This paper examines parents’ perspectives on wellbeing among children with disabilities in Trinidad using mixed methods and Sen’s capability approach. In an exploratory phase a list of functionings is identified from interviews with parents and advocates of these children. In the second phase the qualitative information is used to develop a questionnaire which is administered among parents of children with disabilities in the final phase. The questionnaire contains both closed and open-ended questions which respectively measures wellbeing among children with disabilities and collects information on hindering factors. Twenty-nine functionings of importance were identified and parents’ responses in the final phase indicate deprivations in all functionings including those related to basic needs. Targeted responses to girls with disabilities and children with multiple disabilities are required as greater deprivation was revealed among them. Results also indicated the absence of various societal structures which hindered the achievement of fundamental rights and freedoms and overall wellbeing among children with disabilities. Moreover, the integrated findings suggest the need for public systems regarding therapy, supportive devices, disability-related health-care services, and transportation, as well as improvement to the education system, specifically the provision of accommodations within the regular schools necessary for the inclusion of children with disabilities.
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Here, disability is seen as a consequence of the limited societal structures, which in turn affects participation on an equal opportunity basis by persons with impairments (Leonard Cheshire Disability 2006).
Trinidad and Tobago is a twin-island Republic in the Caribbean. For this study, a child is defined as a person under the age of 18 years (United Nations 1990).
Notably if functionings related to school books and acceptance by teachers were calculated based on the entire sample since all children should be enrolled in school then these functionings were moderate deprivations.
Alkire, S. (2009). The capability approach to the quality of life. Background Report Prepared for the Commission on the Measurement of Economic Performance and Social Progress. http://www.stiglitz-sen-fitoussi.fr/documents/capability_approach.pdf.
Benson, P. R. (2010). Coping, distress, and wellbeing in mothers of children with autism. Research in Autism Spectrum Disorder, 4, 217–228. https://doi.org/10.1016/j.rasd.2009.09.008.
Blackman, S.N.J., Conrad D.A, & Philip, L.M. (2017). The pre-university experiences of persons with disabilities in Barbados and Trinidad. International Journal of Special Education 33(2), 238–270. https://files.eric.ed.gov/fulltext/EJ1184058.pdf.
Blackman, S. N. J., Conrad, D. A., & Philip, L. M. (2018). Responding to barriers to inclusion: The voices of tertiary level students with disabilities in Barbados and Trinidad and Tobago”. In D. A. Conrad & S. N. J. Blackman (Eds.), Responding to Learner Diversity and Difficulties (pp. 395–416). Charlotte: Information Age Publishing.
Burchardt, T. (2004). Capabilities and disability: The capabilities framework and the social model of disability. Disability & Society, 19(7), 735–751. https://doi.org/10.1080/0968759042000284213.
Creswell, J. W. (2015). A concise introduction to mixed methods research. Thousand Oaks: Sage Publications.
Conrad, D. A., & Brown, L. I. (2011). Fostering inclusive education: Principals’ perspectives in Trinidad and Tobago. International Journal of Inclusive Education, 15(9), 1017–1029. https://doi.org/10.1080/13603110903490721.
Dodge, R., Daly, A., Huyton, J., & Sanders, L. (2012). The challenge of defining wellbeing. International Journal of Wellbeing, 2(3), 222–235. https://doi.org/10.5502/ijw.v2i3.4.
Fetters, M. D., Curry, L., & Creswell, J. W. (2013). Achieving integration in mixed methods design - prinicples and practices. Health Services Research, 48(6), 2134–2156.
Finkelstein, V. (1999). A profession allied to the community: The disabled people’s trade union”. In E. Stone (Ed.), Disability and development: Learning from action and research on disability in the majority world (pp. 21–24). Leeds: The Disability Press.
Forgeard, M. J. C., Jayawickreme, E., Kern, M., & Seligman, M. E. P. (2011). Doing the right thing: Measuring wellbeing for public policy. International Journal of Wellbeing, 1(1), 79–106. https://doi.org/10.5502/ijw.v1i1.15.
Gordon, D., Nandy, S., Pantazis, C., Pemberton, S., & Townsend, P. (2003). Child poverty in the developing world. Bristol: The Policy Press.
Hogan, D. P., Rogers, M. L., & Msall, M. E. (2000). Functional limitations and key indicators of wellbeing in children with disability. Archives of Pediatrics & Adolescent Medicine, 154(10), 1042–1048. https://doi.org/10.1001/archpedi.154.10.1042.
Leech, N. L., & Onwuegbuzie, A. J. (2007). An array of qualitative data analysis tools: A call for data analysis triangulation. School Psychology Quarterly, 22(4), 557–584. https://doi.org/10.1037/1045-38126.96.36.1997.
Leonard Cheshire Disability. (2006). The UN convention on the rights of persons with disabilities. doi:https://doi.org/10.1057/palgrave.development.1100310.
