Abstract
This study examined the effects of technology-assisted yoga on care burden, quality of life, and psychological well-being among caregivers of individuals with special needs. This study is designed pretest-posttest, follow-up, and control group randomized controlled trial. Data were collected from a sample of 60 caregivers of individuals with special needs. Data collection involved the use of a Socio-demographic Data Collection Form, the Caregiver Burden Scale, the Multidimensional Index of Life Quality, and the Warwick-Edinburgh Mental Well-Being Scale. Measurements were taken before the yoga intervention, as well as at the 3rd and 6th months during the intervention. Statistical analyses included the student’s t test, Mann-Whitney U test, chi-square test, repeated measures ANOVA, and Fisher LSD. SPSS 24.0 and STATISTICA software packages were utilized for data analysis. The effect size and post hoc power were assessed using G Power 3.1.9.6. Initial caregiver scores were found to be moderate. Significant differences were observed among the groups, over time, and in group*time comparisons for various sub-dimensions of the care burden scale, life quality scale, and mental well-being scale. The study yielded large effect sizes and a post hoc power of over .94 for all scales in the posttest and follow-up analyses. The findings indicate that a 6-month yoga program for caregivers of individuals with special needs reduced care burden and enhanced quality of life and psychological well-being.
Trial Registration: This study is registered at https://clinicaltrials.gov/ (registration number: NCT05218291).
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Data availability
The data that support the findings of this study are available from the corresponding author upon reasonable request.
References
Avis, N. E., Smith, K. W., Hambleton, R. K., Feldman, H. A., Selwyn, A., & Jacobs, A. (1996). Development of the multidimensional index of life quality. Medical Care, 34(11), 1102–1120. https://doi.org/10.1097/00005650-199611000-00005
Ban, M., Yue, X., Dou, P., & Zhang, P. (2021). The effects of yoga on patients with Parkinson’s disease: A meta-analysis of randomized controlled trials. Behavioural Neurology, 2021, 1–11. https://doi.org/10.1155/2021/5582488
Bernardi, M. L. D., Amorim, M. H. C., Salaroli, L. B., & Zandonade, E. (2020). Effects of hatha yoga on caregivers of children and adolescents with cancer: A randomized controlled trial. Escola Anna Nery, 24(1), 1–9. https://doi.org/10.1590/2177-9465-ean-2019-0133
Bernardi, M. L. D., Amorim, M. H. C., Salaroli, L. B., & Zandonade, E. (2022). The hatha-yoga intervention in the perception of caregivers of children and adolescents with cancer undergoing hospital treatment. Research, Society and Development, 11(7), e48211727534. https://doi.org/10.33448/rsd-v11i7.27534
Bhattacharyya, K. K., Andel, R., & Small, B. J. (2021). Effects of yoga-related mind-body therapies on cognitive function in older adults: A systematic review with meta-analysis. Archives of Gerontology and Geriatrics, 93(November 2020), 104319. https://doi.org/10.1016/j.archger.2020.104319
Bisht, S., Chawla, B., Tolahunase, M., Mishra, R., & Dada, R. (2019). Impact of yoga based lifestyle intervention on psychological stress and quality of life in the parents of children with retinoblastoma. Annals of Neurosciences, 26(2), 66–74. https://doi.org/10.5214/ans.0972.7531.260206
Brandt, M., Johannsen, L., Inhestern, L., & Bergelt, C. (2022). Parents as informal caregivers of children and adolescents with spinal muscular atrophy: A systematic review of quantitative and qualitative data on the psychosocial situation, caregiver burden, and family needs. Orphanet Journal of Rare Diseases, 17(1), 274. https://doi.org/10.1186/s13023-022-02407-5
Brinsley, J., Schuch, F., Lederman, O., Girard, D., Smout, M., Immink, M. A., Stubbs, B., Firth, J., Davison, K., & Rosenbaum, S. (2021). Effects of yoga on depressive symptoms in people with mental disorders: A systematic review and meta-analysis. British Journal of Sports Medicine, 55(17), 992–1000. https://doi.org/10.1136/bjsports-2019-101242
Burns, R. (2016). Psychosocial Well-being. In Encyclopedia of Geropsychology (pp. 1–8). Springer Singapore. https://doi.org/10.1007/978-981-287-080-3_251-1.
CDC (2018). Why is quality of life of important?. [Internet]. https://www.cdc.gov/hrqol/concept.htm. Accessed 29 Oct 2023.
CDC (2019). Caregiving for family and friends-A public health issue. https://www.cdc.gov/aging/caregiving/caregiver-brief.html. Accesed 29 Oct 2023.
Chaghazardi, M., Janatolmakan, M., Rezaeian, S., & Khatony, A. (2022). Care burden and associated factors in caregivers of children with cancer. Italian Journal of Pediatrics, 48(1), 92. https://doi.org/10.1186/s13052-022-01291-w
Chandler, M. J., Radford, M. G., Lucas, P., Locke, D. E. C., Crook, J., Ball, C., Caselli, M., Lunde, A., Phatak, V., & Smith, G. E. (2021). Yoga training impacts physical function 12 months post intervention for care partners of those with mild cognitive impairment. OBM Geriatrics, 5(1). https://doi.org/10.21926/obm.geriatr.2101147.
