studies assessing the effects of group training programs on the stress levels or quality of life of parents of children with ASD as well as the implementation fidelity. A total of 12 studies were identified. Findings suggest that mindfulness could be a promising parent training tool to improve the well-being of parents of children with ASD.
Similar content being viewed by others
References
Alain, M., & Dessureault, D. (2009). Elaborer et évaluer les programmes d’intervention psychosociale. Québec: Presses de l’Université du Québec.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.
Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2017). Parenting stress through the lens of different clinical groups: a systematic review & meta-analysis. Journal of Abnormal Child Psychology, 46(3), 449–461. https://doi.org/10.1007/s10802-017-0313-6.
Bearss, K., Burrell, T. L., Stewart, L. M., & Scahill, L. (2015a). Parent training in autism spectrum disorder: what’s in a name? Clinical Child and Family Psychology Review, 18(2), 170–182. https://doi.org/10.1007/s10567-015-0179-5.
Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., et al. (2015b). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder. A randomized clinical trial. JAMA, 313(15), 1524–1533. https://doi.org/10.1001/jama.2015.3150.
Beaudoin, A. J., Sébire, G., & Couture, M. (2014). Parent training interventions for toddlers with autism spectrum disorder. Autism Research and Treatment. https://doi.org/10.1155/2014/839890.
Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48, 1476–1487. https://doi.org/10.1037/a0027537.
Black, M. E., & Therrien, W. J. (2018). Parent training programs for school-age children with autism: a systematic review. Remedial and Special Education, 39(4), 243–256. https://doi.org/10.1177/0741932517730645.
Blackledge, J. T., & Hayes, S. (2006). Using acceptance and commitment training in the support of parents of children diagnosed with autism. Child and Family Behavior Therapy, 28(1), 1–18. https://doi.org/10.1300/J019v28n01_01.
Bonis, S. (2016). Stress and parents of children with autism: a review of literature. Issues in Mental Health Nursing, 37(3), 153–163. https://doi.org/10.3109/01612840.2015.1116030.
Bradshaw, J., Koegel, L. K., & Koegel, R. L. (2017). Improving functional language and social motivation with a parent-mediated intervention for toddlers with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(8), 2443–2458. https://doi.org/10.1007/s10803-017-3155-8.
Bradshaw, J., Bearss, K., McCracken, C., Smith, T., Johnson, C., Lecavalier, L., et al. (2018). Parent education for young children with autism and disruptive behavior: response to active control treatment. Journal of Clinical Child & Adolescent Psychology, 0(0), 1–11,. https://doi.org/10.1080/15374416.2017.1381913.
Brookman-Frazee, L., Stahmer, A., Baker-Ericzen, N. J., & Tsai, K. (2006). Parenting interventions for children with autism spectrum and disruptive behavior disorders: opportunities for cross-fertilization. Clinical Child and Family Psychology Review, 9(3–4), 181–200. https://doi.org/10.1007/s10567-006-0010-4.
Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279–1294. https://doi.org/10.1007/s11136-011-9861-3.
Cappe, E., Poirier, N., Sankey, C., Belzil, A. & Dionne, C. (2017). Quality of life of french canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors. Quality of Life Research, 27(4), 955–967. https://doi.org/10.1007/s11136-017-1757-4.
Catalano, D., Holloway, L., & Mpofu, E. (2018). Mental health interventions for parent carers of children with autistic spectrum disorder: practice guidelines from a critical interpretive synthesis (CIS) systematic review. International Journal of Environmental Research and Public Health, 15(2), 341. https://doi.org/10.3390/ijerph15020341.
Chiang, H. M., & Wineman, I. (2014). Factors associated with quality of life in individuals with autism spectrum disorders: a review of literature. Research in Autism Spectrum Disorders, 8, 974–986. https://doi.org/10.1016/j.rasd.2014.05.003.
Clément, C., & Schaeffer, E. (2010). Evaluation de la validité sociale des interventions menées auprès des enfants et adolescents avec un TED. Revue de Psychoéducation, 39(2), 207–218.
Clifford, T., & Minnes, P. (2013). Who participates in support groups for parents of children with autism spectrum disorders? The role of beliefs and coping style. Journal of Autism and Developmental Disorders, 43(1), 179–187. https://doi.org/10.1007/s10803-012-1561-5.
