This paper provides an outline of the development and growth of EUROCAT, the European network of congenital anomaly registers. In recent years the network has been through a period of transition and change. The Central Register of data has transferred from the Ulster University to the EU Joint-Research-Centre, Ispra, Italy.
The benefits of combining data from across Europe, from different populations and countries are described by the uses to which these data can be put. These uses include:
. surveillance of anomalies at a local, regional or pan-European level
. registration of rare diseases
New studies and projects are underway, including EUROlinkCAT (a Horizon 2020 funded data-linkage project), promising a fruitful future in further research of congenital anomalies.
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Tucker, F.D., Morris, J.K., on behalf of the JRC Management Committee. et al. EUROCAT: an update on its functions and activities. J Community Genet 9, 407–410 (2018). https://doi.org/10.1007/s12687-018-0367-3