Chhugani, K. J., Metri, K., Babu, N., & Nagendra, H. R. (2018). Effects of integrated yoga intervention on psychopathologies and sleep quality among professional caregivers of older adults with Alzheimer’s disease: A controlled pilot study. Advances in Mind-Body Medicine, 32(3), 18–22.
Cil Akinci, A., & Pinar, R. (2014). Validity and reliability of Turkish caregiver burden scale among family caregivers of haemodialysis patients. Journal of Clinical Nursing, 23(3–4), 352–360. https://doi.org/10.1111/j.1365-2702.2012.04235.x
Csala, B., Ferentzi, E., Tihanyi, B. T., Drew, R., & Köteles, F. (2020). Verbal cuing is not the path to enlightenment. Psychological effects of a 10-session hatha yoga practice. Frontiers in Psychology, 11(July), 1–12. https://doi.org/10.3389/fpsyg.2020.01375
Danucalov, M. A. D., Kozasa, E. H., Ribas, K. T., Galduróz, J. C. F., Garcia, M. C., Verreschi, I. T. N., Oliveira, K. C., Romani de Oliveira, L., & Leite, J. R. (2013). A yoga and compassion meditation program reduces stress in familial caregivers of Alzheimer’s disease patients. Evidence-based Complementary and Alternative Medicine, 2013, 1–8. https://doi.org/10.1155/2013/513149
Danucalov, M. A. D., Kozasa, E. H., Afonso, R. F., Galduroz, J. C. F., & Leite, J. R. (2017). Yoga and compassion meditation program improve quality of life and self-compassion in family caregivers of Alzheimer’s disease patients: A randomized controlled trial. Geriatrics & Gerontology International, 17(1), 85–91. https://doi.org/10.1111/ggi.12675
Demir, Ş. (2012). Validity and reliability study of multidimensional quality of life index in patients with acute coronary syndrome [Akdeniz University]. https://toad.halileksi.net/olcek/cok-boyutlu-yasam-kalitesi-olcegi. Accessed 29 Oct 2023.
Donnelly, K. Z., Baker, K., Pierce, R., St. Ivany, A. R., Barr, P. J., & Bruce, M. L. (2021). A retrospective study on the acceptability, feasibility, and effectiveness of LoveYourBrain yoga for people with traumatic brain injury and caregivers. Disability and Rehabilitation, 43(12), 1764–1775. https://doi.org/10.1080/09638288.2019.1672109
Elmståhl, S., Malmberg, B., & Annerstedt, L. (1996). Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Archives of Physical Medicine and Rehabilitation, 77(2), 177–182. https://doi.org/10.1016/S0003-9993(96)90164-1
Evans, S., Tsao, J. C. I., Sternlieb, B., & Zeltzer, L. K. (2009). Using the biopsychosocial model to understand the health benefits of yoga. Journal of Complementary and Integrative Medicine, 6(1). https://doi.org/10.2202/1553-3840.1183
Gandhi, S., Palled, V. K., Sahu, M., Jagannathan, A., Khanna, M., & Jose, A. (2019). Effectiveness of caregivers’ yoga module on psychological distress and mental well-being among caregivers of patients admitted to neurological rehabilitation wards of a tertiary care institute, Bengaluru, Karnataka, India. Journal of Neurosciences in Rural Practice, 10(04), 657–665. https://doi.org/10.1055/s-0039-3399613
Hamrick, I., Mross, P., Christopher, N., & Smith, P. D. (2017). Yoga’s effect on falls in rural, older adults. Complementary Therapies in Medicine, 35(September), 57–63. https://doi.org/10.1016/j.ctim.2017.09.007
Hoshino, J., Tamakoshi, K., Hori, Y., & Sakakibara, H. (2022). Association between caregivers’ health-related quality of life and care recipients’ health outcomes. International Journal of Nursing Practice, November, 2020, 1–9. https://doi.org/10.1111/ijn.13044
IOA (Institute on Aging) (2023). Benefits of yoga. https://www.ioaging.org/caregiving/yoga-caregivers-poses-affirmations-refresh-empower/. Accessed 29 Oct 2023.
Keldal, G. (2015). Turkish version of the Warwick-Edinburgh mental well-being scale: A validity and reliability study. The Journal of Happiness & Well-Being, 3(1), 103–115. https://toad.halileksi.net/olcek/cok-boyutlu-yasam-kalitesi-olcegi. Accessed 29 Oct 2023.
Kerns, C. M., Lankenau, S., Shattuck, P. T., Robins, D. L., Newschaffer, C. J., & Berkowitz, S. J. (2022). Exploring potential sources of childhood trauma: A qualitative study with autistic adults and caregivers. Autism, 136236132110706. https://doi.org/10.1177/13623613211070637.