Da Paz, N. S., & Wallander, J. L. (2017). Interventions that target improvements in mental health for parents of children with autism spectrum disorders: a narrative review. Clinical Psychology Review, 51, 1–14. https://doi.org/10.1016/j.cpr.2016.10.006.
Dababnah, S., & Parish, S. L. (2016a). Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder. Autism, 20(1), 85–95. https://doi.org/10.1177/1362361314568900.
Dababnah, S., & Parish, S. L. (2016b). Incredible years program tailored to parents of preschoolers with autism: pilot results. Research on Social Work Practice, 26(4), 372–385. https://doi.org/10.1177/1049731514558004.
Deplus, S. (2011). Les interventions psychologiques basées sur la pleine conscience pour l’enfant, l’adolescent et leurs parents. In I. Kotsou & A. Heeren (Eds.), Pleine Conscience et Acceptation (pp. 61–81). Bruxelles: De Boeck.
Derguy, C., Michel, G., M’Bailara, K., Roux, S., & Bouvard, M. (2015). Assessing needs in parents of children with autism spectrum disorder: a crucial preliminary step to target relevant issues for support programs. Journal of Intellectual & Developmental Disability, 40(2), 156–166. https://doi.org/10.3109/13668250.2015.1023707.
Derguy, C., Poumeyreau, M., Pingault, S., & M’Bailara, K. (2018). Un programme d’éducation thérapeutique destiné à des parents d’enfant avec un TSA: résultats préliminaires concernant l’efficacité du programme ETAP. L’Encéphale. https://doi.org/10.1016/j.encep.2017.07.004.
Durlak, J. A. (2010). The importance of doing well in whatever you do: a commentary on the special section, “implementation research in early childhood education”. Early Childhood Research Quarterly, 25, 348–357. https://doi.org/10.1016/j.ecresq.2010.03.003.
Durlak, J. A., & DuPre, E. P. (2008). Implementation matters: a review of research on the influence of implementation on program outcomes and the factors affecting implementation. American Journal of Community Psychology, 41(3–4), 327–350. https://doi.org/10.1007/s10464-008-9165-0.
Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134(2), e454–e453. https://doi.org/10.1542/peds.2013-3164.
Eapen, V., & Guan, J. (2016). Parental quality of life in autism spectrum disorder: current status and future directions. Acta Psychopathologica, 2(5). https://doi.org/10.4172/2469-6676.100031.
Factor, R. S., Swain, D. M., & Scarpa, A. (2018). Child autism spectrum disorder traits and parenting stress: the utility of using a physiological measure of parental stress. Journal of Autism and Developmental Disorders, 48, 1081–1091. https://doi.org/10.1007/s10803-017-3397-5.
Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: feasibility and preliminary outcome data. Mindfulness, 4, 89–101. https://doi.org/10.1007/s12671-012-0099-0.
Goldman, S. E., Glover, C. A., Lloyd, B. P., Barton, E. E., & Mello, M. P. (2017). Effects of parent implemented visual schedule routines for african american children with ASD in low-income home settings. Exceptionality, 26(3), 162–175.
Gould, E. R., Tarbox, J., & Coyne, L. (2018). Evaluating the effects of acceptance and commitment training on the overt behavior of parents of children with autism. Journal of Contextual Behavioral Science, 7, 81–88. https://doi.org/10.1016/j.jcbs.2017.06.003.
Goussot, T., Auxiette, C., & Chambres, P. (2012). Réussir la prise en charge des parents d’enfants autistes pour réussir la prise en charge de leur enfant. Annales Médico Psychologiques, 170, 456–460. https://doi.org/10.1016/j.amp.2010.11.021.
Harrop, C. (2015). Evidence-based, parent-mediated interventions for young children with autism spectrum disorder: the case of restricted and repetitive behaviors. Autism, 19(6), 662–672. https://doi.org/10.1177/1362361314545685.
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642. https://doi.org/10.1007/s10803-012-1604-y.
