Skip to main content
SpringerLink
Log in

Awareness of risks of biobank research may affect public attitudes toward consent

  • Correspondence
  • Published:
Journal of Community Genetics Aims and scope Submit manuscript

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

References

  • Botkin JR, Rothwell E, Anderson R, Stark LA, Mitchell J (2014) Public attitudes regarding the use of electronic health information and residual clinical tissues for research. J Community Genet 5(3):205–213. doi:10.1007/s12687-013-0175-8

    Article  PubMed Central  PubMed  Google Scholar 

  • Carnahan SJ (2011) Biobanking newborn bloodspots for genetic research without consent. J Health Care Law Policy 14(2):299–330

    Google Scholar 

  • Drabiak-Syed K (2010) Lessons from Havasupai tribe v. Arizona state university board of regents: recognizing group, cultural, and dignity harms as legitimate risks warranting integration into research practice. J Health Biomed Law 6(2):175–225

    Google Scholar 

  • Master Z, Nelson E, Murdoch B, Caulfield T (2012) Biobanks, consent and claims of consensus. Nat Methods 9(9):885–888. doi:10.1038/nmeth.2142

    Article  CAS  PubMed  Google Scholar 

  • Mello MM, Wolf LE (2010) The Havasupai Indian tribe case—lessons for research involving stored biologic samples. N Engl J Med 363(3):204–207. doi:10.1056/NEJMp1005203

    Article  CAS  PubMed  Google Scholar 

Download references

Compliance with ethics guidelines

Sean Nurmsoo and Molly Hayes declare that they have no conflict of interest. This article does not contain any studies with human or animal subjects performed by the any of the authors.

Author information

Authors and Affiliations

  1. Department of Pediatrics, Dalhousie University, 1256 Barrington St., 4th Floor, PO Box 15000, Halifax, Nova Scotia, B3H 4R2, Canada

    Sean Nurmsoo

  2. Department of Mathematics and Statistics, Department of Psychology and Neuroscience, Dalhousie University, Halifax, Nova Scotia, Canada

    Molly Hayes

Authors
  1. Sean Nurmsoo
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Molly Hayes
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Sean Nurmsoo.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Nurmsoo, S., Hayes, M. Awareness of risks of biobank research may affect public attitudes toward consent. J Community Genet 6, 181–182 (2015). https://doi.org/10.1007/s12687-015-0215-7

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s12687-015-0215-7

Keywords

Search

Navigation