Abstract
With the rapid expansion of genomic medicine, more citizens are compelled to think about genetics in their daily lives. This study aims to explore appropriate types of educational media and methods to enlighten activities for genetics and hereditary cancer. We presented an 18-min YouTube video on genetics and hereditary cancer to participants at a scientific event, Science Agora 2020, and administered a web questionnaire to investigate their opinions about when and how citizens should start learning about genetics and hereditary cancer. We recruited 133 participants who watched the video, and 26.3% (35/133) responded to the questionnaire. Most of them were evaluated to understand and appreciate the contents of the video. They identified websites, or videos as suitable learning media, irrespective of their sex, age, or profession. They highlighted upper elementary school or junior high school as appropriate educational stages to start learning about genetics and hereditary cancer to facilitate collecting their own genetic information by themselves. Our findings show that educational institutions should provide opportunities to learn about genetics and hereditary cancers, especially for upper elementary school and junior high school students, using learning media, such as videos, depending on their level or demand.
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Acknowledgements
We would like to express our sincere gratitude to everyone who provided guidance and support regarding video creation and web questionnaire surveys.
Funding
This research was supported by the Grant-in-Aid for Scientific Research, “Verification of educational effects using manga for the purpose of enlightening personalized cancer medicine (19K2422801).”
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This study was initiated and designed by Reimi Sogawa and supervised by Shinji Kosugi and Akira Hirasawa. Material preparation, data collection, and analysis were performed by Reimi Sogawa, Noriyuki Yamashita, Mariko Kochi, Mashu Futagawa, Fumino Kato, Yusaku Urakawa, Yayoi Tanimura, Hideki Yamamoto, Shuta Tomida, and Akira Hirasawa. The first draft of the manuscript was written by Reimi Sogawa and reviewed by Takahito Wada, and the final manuscript was approved by all the authors.
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The questionnaire and methodology for this study were approved by the Research Ethics Review Committee of the Department of Medical Sciences, Okayama University (Lab. No. 2003-038).
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Sogawa, R., Wada, T., Yamashita, N. et al. When and how to enlighten citizens on genetics and hereditary cancer: a web survey of online video viewers. J Community Genet 14, 575–581 (2023). https://doi.org/10.1007/s12687-023-00663-x
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DOI: https://doi.org/10.1007/s12687-023-00663-x