Heeren, A. (2011). Processus psychologiques et pleine conscience: au cœur de la troisième vague. In I. Kotsou & A. Heeren (Eds.), Pleine conscience et acceptation (pp. 61–81). Bruxelles: De Boeck.
Hock, R., Yingling, M. E., & Kinsman, A. (2015). A parent-informed framework of treatment engagement in group-based interventions. Journal of Child and Family Studies, 24, 3372–3382. https://doi.org/10.1007/s10826-015-0139-1.
Hong, E. r., Neely, L., Gerow, S., & Gann, C. (2018). The effect of caregiver-delivered social-communication interventions on skill generalization and maintenance in ASD. Research in Developmental Disabilities, 74, 57–71. https://doi.org/10.1016/j.ridd.2018.01.006.
Hsiao, Y. J., Higgins, K., Pierce, T., & Whitby, S. (2017). Parental stress, family quality of life, and family-teacher partnerships: families of children with autism spectrum disorder. Research in Developmental Disabilities, 70, 152–162. https://doi.org/10.1016/j.ridd.2017.08.01.
Iadarola, S., Levato, L., Harrison, B., Smith, T., Lecavalier, L., Johnson, C., et al. (2018). Teaching parents behavioral strategies for autism spectrum disorder (ASD): effects on stress, strain, and competence. Journal of Autism and Developmental Disorders, 48(4), 1031–1040. https://doi.org/10.1007/s10803-017-3339-2.
Ibanez, L. V., Kobak, K., Swanson, A., Wallace, L., Warren, Z., & Stone, W. L. (2018). Enhancing interactions during daily routines: a randomized controlled trial of a web-based tutorial for parents of young children with ASD. Autism Research, 11(4), 667–678. https://doi.org/10.1002/aur.1919.
Ilg, J., Jebrane, A., Dutray, B., Wolgensinger, L., Rousseau, M., & Paquet, A. (2017). Évaluation d’un programme francophone de formation aux habiletés parentales dans le cadre des troubles du spectre de l’autisme auprès d’un groupe pilote. Annales Médico-psychologiques, revue psychiatrique, 175(5), 430–435. https://doi.org/10.1016/j.amp.2016.01.018.
Ilg, J., Jebrane, A., Paquet, A., Rousseau, M., Dutray, B., Wolgensinger, et al. (2018). Evaluation of a french parent-training program in young children with autism spectrum disorder. Psychologie Française, 63(2), 181–199. https://doi.org/10.1016/j.psfr.2016.12.004.
Ingersoll, B., Wainer, A. L., Berger, N. I., Pickard, K. E., & Bonter, N. (2016). Comparison of a self-directed and therapist-assisted telehealth parent-mediated intervention for children with ASD: a pilot RCT. Journal of Autism and Developmental Disorders, 46(7), 2275–2284. https://doi.org/10.1007/s10803-016-2755-z.
Jonsson, U., Alaie, I., Wilteus, A. L., Zander, E., Marschik, P. B., Coghill, et al. (2017). Annual research review: quality of life and childhood mental and behavioral disorders—a critical review of the research. Journal of Child Psychology and Psychiatry, 58(4), 439–469. https://doi.org/10.1111/jcpp.12645.
Kabat-Zinn, J. (1994). Wherever you go, there you are: mindfulness meditation in everyday life. New York: Hyperion.
Kaminski, J. W., Valle, L. A., Filene, J. H., & Boyle, C. L. (2008). A Meta-Analytic Review of Components Associated with Parent Training Program Effectiveness. Journal of Abnormal Child Psychology, 36(4), 567–589. https://doi.org/10.1007/s10802-007-9201-9.
Karst, J. S., Van Hecke, A. M., Carson, A. M., Stevens, S., Schohl, K., & Dolan, B. (2015). Parent and family outcomes of PEERS: a social skills intervention for adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 752–765. https://doi.org/10.1007/s10803-014-2231-6.
Kasari, C., Gulsrud, A., Paparella, T., Hellemann, G., & Berry, K. (2015). Randomized comparative efficacy study of parent-mediated interventions for toddlers with autism. Journal of Consulting and Clinical Psychology, 83(3), 554–563. https://doi.org/10.1037/a0039080.
