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Education for fathers about newborn screening and leftover dried blood spots

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Abstract

The purpose of this research was to assess the impact of an educational intervention on paternal knowledge, attitudes, and support about newborn screening (NBS) and dried blood spots (DBS). Participants (n = 147) were randomized into one of two groups. The results from this study indicated that video education tools about NBS and DBS is associated with significantly increased knowledge, support, and satisfaction for both NBS and research use of DBS and an opt-out consent approach for DBS among fathers.

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References

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Acknowledgements

This research was funded by the National Institutes of Health (NIH), grant HD062762

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Authors and Affiliations

  1. University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA

    Erin Rothwell, Bob Wong, Erin Johnson & Jeffrey R. Botkin

Authors
  1. Erin Rothwell
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  2. Bob Wong
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  3. Erin Johnson
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  4. Jeffrey R. Botkin
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Corresponding author

Correspondence to Erin Rothwell.

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Funding

This study was funded by the National Institutes of Health (NIH), grant HD062762.

Conflict of interest

The authors declare that they have no conflict of interest.

Ethical approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study.

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Rothwell, E., Wong, B., Johnson, E. et al. Education for fathers about newborn screening and leftover dried blood spots. J Community Genet 8, 239–241 (2017). https://doi.org/10.1007/s12687-017-0305-9

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  • DOI: https://doi.org/10.1007/s12687-017-0305-9

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