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Mindfulness

, Volume 7, Issue 6, pp 1385–1395 | Cite as

Self-Compassion: a Potential Buffer Against Affiliate Stigma Experienced by Parents of Children with Autism Spectrum Disorders

  • Celia C. Y. WongEmail author
  • Winnie W. S. Mak
  • Kelly Yu-Hsin Liao
ORIGINAL PAPER

Abstract

Affiliate stigma was found to be associated with negative outcomes among parents of children with autism spectrum disorders, but only limited research has explored a potential buffer in this association. The present study examined self-compassion as a potential protective factor. One hundred eighty Chinese parents of children with autism spectrum disorders in Hong Kong participated in the study. After controlling for various types of social support (i.e., family support, friends support, and professional support) and positive parental perception, results of a hierarchical linear regression showed that affiliate stigma was significantly associated with psychological distress. In addition, the results identified self-compassion as a moderator in the association between affiliate stigma and psychological distress. Specifically, affiliate stigma was found to be significantly associated with psychological distress among parents with low levels of self-compassion but not among parents with high levels of self-compassion. These results pointed to the importance of cultivating self-compassion among parents of children with autism spectrum disorders. Future research may further explore the protective role of self-compassion in other stigmatized populations.

Keywords

Self-compassion Affiliate stigma Autism Caregiver Chinese 

Notes

Compliance with Ethical Standards

Funding

This study was not supported by any funding.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

Conflict of Interest

The authors declare that they have no conflict of interest.