Klinger, L. G., Ence, W., & Meyer, A. (2013). Caregiver-mediated approaches to managing challenging behaviors in children with autism spectrum disorder. Dialogues in Clinical Neuroscience, 15(2), 225–233.
Kuravackel, G. M., Ruble, L. A., Reese, R. J., Ables, A. P., Rodgers, A. D., & Toland, M. D. (2018). COMPASS for hope: evaluating the effectiveness of a parent training and support program for children with ASD. Journal of Autism and Developmental Disorders, 48(2), 404–416. https://doi.org/10.1007/s10803-017-3333-8.
Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., et al. (2018). The autism family experience questionnaire (AFEQ): an ecologically-valid, parent-nominated measure of family experience, quality of life and prioritised outcomes for early intervention. Journal of Autism and Developmental Disorders, 48(4), 1052–1062. https://doi.org/10.1007/s10803-017-3350-7.
Lecavalier, L., Pan, X., & Smith, T. (2018). Parent stress in a randomized clinical trial of atomoxetine and parent training for children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 980–987. https://doi.org/10.1007/s10803-017-3345-4.
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., & Ioannidis, J. P. A. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: explanation and elaboration. PLoS Medicine, 6(7). https://doi.org/10.1136/bmj.b2700.
Lovell, B., Moss, M., & Wetherell, M. A. (2012). With a little help from my friends: psychological, endocrine and health corollaries of social support in parental caregivers of children with autism or ADHD. Research in Developmental Disabilities, 33, 682–687. https://doi.org/10.1016/j.ridd.2011.11.014.
MacCormack, J. W. H. (2017). What youths with autism spectrum disorder and their parents want from social competence programs. Exceptionality Education International, 27, 116–146.
Matthews, J. M., & Hudson, A. M. (2001). Guidelines for evaluating parent training programs. Family Relations, 50, 77–86. https://doi.org/10.1111/j.1741-3729.2001.00077.x.
Matthews, N. L., Orr, B. C., Harris, B., McIntosh, R., Openden, D., & Smith, C. J. (2018). Parent and child outcomes of jumpstart, an education and training program for parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 56, 21–35. https://doi.org/10.1016/j.rasd.2018.08.009.
Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223–232. https://doi.org/10.1177/1362361312474121.
Mazzucchelli, T. G., Jenkins, M., & Sofronoff, K. (2018). Building bridges triple P: pilot study of a behavioral family intervention for adolescents with autism spectrum disorder. Research in Developmental Disabilities, 76, 46–55. https://doi.org/10.1016/j.ridd.2018.02.018.
McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: a systematic review. Journal of Evaluation in Clinical Practice, 13, 120–129.
Monestès, J. L., & Villatte, M. (2011). La thérapie d’acceptation et d’engagement ACT. Issy-les-Moulineaux: Elsevier Masson.
Munder, T., & Barth, J. (2017). Cochrane’s risk of bias tool in the context of psychotherapy outcome research. Psychotherapy Research. https://doi.org/10.1080/10503307.2017.1411628.
Nabi, H., Kivimäki, M., Batty, G. D., Shipley, M. J., Britton, A., Brunner, E. J., et al. (2013). Increased risk of coronary heart disease among individuals reporting adverse impact of stress on their health: the Whitehall II prospective cohort study. European Heart Journal, 34(34), 2697–2705. https://doi.org/10.1093/eurheartj/eht216.
National Health Medical Research Council. (1999). A guide to the development, implementation and evaluation of clinical practice guidelines. Canberra: Commonwealth of Australia.
National Institute for Health and Care Excellence (NICE). (2013). Autism: the management and support of children and young people on the autism spectrum. London: National Institute for Health and Care Excellence.
O’Nions, E., Happé, F., Evers, K., Boonen, H., & Noens, I. (2018). How do parents manage irritability, challenging behavior, non-compliance and anxiety in children with autism spectrum disorders? A meta-synthesis. Journal of Autism and Developmental Disorders, 48(4), 1272–1286. https://doi.org/10.1007/s10803-017-3361-4.
Oono, I. P., Honey, E. J., & McConachie, H. (2013). Parent-mediated early intervention for young children with autism spectrum disorders (ASD). Cochrane Database of Systematic Reviews, 4(CD009774). https://doi.org/10.1002/14651858.CD009774.pub2.
