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Translation, Transcultural Adaptation and Validation of the Caregiver Quality of Life Index-Cancer (CQOLC) Scale in Hindi Language for Caregivers of Breast Cancer Patients

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Indian Journal of Surgery Aims and scope Submit manuscript

Abstract

The aim of this study was to translate the Caregiver Quality of Life Index-Cancer (C-QOLC) into Hindi and test its reliability and validity. The translation process started after taking permission from original authors—forward translation done by four persons, including a general surgeon, endocrine surgeon, psychologist and a Hindi lecturer, then reconciliation of the gathered data followed by backward translation by an English lecturer. A presurvey assessment was done, and lastly validation study among the caregivers was conducted. The translated version was validated on a total of 110 caregivers of Breast cancer patients. The Cronbach’s alpha score of the total scale was 0.72. Exploratory factor analysis resulted in four factor structure: burden, disruptiveness, patient’s health concerns and social support concerns. Hindi version of the Caregiver Quality of Life Index-Cancer was found to be a reliable and valid measure of the quality of life in this cohort of Hindi speaking caregivers.

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Acknowledgements

Authors would like to acknowledge support obtained from Mr Ashish Kushwaha, Mr G S Dwivedi (lecturer of English) and Dr Shikha Jha (Clinical Psychiatrist) in translating the English questionnaire.

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Author notes

  1. VK, VVK and AM have contributed equally and are joint first author.

Authors and Affiliations

  1. Department of Surgery, NSCB Medical College, Jabalpur, India

    Vivek Kushram, Vivek Vijay Kumar, Arpan Mishra, Sanjay Kumar Yadav, Dhananjaya Sharma & Deepti Bala Sharma

  2. Department of Community Medicine and Biostatistics, Rama Medical College, Kanpur, India

    Saket Shekhar

  3. Department of Radiotherapy, NSCB Medical College, Jabalpur, India

    Shyam Ji Rawat

Authors
  1. Vivek Kushram
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Contributions

VK, VVK: data collection and implementation

AM and SKY: conceptualization, study design, implementation, literature search, figures, data analysis, data interpretation, writing

DS: literature search, figures, data analysis, data interpretation, writing, editing and revision

SS and SKY: data analysis

DBS, SJR: revision and editing of manuscript

Corresponding author

Correspondence to Sanjay Kumar Yadav.

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Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

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Informed consent was obtained from the participants.

Conflict of Interest

The authors declare no competing interests. This is to declare that all authors have contributed to the study. No part of the manuscript has been sent for consideration elsewhere or published in any International or National journal. The authors clearly certify that there is no aspect of plagiarism. All the conflicts of interest have been clearly defined and the source of grant disclosed. Due ethical permission/consent has been obtained for carrying out the study. In case of any dispute, the authors will be held fully responsible for the statement disclosed in the cover letter. The authors are also aware of the copyright rules and also declare that they will not reproduce any published text without due permission from the journal.

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Presentation: Oral presentation based on this study was awarded Dr C Palanivelu Best Post-Graduate Paper Award during the annual conference of the Association of Surgeons of India (ASICON), Mumbai, 2022

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Kushram, V., Kumar, V.V., Mishra, A. et al. Translation, Transcultural Adaptation and Validation of the Caregiver Quality of Life Index-Cancer (CQOLC) Scale in Hindi Language for Caregivers of Breast Cancer Patients. Indian J Surg (2023). https://doi.org/10.1007/s12262-023-03891-0

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