References

  1. Adams, C. E., & Leary, M. R. (2010). Promoting self-compassionate attitudes toward eating among restrictive and guilty eaters. Journal of Social and Clinical Psychology, 26(10), 1120–1144.CrossRefGoogle Scholar
  2. Aiken, L. S., & West, S. G. (1991). Multiple regression: testing and interpreting interactions. Newbury Park: Sage Publications.Google Scholar
  3. Akin, A. (2008). The scales of psychological well-being: a study of validity and reliability. Educational Sciences: Theory and Practice, 8(3), 741–750.Google Scholar
  4. Allen, A. B., & Leary, M. R. (2010). Self-compassion, stress, and coping. Social and Personality Compass, 4(2), 107–118.CrossRefGoogle Scholar
  5. Altiere, M. J., & von Kluge, S. (2009). Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18(1), 83–92.CrossRefGoogle Scholar
  6. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.CrossRefGoogle Scholar
  7. Barnard, L. K., & Curry, J. F. (2011). Self-compassion: conceptualizations, correlates, and interventions. Review of General Psychology, 15(4), 289–303.CrossRefGoogle Scholar
  8. Baum, E. S., & Rude, S. S. (2013). Acceptance-enhanced expressive writing prevents symptoms in participants with low initial depression. Cognitive Therapy and Research, 37(1), 35–42.CrossRefGoogle Scholar
  9. Bazzano, A., Wolfe, C., Zylowska, L., Wang, S., Schuster, E., Barrett, C., et al. (2015). Mindfulness based stress reduction (MBSR) for parents and caregivers of individuals with developmental disabilities: a community-based approach. Journal of Child and Family Studies, 24(2), 298–308.CrossRefGoogle Scholar
  10. Behr, S. K., Murphy, D. L., & Summer, J. A. (1992). User’s manual: Kansas Inventory of Parental Perceptions (KIPP). Lawrence: Beach Center on Families and Disabilities.Google Scholar
  11. Bekhet, A. K., Johnson, N. L., & Zauszniewski, J. A. (2012). Resilience in family members of persons with autism spectrum disorder: a review of the literature. Issues in Mental Health Nursing, 33(10), 650–656.CrossRefPubMedGoogle Scholar
  12. Benn, R., Akiva, T., Arel, S., & Roeser, R. W. (2012). Mindfulness training effects for parents and educators of children with special needs. Developmental Psychology, 48(5), 1476–1487.CrossRefPubMedGoogle Scholar
  13. Bennett-Goleman, T. (2001). Emotional alchemy: how the mind can heal the heart. New York: Three Rivers Press.Google Scholar
  14. Benson, P. R., Fisher, G. A., Diana, A., Simon, L., Gamache, G., Tessler, R. C., et al. (1996). A state network of family support services: the Massachusetts Family Support Demonstration Project. Evaluation and Program Planning, 19(1), 27–39.CrossRefGoogle Scholar
  15. Benson, P., Karlof, K., & Siperstein, G. (2008). Maternal involvement in the education of young children with autism spectrum disorders. Autism, 12(1), 47–63.CrossRefPubMedGoogle Scholar
  16. Bögels, S. M., Lehtonen, A., & Restifo, K. (2010). Mindful parenting in mental health care. Mindfulness, 1(2), 107–120.CrossRefPubMedPubMedCentralGoogle Scholar
  17. Breines, J. G., & Chen, S. (2012). Self-compassion increases self-improvement motivation. Personality and Social Psychology Bulletin, 38(9), 1133–1143.CrossRefPubMedGoogle Scholar
  18. Breines, J., Toole, A., Tu, C., & Chen, S. (2014). Self-compassion, body image, and self-reported disordered eating. Self and Identity, 13(4), 432–448.CrossRefGoogle Scholar
  19. Brown, K. W., & Ryan, R. M. (2003). The benefits of being present: mindfulness and its role in psychological well-being. Journal of Personality and Social Psychology, 84(4), 822–848.CrossRefPubMedGoogle Scholar
  20. Chen, J., Yan, L., & Zhou, L. (2011). Reliability and validity of Chinese version of self-compassion scale. Chinese Journal of Clinical Psychology, 19(6), 734–736.Google Scholar
  21. Chiu, M. Y. L., Yang, X., Wong, H. T., & Li, J. H. (2015). The mediating effect of affective stigma between face concern and general mental health—the case of Chinese caregivers of children with intellectual disability. Research in Developmental Disabilities, 36, 437–446.CrossRefGoogle Scholar
  22. Chou, K. (2000). Assessing Chinese adolescents’ social support: the multidimensional scale of perceived social support. Personality and Individual Differences, 28(2), 299–307.CrossRefGoogle Scholar