Parsons, D., Cordier, R., Vaz, S., & Lee, H. C. (2017). Parent-mediated intervention training delivered remotely for children with autism spectrum disorder living outside of urban areas: systematic review. Journal of Medical Internet Research, 19(8), e198. https://doi.org/10.2196/jmir.6651.
Pastor-Cerezuela, G., Fernandez-Andres, M. I., Tarraga-Minguez, R., Navarro-Pena, J. M., et al. (2016). Parental stress and ASD: relationship with autism symptom severity, IQ, and resilience. Focus on Autism and Other Developmental Disabilities, 31(4), 300–311. https://doi.org/10.1177/1088357615583471.
Patterson, S. Y., Smith, V., & Mirenda, P. (2012). A systematic review of training programs for parents of children with autism spectrum disorders: single subject contributions. Autism, 16(5), 498–522. https://doi.org/10.1177/1362361311413398.
Pfeiffer, B., Piller, A., Giazzoni-Fialko, T., & Chainani, A. (2016). Meaningful outcomes for enhancing quality of life for individuals with autism spectrum disorder. Journal of Intellectual & Developmental Disability, 42(1), 90–100. https://doi.org/10.3109/13668250.2016.1197893.
Pickles, A., Le Couteur, A., Leadbitter, K., Salomone, E., Cole-Fletcher, R., Tobin, H., et al. (2016). Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial. Lancet, 388, 2501–2509. https://doi.org/10.1016/S0140-6736(16)31229-6.
Poddar, S., Sinha, V. K., & Mukherjee, U. (2017). Impact of acceptance and commitment therapy on valuing behavior of parents of children with neurodevelopmental disorders. Psychology and Behavioral Science, 3(3). https://doi.org/10.19080/PBSIJ.2017.03.555614.
Poslawsky, I. E., Naber, F., Bakermans-Kranenburg, M. J., van Daalen, E., van Engeland, H., van Jzendoorn, I., et al. (2015). Video-feedback intervention to promote positive parenting adapted to autism (VIPP-AUTI): a randomized controlled trial. Autism, 19(5), 588–603. https://doi.org/10.1177/1362361314537124.
Postorino, V., Sharp, W. G., McCracken, C. E., Bearss, K., Burrell, T. L., et al. (2017). A systematic review and meta-analysis of parent training for disruptive behavior in children with autism spectrum disorder. Clinical Child and Family Psychology Review, 20(4), 391–402. https://doi.org/10.1007/s10567-017-0237-2.
Preece, D., & Trajkovski, V. (2017). Parent education in autism spectrum disorder- a review of the literature. Hrvatska revija za rehabilitacijska istraživanja, 53(1), 128–138. https://doi.org/10.31299/hrri.53.1.10.
Radley, K. C., Jenson, W. R., Clark, E., & O’Neill, R. E. (2014). The feasibility and effects of a parent-facilitated social skills training program on social engagement of children with autism spectrum disorders. Psychology in the Schools, 51(3), 241–255. https://doi.org/10.1002/pits.21749.
Reed, P., Osborne, L. A., Makrygianni, M., Waddington, E., Etherington, A., & Gainsborough, J. (2013). Evaluation of the barnet early autism model (BEAM) teaching intervention programme in a ‘real world’ setting. Research in Autism Spectrum Disorders, 7(6), 631–638. https://doi.org/10.1016/j.rasd.2013.02.009.
Roberts, J., Williams, K., Carter, M., Evans, D., Parmenter, T., Silove, N., Clark, T., Warren, A., et al. (2011). A randomised controlled trial of two early intervention programs for young children with autism: centre-based with parent program and home-based. Research in Autism Spectrum Disorders, 5, 1553–1566. https://doi.org/10.1016/j.rasd.2011.03.001.
Robertson, S. M. (2010). Neurodiversity, quality of life, and autistic adults: shifting research and professional focuses onto real-life challenges. Disability Studies Quarterly, 30(1), 1–21. https://doi.org/10.18061/dsq.v30i1.1069.
Samadi, S. A., McConkey, R., & Kelly, G. (2012). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism, 17(1), 27–43. https://doi.org/10.1177/1362361311435156.