Mack, N., Woodsong, C., McQueen, K., Guest, G., & Namey, E. (2005). Qualitative research methods: A data collector’s field guide. Durham: Family Health International.
Ministry of Education. (2004). Quality education for all young people: Challenges, trends priorities. National Report on the Development of Education in Trinidad and Tobago 2004. Republic of Trinidad and Tobago: Ministry of Education. http://www.ibe.unesco.org/International/ICE47/English/Natreps/reports/ttobago_scan.pdf.
Ministry of Social Development and Family Services (2017). MSDFS hosts public consultation on the revised draft national policy on persons with disabilities. Republic of Trinidad and Tobago: Ministry of Social Development and Family Services http://news.gov.tt/content/msdfs-hosts-public-consultation-revised-draft-national-policy-persons-disabilities#.WVGtDoWcHmI.
Ministry of the People and Social Development. (2005). National policy on persons with disabilities. Ministry of the People and Social Development: Republic of Trinidad and Tobago.
Mitra, S. (2018). Disability, health and human development. London: Palgrave Macmillan.
Mitra, S., Posarac, A., & Vick, B. (2013). Disability and poverty in developing countries: A multidimensional study. World Development, 41, 1–18. https://doi.org/10.1016/j.worlddev.2012.05.024.
Olsson, M. B., & Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45(6), 535–543. https://doi.org/10.1046/j.1365-2788.2001.00372.x.
Onwuegbuzie, A.J., & Leech, N.L. (2007). Sampling designs in qualitative research: Making the sampling process more public. The Qualitative Report 12(2), 238–254. https://nsuworks.nova.edu/tqr/vol12/iss2/7.
Parey, B. (2019) Understanding teachers’ attitudes towards the inclusion of children with disabilities in inclusive schools using mixed methods: The case of Trinidad. Teaching and Teacher Education, 83, 199–211. https://doi.org/10.1016/j.tate.2019.04.007.
Parey, B. (2020a). Accommodations for the inclusion of children with disabilities in regular schools in Trinidad: A mixed methods approach. International Journal of Inclusive Education. https://doi.org/10.1080/13603116.2019.1701719.
Parey, B. (2020b). Using Sen’s capability approach to assess wellbeing among working-age persons with disabilities in Trinidad. Social Indicators Research, 151(3), 1129–1148. https://doi.org/10.1007/s11205-020-02418-4.
Parish, S. L., & Cloud, J. M. (2006). Financial wellbeing of young children with disabilities and their families. Social Work, 51(3), 223–232. https://doi.org/10.1093/sw/51.3.223.
Raina, P., O’Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., et al. (2005). The health and wellbeing of caregivers of children with Cerebral Palsy. Pediatrics, 115(6), 626–636. https://doi.org/10.1542/peds.2004-1689.
Robeyns, I. (2003). Sen’s capability approach and gender inequality: Selecting relevant capabilities. Feminist Economics, 9, 61–92. https://doi.org/10.1080/1354570022000078024.
Robeyns. I. (2017). Wellbeing, freedom and social justice. The capability approach re-examined. Cambridge: Open Book Publishers.
Sen, A. (1993). Capability and well being. In M. Nussbaum & A. Sen (Eds.), The Quality of Life. Oxford: Clarendon Press.
Trani, J.-F., & Cannings, T. I. (2013). Child poverty in an emergency and conflict context: A multidimensional profile and an identification of the poorest children in Western Darfur”. World Development, 48, 48–70. https://doi.org/10.1016/j.worlddev.2013.03.005.
Tomlinson, S. (2001). Sociological perspectives on special and inclusive education. NASEN, 16(4), 191–192.
United Nations. (1990). Convention on the rights of the child. https://www.ohchr.org/Documents/ProfessionalInterest/crc.pdf.
United Nations. (2019). Disability and Development Report 2018. Realizing the Sustainable Development Goals by, for and with persons with disabilities. United Nations: New York.
Wooldridge, J. M. (2002). Econometric analysis of cross section and panel data. London, UK: The MIT Press.
Woolfson, L. (2010). Family well-being and disabled children: A psychosocial model of disability-related child behaviour problems. Health Psychology, 9(1), 1–13. https://doi.org/10.1348/135910704322778687.
The fieldwork for this research was partially funded by The School for Graduate Studies and Research at The University of the West Indies, St. Augustine, Trinidad and Tobago. Grant Number: CRP.5.APR17.62 – Fieldwork/Data Collection: Area of Research: “Disability and Poverty in Trinidad”.
Ethical approval for the research was granted by the Campus Ethics Committee of the University of West Indies. Ethical Approval Number: CEC 209/05/17-Disability and poverty in Trinidad.
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Parey, B. Parents’ Perspectives on Wellbeing among Children with Disabilities in Trinidad: Using Sen’s Capability Approach and Mixed Methods. Child Ind Res 14, 1635–1651 (2021). https://doi.org/10.1007/s12187-020-09801-0
- Children with disabilities
- Sen’s capability approach
- Mixed methods