  23. Davis, K., & Gavidia-Paynes, S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability, 34(2), 153–162.CrossRefPubMedGoogle Scholar
  24. Dehnavi, S. R., Malekpour, M., Faramarzi, S., & Talebi, H. (2011). The share of internalized stigma and autism quotient in predicting the mental health of mothers with autism children in Iran. International Journal of Business and Social Science, 2(20), 251–259.Google Scholar
  25. Foo, M., Yap, P. M. E. H., & Sung, M. (2014). The experience of Singaporean caregivers with a child diagnosed with autism spectrum disorder and challenging behaviors. Qualitative Social Work.Google Scholar
  26. Fung, K. M. T., Tsang, H. W. H., Corrigan, P. W., Lam, C. S., & Cheng, W. (2007). Measuring self-stigma of mental illness in China and its implications for recovery. International Journal of Social Psychiatry, 53(5), 408–418.CrossRefPubMedGoogle Scholar
  27. Gilbert, P., & Procter, S. (2006). Compassionate mind training for people with high shame and self-criticism: overview and pilot study of a group therapy approach. Clinical Psychology & Psychotherapy, 13(6), 353–379.CrossRefGoogle Scholar
  28. Gray, D. E. (1993). Perceptions of stigma: the parents of autistic children. Sociology of Health & Illness, 15(1), 102–120.CrossRefGoogle Scholar
  29. Gray, D. E. (2006). Coping over time: the parents of children with autism. Journal of Intellectual Disability Research, 50(12), 970–976.CrossRefPubMedGoogle Scholar
  30. Greeff, A. P., Vansteenwegen, A., & Gillard, J. (2012). Resilience in families living with a child with a physical disability. Rehabilitation Nursing, 37(3), 97–104.CrossRefPubMedGoogle Scholar
  31. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642.CrossRefPubMedGoogle Scholar
  32. Heffernan, M., Griffin, M. T. Q., McNulty, S. R., & Fitzpatrick, J. J. (2010). Self-compassion and emotional intelligence in nurses. International Journal of Nursing Practice, 16(4), 366–373.CrossRefPubMedGoogle Scholar
  33. Hwang, K. K. (1997–1998). Guanzi and Mientze: conflict resolution in Chinese society. Intercultural Communication Studies, 7(1), 17–42.Google Scholar
  34. Johnson, E. A., & O’Brien, K. A. (2013). Self-compassion soothes the savage eco-threat system: effects on negative affect, shame, rumination, and depressive symptoms. Journal of Social and Clinical Psychology, 32(9), 939–963.CrossRefGoogle Scholar
  35. Kemppainen, J. J., Johnson, M. O., Phillips, J. C., Sullivan, K. M., Corless, I. B., Reid, P. P., et al. (2013). A multinational study of self-compassion and human immunodeficiency virus-related anxiety. International Nursing Review, 60(4), 477–486.CrossRefPubMedGoogle Scholar
  36. Kheir, N., Ghoneim, O., Sandridge, A. L., Al-Ismail, M., Hayder, S., & Al-Rawi, F. (2012). Quality of life caregivers of children with autism in Qatar. Autism, 16(3), 293–298.CrossRefPubMedGoogle Scholar
  37. Kitayama, S., & Markus, H. R. (2000). The pursuit of happiness and the realization of sympathy: Cultural patterns of self, social relations, and well-being (Culture and subjective well-being). Cambridge, MA: The MIT Press.Google Scholar
  38. Konstantareas, M. M., & Homatidis, S. (1989). Assessing child symptom severity and stress in parents of autistic children. Journal of Child Psychology and Psychiatry, 30(3), 459–470.CrossRefPubMedGoogle Scholar
  39. Kung, W. W. (2001). Consideration of cultural factors in working with Chinese American families with a mentally ill patient. Families of Society, 82(1), 97–107.CrossRefGoogle Scholar
  40. Kwok, S. Y. C. L., Leung, C. L. K., & Wong, D. F. K. (2014). Marital satisfaction of Chinese mothers of children with autism and intellectual disabilities in Hong Kong. Journal of Intellectual Disability Research, 58(12), 1156–1171.CrossRefPubMedGoogle Scholar
  41. Leary, M. R., Tate, E. B., Adams, C. E., Allen, A. B., & Hancock, J. (2007). Self-compassion and reactions to unpleasant self-relevant events: the implications of treating oneself kindly. Journal of Personality and Social Psychology, 92(5), 887–904.CrossRefPubMedGoogle Scholar
  42. Liu, M., Chow, A., Lau, Y., He, H., & Wang, W. (2014). Psychometric testing of the Chinese Mandarin version of the Mental Health Inventory among Chinese patients with coronary heart disease in Mainland China. International Journal of Nursing Practice. doi: 10.1111/ijn.12301.Google Scholar
