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The Valuation of Informal Care in Cost-of-Illness Studies: A Systematic Review

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Abstract

Background

There is a growing interest in incorporating informal care in cost-of-illness studies as a relevant part of the economic impact of some diseases.

Objective

The aim of this paper was to review the recent literature valuating the costs of informal care in a group of selected diseases from 2005 to 2015.

Methods

We carried out a systematic review on the economic impact of informal care, focusing on six selected diseases: arthritis or osteoarthritis, cancer, dementia, mental diseases, multiple sclerosis and stroke.

Results

We selected 91 cost-of-illness articles. The average weight attributed to the informal care cost over the total cost was highly relevant for dementia, stroke, mental diseases, cancer and multiple sclerosis. The most frequent valuation method applied was the opportunity cost method, followed by the proxy good method. The annual cost of informal care presented a high variability depending on the disease and geographic location. Distinguishing by type of illness, the disease with the highest annual value of informal caregiving was dementia, followed by mental illness and multiple sclerosis. The average hourly unit cost was €11.43 (2015 values), varying noticeably depending on the geographic location.

Conclusion

This paper identifies several aspects that should be enhanced to promote comparability between studies and countries, and it sends key messages for incorporating informal care costs to adequately measure the economic impact of diseases.

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Correspondence to Juan Oliva-Moreno.

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This work was funded by the Spanish Ministry of Economy and Competitiveness under the “Programa Estatal de Investigación, Desarrollo e Innovación Orientada a los Retos de la Sociedad, Plan Estatal de Investigación Científica Técnica y de Innovación 2013–2016” programme. Research project references: ECO2013-48217-C2-1 and ECON2013-48217-C2-2-R (http://invesfeps.ulpgc.es/en). The funder had no influence over the conducting of this study or the drafting of this manuscript. No conflicts exist for Juan Oliva-Moreno, Marta Trapero-Bertran, Luz Maria Peña-Longobardo and Raúl del Pozo-Rubio. We are also grateful to the two anonymous reviewers and the editor for their helpful comments.

Author Contributions

JOM designed and managed the study. MTB carried out the systematic literature review. All authors (JOM, MTB, LPL and RPR) have reviewed, summarised and extracted information articles included in the review. JOM, MTB and LPL have contributed in writing the first draft of the manuscript. All the authors have provided input on multiple drafts of the manuscript and approval of the final version.

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Oliva-Moreno, J., Trapero-Bertran, M., Peña-Longobardo, L.M. et al. The Valuation of Informal Care in Cost-of-Illness Studies: A Systematic Review. PharmacoEconomics 35, 331–345 (2017). https://doi.org/10.1007/s40273-016-0468-y

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