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Development of a Cancer Self-management Education Programme for Women with Breast Cancer at the End of Primary Treatment

Journal of Cancer Education volume 34, pages 882–889 (2019)Cite this article

Abstract

Breast cancer survivors have specific healthcare needs. As a result of their disease and treatment, they have to adapt to different physical and psychosocial late effects. Unfortunately, several studies have documented insufficiency in the survivorship healthcare system. The aim of this paper was to describe the process of development and testing of a novel Cancer Self-management Education programme (CSME programme) to improve patient-reported self-management and self-efficacy for patients with breast cancer who were at the end of primary treatment. The development of the educational programme was inspired by the Plan-Do-Study-Act (PDSA) circle and based on person-centred principles. It was conducted at a Danish university hospital. Nine oncology healthcare providers, two external experts in patient education and five patients were involved in the development and testing of the education programme. Implementation of dialogue-based tools was used as an educational learning instrument in the SCME programme. The PDSA approach to the development of the CSME programme resulted in a person-centred programme that could improve self-management and self-efficacy in the survivorship phase of patients with breast cancer.

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Affiliations

  1. Department of Oncology, Aarhus University Hospital, Nørrebrogade 44 - Building 5, 8000, Aarhus C, Denmark

    Mai-Britt Bjørklund Ellegaard & Anders Bonde Jensen

  2. Department of Clinical Medicine, Aarhus University and the Research Program in Patient Involvement, Aarhus University Hospital, Aarhus, Denmark

    Kirsten Lomborg

Authors
  1. Mai-Britt Bjørklund Ellegaard
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  2. Anders Bonde Jensen
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  3. Kirsten Lomborg
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Correspondence to Mai-Britt Bjørklund Ellegaard.

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Ellegaard, MB.B., Jensen, A.B. & Lomborg, K. Development of a Cancer Self-management Education Programme for Women with Breast Cancer at the End of Primary Treatment. J Canc Educ 34, 882–889 (2019). https://doi.org/10.1007/s13187-018-1390-0

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  • DOI: https://doi.org/10.1007/s13187-018-1390-0

Keywords

  • Breast neoplasms
  • Survivors
  • Patient education
  • Learning
  • Information
  • Self-management
  • Educator training
  • Empowerment
  • Self-efficacy