  43. Ludwig, W., Huber, D., Schmidt, S., Bender, S., & Geril, W. (1990). Asessment of compliance-related attitudes in psychiatry: a comparison of two questionnaires based on the Health Belief Mode. Social Psychiatry and Psychiatric Epidemiology, 25(6), 298–303.CrossRefPubMedGoogle Scholar
  44. Mak, W. W. S., & Cheung, R. Y. M. (2008). Affiliate stigma among caregivers of people with intellectual disability or mental illness. Journal of Applied Research in Intellectual Disabilities, 21(6), 532–545.CrossRefGoogle Scholar
  45. Mak, W. W. S., & Cheung, R. Y. M. (2012). Psychological distress and subjective burden of caregivers of people with mental illness: the role of affiliate stigma and face concern. Community Mental Health Journal, 48(3), 270–274.CrossRefPubMedGoogle Scholar
  46. Mak, W. W. S., & Kwok, Y. T. Y. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science and Medicine, 70(12), 2045–2051.CrossRefPubMedGoogle Scholar
  47. Mak, W. W. S., Chen, S. X., Lam, A. G., & Yiu, V. F. L. (2008). Understanding distress: the role of face concern among Chinese Americans, European Americans, Hong Kong Chinese, and Mainland Chinese. The Counseling Psychologist, 37(2), 219–248.CrossRefGoogle Scholar
  48. Marshall, S. L., Parker, P. D., Ciarrochi, J., Sahdra, B., Jackson, C. J., & Heaven, P. C. L. (2015). Self-compassion protects against the negative effects of low self-esteem: a longitudinal study in a large adolescent sample. Personality and Individual Differences, 74(2015), 116–121.CrossRefGoogle Scholar
  49. Miller, W. R. (1985). Motivation for treatment: a review with special emphasis on alcoholism. Psychological Bulletin, 98(1), 84–107.CrossRefPubMedGoogle Scholar
  50. Minnes, P., Perry, A., & Weiss, J. A. (2015). Predictors of distress and well‐being in parents of young children with developmental delays and disabilities: the importance of parent perceptions. Journal of Intellectual Disability Research, 59(6), 551–560.CrossRefPubMedGoogle Scholar
  51. Montes, G., & Halterman, J. S. (2007). Among mothers of children with autism: a population-based study. Pediatrics, 119(5), 1040–1046.CrossRefGoogle Scholar
  52. Neely, M. E., Schallert, D. L., Mohammed, S. S., Roberts, R. M., & Chen, Y. (2009). Self-kindness when facing stress: the role of self-compassion, goal regulation, and support in college students well-being. Motivation and Emotion, 33(1), 88–97.CrossRefGoogle Scholar
  53. Neff, K. D. (2003a). Self-compassion: an alternative conceptualization of a healthy attitude toward oneself. Self and Identity, 2(2), 85–101.CrossRefGoogle Scholar
  54. Neff, K. D. (2003b). The development and validation of a scale to measure self-compassion. Self and Identity, 2(3), 223–250.CrossRefGoogle Scholar
  55. Neff, K. D. (2008). Self-compassion: moving beyond the pitfalls of a separate self-concept. In J. Bauer & H. A. Wayment (Eds.), Transcending self-interest: psychological explorations of the quiet ego (pp. 95–105). Washington, DC: APA Books.CrossRefGoogle Scholar
  56. Neff, K. D., & Dahm, K. A. (2015). Self-compassion: what it is, what it does, and how it relates to mindfulness. In B. D. Ostafin, M. D. Robinson, & B. P. Meier (Eds.), Handbook of mindfulness and self-regulation (pp. 121–140). New York: Springer.Google Scholar
  57. Neff, K. D., & Faso, D. J. (2014). Self-compassion and well-being in parents of children with Autism. Mindfulness, 1–10.Google Scholar
  58. Neff, K. D., & Germer, C. K. (2013). A pilot study and randomized controlled trial of the mindful self-compassion program. Journal of Clinical Psychology, 69(1), 28–44.CrossRefPubMedGoogle Scholar
  59. Neff, K. D., & Vonk, R. (2009). Self-compassion versus global self esteem: two different ways of relating to oneself. Journal of Personality, 77(1), 23–50.CrossRefPubMedGoogle Scholar
  60. Neff, K. D., Hsieh, Y., & Dejitterat, K. (2005). Self-compassion, achievement goals, and coping with academic failure. Self and Identity, 4(3), 263–287.CrossRefGoogle Scholar
  61. Neff, K. D., Rude, S. S., & Kirkpatrick, K. (2007). An examination of self-compassion in relation to positive psychological functioning and personality traits. Journal of Research in Personality, 41(4), 908–916.CrossRefGoogle Scholar
