Skip to main content
SpringerLink
Log in

Legal and Ethical Issues in Brain Banking

  • Perspective
  • Published:
Neuroscience Bulletin Aims and scope Submit manuscript

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

References

  1. Convention for the Protection of Human Rights and Dignity of the Human Being with regard to the Application of Biology and Medicine: Convention on Human Rights and Biomedicine, Oviedo, 4.IV.1997.

  2. Bauer K, Taub S, Parsi K. Ethical issues in tissue banking for research: a brief review of existing organizational policies. Teor Med 2004, 25: 113–142.

    Google Scholar 

  3. Samarasekera N, Al-Shahi Salman R, Huitinga I, Klioueva N, McLean CA, Kretzschmar H, et al. Brain banking for neurological disorders. Lancet Neurol 2013, 11: 1096–1105.

    Article  Google Scholar 

  4. Klioueva NM, Rademaker MC, Huitinga I. Design of a European code of conduct for brain banking. Handb Clin Neurol 2018, 150: 51–81.

    Article  PubMed  Google Scholar 

  5. Klioueva NM, Rademaker MC, Dexter DT, Al-Sarraj S, Seilhean D, Streichenberger N, et al. BrainNet Europe’s Code of Conduct for brain banking. J Neural Transm 2015, 122: 937–940.

    Article  PubMed  PubMed Central  Google Scholar 

  6. Klioueva N, Bovenberg J, Huitinga I. Banking brain tissue for research. Handb Clin Neurol 2017, 145: 9–12.

    Article  PubMed  Google Scholar 

  7. Abbot A. Brain child. Nature 2011, 478: 442–443.

    Article  CAS  Google Scholar 

  8. Boyes M, Ward P. Brain donation for schizophrenia research: gift, consent and meaning. J Med Ethics 2003, 29: 165–168.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  9. Directive 98/44/EC of the European Parliament and of the Council of 6 July 1998 on the legal protection of biotechnological inventions. Forum (Genova) 1999, 9: 15–24.

  10. Rademaker SHM, Huitinga I. A new viewpoint: running a non-profit brain bank as a business. Handb Clin Neurol 2018, 150: 93–101.

    Article  PubMed  Google Scholar 

  11. Alta Charo R. Body of research—ownership and use of human tissue. New Eng J Med 2006, 355: 1517–1519.

    Article  Google Scholar 

  12. Andrews L, Nelkin D. Whose body is it anyway? Disputes over body tissue in a biotechnology age. Lancet 1998, 351: 53–56.

    Article  CAS  PubMed  Google Scholar 

  13. Kretzschmar H. Brain banking; opportunities, challenges and meaning for the future. Nat Neurosci 2009, 10: 70–77.

    Article  CAS  Google Scholar 

  14. Bell JE, Alafuzoff I, Al-Sarraj S, Arzberger T, Bogdanovic N, Budka H, et al. Management of a twenty-first century brain bank: experience in the BrainNet Europe consortium. Acta Neuropathol 2008, 115: 497–507.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Netherlands Brain Bank, Netherlands Institute for Neuroscience, Netherlands Royal Academy of Arts and Sciences, Amsterdam, Netherlands

    Inge Huitinga, Mignon de Goeij & Natasja Klioueva

Authors
  1. Inge Huitinga
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Mignon de Goeij
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Natasja Klioueva
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Inge Huitinga.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Huitinga, I., de Goeij, M. & Klioueva, N. Legal and Ethical Issues in Brain Banking. Neurosci. Bull. 35, 267–269 (2019). https://doi.org/10.1007/s12264-018-0305-8

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s12264-018-0305-8

Keywords

Search

Navigation