Schultz, T. R., Schmidt, C. T., & Stichter, J. P. (2011). A review of parent education programs for parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 26(2), 96–104. https://doi.org/10.1177/1088357610397346.
Schultz, T. R., Stichter, J. P., Herzog, M. J., McGhee, S. D., & Lierheimer, K. (2012). Social competence intervention for parents (SCI-P): comparing outcomes for a parent education program targeting adolescents with ASD. Autism Research and Treatment. https://doi.org/10.1155/2012/681465.
Shepherd, D., Csako, R., Landon, J., Goedeke, S., & Ty, K. (2018). Documenting and understanding parent’s intervention choices for their child with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(4), 988–1001. https://doi.org/10.1007/s10803-017-3395-7.
Siller, M., Morgan, L., Turner-Brown, L., Baggett, K. M., Baranek, G. T., Brian, J., et al. (2013). Designing studies to evaluate parent-mediated interventions for toddlers with autism spectrum disorder. Journal of Early Intervention, 35(4), 355–377. https://doi.org/10.1177/1053815114542507.
Soulas, T., & Brédart, A. (2012). Qualité de vie et santé. In S. Sultan & I. Varescon (Eds.), Psychologie de la Santé (pp. 17–40). Paris: Presses Universitaires de France.
Strauss, K., Vicari, S., Valeri, G., D’Elia, L., Arima, S. & Fava, F. (2012). Parent inclusion in Early Intensive Behavioral Intervention: The influence of parental stress, parent treatment fidelity and parent-mediated generalization of behavior targets on child outcomes. Research in Developmental Disabilities, 33, 688–703. https://doi.org/10.1016/j.ridd.2011.11.008.
Strauss, K., Mancini, F., & Fava, L. (2013). Parent inclusion in early intensive behavior interventions for young children with ASD: a synthesis of meta-analyses from 2009 to 2011. Research in Developmental Disabilities, 34(9), 2967–2985. https://doi.org/10.1016/j.ridd.2013.06.007.
Tellegen, C. L., & Sanders, M. R. (2014). A randomized controlled trial evaluating a brief parenting program with children with autism spectrum disorders. Journal of Consulting and Clinical Psychology, 82(6), 1193–1200. https://doi.org/10.1037/a0037246.
Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: a systematic review. Research in Autism Spectrum Disorders, 23, 36–49. https://doi.org/10.1016/j.rasd.2015.11.008.
von Elm, E., Altman, D. G., Egger, M., Pocock, S. J., Gotzsche, P. C., & Vandenbroucke, J. P. (2007). The strengthening the reporting of observational studies in epidemiology (STROBE) statement: guidelines for reporting observational studies. Journal of Clinical Epidemiology, 61(4), 344–349. https://doi.org/10.1016/j.jclinepi.2007.11.008 Lancet, 370, 1453-1457.
Wainer, A. L., Hepburn, S., & McMahon Griffith, E. (2017). Remembering parents in parent-mediated early intervention: an approach to examining impact on parents and families. Autism, 21(1), 5–17. https://doi.org/10.1177/1362361315622411.
Wheeler, J. J., Carter, S. L., Mayton, M. R. & Thomas, R. A. (2002). Structural analysis of instructional variables and their effects on task-engagement and selfaggression. Education and Training in Mental Retardation and Developmental Disabilities, 37(4), 391–398.
Funding
This study has received funding from the Caisse Nationale de Solidarité pour l’Autonomie (CNSA) through the call for the project “Autism 2014” proposed by the Institut de Recherche En Santé Publique (IRESP).
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of Interest
The authors declare that they have no conflict of interest.
Additional information
Publisher’s Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Lichtlé, J., Downes, N., Engelberg, A. et al. The Effects of Parent Training Programs on the Quality of Life and Stress Levels of Parents Raising a Child with Autism Spectrum Disorder: a Systematic Review of the Literature. Rev J Autism Dev Disord 7, 242–262 (2020). https://doi.org/10.1007/s40489-019-00190-x
Received:
Accepted:
Published:
Issue Date:
DOI: https://doi.org/10.1007/s40489-019-00190-x