  62. Neff, K. D., Pititsungkagarn, K., & Hsieh, Y. P. (2008). Self-compassion and self-construal in the United States, Thailand, and Taiwan. Journal of Cross-Cultural Psychology, 39(3), 267–285.CrossRefGoogle Scholar
  63. Perry, A. (2004). A model of stress in families of children with developmental disabilities: clinical and research applications. Journal of Developmental Disabilities, 11(1), 1–16.Google Scholar
  64. Phetrasuwan, S., & Miles, M. (2009). Parenting stress in mothers of children with autism spectrum disorder. Journal of Pediatric Nursing, 14(3), 157–165.Google Scholar
  65. Reid, R. C., Temko, J., Moghaddam, J. F., & Fong, T. W. (2014). Shame, rumination, and self-compassion in men assessed for hypersexual disorder. Journal of Psychiatric Practice, 20(4), 261–268.CrossRefGoogle Scholar
  66. Shapira, L. B., & Mongrain, M. (2010). The benefits of self-compassion and optimism exercises for individuals vulnerable to depression. The Journal of Positive Psychology, 5(5), 377–389.CrossRefGoogle Scholar
  67. Siebes, R. C., Maassen, G. H., Wijnroks, L., Ketelaar, M., van Schie, P. E., Gorter, J. W., et al. (2007). Quality of pediatric rehabilitation from the parent perspective: validation of the short Measure of Process of Care (MPOC-20) in the Netherlands. Clinical Rehabilitation, 21(1), 62–72.CrossRefPubMedGoogle Scholar
  68. Singh, N. N., Lancioni, G. E., Winon, A. S. W., Fisher, B. C., Wahler, R. G., & McAleavy, K. (2006). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14, 169–177.CrossRefGoogle Scholar
  69. Van Dam, N. T., Sheppard, S. C., Forsyth, J. P., & Earleywine, M. (2011). Self-compassion is a better predictor than mindfulness of symptom severity and quality of life in mixed anxiety and depression. Journal of Anxiety Disorders, 25(1), 123–130.CrossRefPubMedGoogle Scholar
  70. Veit, C. T., & Ware, J. E. J. (1983). The structure of psychological distress and well-being in general populations. Journal of Consulting and Clinical Psychology, 51(5), 730–742.CrossRefPubMedGoogle Scholar
  71. Vogel, D. L., Wade, N. G., & Hackler, A. H. (2007). Perceived public stigma and the willingness to seek counseling: the mediating roles of self-stigma and attitudes toward counseling. Journal of Counseling Psychology, 54(1), 40–50.CrossRefGoogle Scholar
  72. Wang, P., & Michaels, C. A. (2009). Chinese families of children with severe disabilities: family needs and available support. Research and Practice for Persons with Severe Disabilities, 34(2), 21–32.CrossRefGoogle Scholar
  73. Werner, S., & Shulman, C. (2013). Subjective well-being among family caregivers of individuals with developmental disabilities: the role of affiliate stigma and psychosocial moderating variables. Research in Developmental Disabilities, 34(11), 4103–4114.CrossRefPubMedGoogle Scholar
  74. Windle, M., & Miller-Tutzauer, C. (1992). Confirmatory factor analysis and concurrent validity of the perceived social support—family measure among adolescents. Journal of Marriage and the Family, 54(4), 777–787.CrossRefGoogle Scholar
  75. Wong, C. C. Y., & Mak, W. W. S. (2013). Differentiating the role of three self-compassion components in buffering cognitive-personality vulnerability to depression among Chinese in Hong Kong. Journal of Counseling Psychology, 60(1), 162–169.CrossRefPubMedGoogle Scholar
  76. Zane, N., Umemoto, D., & Park, S. (1998). The effects of ethnic and gender match and face concerns on self-disclosure in counseling for Asian American clients. Unpublished manuscript.Google Scholar
  77. Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30–41.CrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media New York 2016

Authors and Affiliations

  • Celia C. Y. Wong
    • 1
    Email author
  • Winnie W. S. Mak
    • 2
  • Kelly Yu-Hsin Liao
    • 3
  1. 1.Department of PsychologyUniversity of HoustonHoustonUSA
  2. 2.Department of PsychologyChinese University of Hong KongShatinHong Kong
  3. 3.Department of Counseling, Administration, Supervision, and Adult Learning, College of Education and Human ServicesCleveland State UniversityClevelandUSA

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