Ketcheson, L. R., Wengrovius, C. M., Staples, K. L., & Miodrag, N. (2022). MYTime: A mindfulness and yoga program to promote health outcomes in parents of children with autism Spectrum disorder. Global Advances in Health and Medicine, 11, 2–11. https://doi.org/10.1177/2164957X221110154
Keyes, C. L. M., Shmotkin, D., & Ryff, C. D. (2002). Optimizing well-being: The empirical encounter of two traditions. Journal of Personality and Social Psychology, 82(6), 1007–1022. https://doi.org/10.1037/0022-3514.82.6.1007
Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438–445. https://doi.org/10.1016/j.ijnss.2020.07.012
Milbury, K., Whisenant, M., Weathers, S.-P., Li, Y., Bruera, E., & Cohen, L. (2022). Dyadic vs individual supportive care delivery for family caregivers of primary brain tumor patients: Results of a 3-arm yoga pilot randomized controlled trial (RP420). Journal of Pain and Symptom Management, 63(6), 1094. https://doi.org/10.1016/j.jpainsymman.2022.04.061
Orsey, A. D., Park, C. L., Pulaski, R., Shankar, N. L., Popp, J. M., & Wakefield, D. (2017). Results of a pilot yoga intervention to improve pediatric Cancer patients’ quality of life and physical activity and parents’ well-being. Rehabilitation Oncology, 35(1), 15–23. https://doi.org/10.1097/01.REO.0000000000000052
Ovayolu, Ö., & Ovayolu, N. (2019). Evidences in yoga practices. Journal of Hacettepe University Faculty of Nursing, 6(1), 44–49. https://doi.org/10.31125/hunhemsire.544129
Özcan Yüce, U., & Taşcı, S. (2021). Effect of reiki on the stress level of caregivers of patients with cancer: Qualitative and single-blind randomized controlled trial. Complementary Therapies in Medicine, 58, 102708. https://doi.org/10.1016/j.ctim.2021.102708
Patel, A. D., Arya, A., Agarwal, V., Gupta, P. K., & Agarwal, M. (2022). Burden of care and quality of life in caregivers of children and adolescents with autism spectrum disorder. Asian Journal of Psychiatry, 70(January), 103030. https://doi.org/10.1016/j.ajp.2022.103030
Poorkhorshidi, N., Zohari Anboohi, S., Mohtashami, J., & Alavi Majd, H. (2022). Iranian family caregivers of autistic children: The experience of stigma. Advances in Autism, November. https://doi.org/10.1108/AIA-08-2021-0037
Rico-Blázquez, M., Quesada-Cubo, V., Polentinos-Castro, E., Sánchez-Ruano, R., Rayo-Gómez, M. Á., del Cura-González, I., Rico-Blázquez, M., Almena-Martín, R., Almodovar-López, Á., Alonso-Arcas, J., Álvarez-Navarro, E., Álvarez-Santos, H., Andrés-Alonso, B., Antolín-Díaz, V., Araujo-Calvo, M., Ayuso-Gil, E., Barbero-Macías, C. A., Bermejo-Mayoral, I., Berninches-Heredero, A., … Villares-Motino, E. (2022). Health-related quality of life in caregivers of community-dwelling individuals with disabilities or chronic conditions. A gender-differentiated analysis in a cross-sectional study. BMC Nursing, 21(1), 69. https://doi.org/10.1186/s12912-022-00845-x
Sakuma, Y., Sasaki-Otomaru, A., Ishida, S., Kanoya, Y., Arakawa, C., Mochizuki, Y., Seiishi, Y., & Sato, C. (2012). Effect of a home-based simple yoga program in child-care workers: A randomized controlled trial. The Journal of Alternative and Complementary Medicine, 18(8), 769–776. https://doi.org/10.1089/acm.2011.0080
T.R. Ministry of Family and Social Services (2023). Disabled and elderly statistics bulletin. https://www.aile.gov.tr/sss/engelli-ve-yasli-hizmetleri-genel-mudurlugu/egitim/. Accessed 29 Oct 2023.
Tennant, R., Hiller, L., Fishwick, R., Platt, S., Joseph, S., Weich, S., Parkinson, J., Secker, J., & Stewart-Brown, S. (2007). The Warwick-Edinburgh mental well-being scale (WEMWBS): Development and UK validation. Health and Quality of Life Outcomes, 5(1), 63. https://doi.org/10.1186/1477-7525-5-63
Tong, J., Qi, X., He, Z., Chen, S., Pedersen, S. J., Cooley, P. D., Spencer-Rodgers, J., He, S., & Zhu, X. (2021). The immediate and durable effects of yoga and physical fitness exercises on stress. Journal of American College Health, 69(6), 675–683. https://doi.org/10.1080/07448481.2019.1705840
Walter, A. A., Van Puymbroeck, M., Hawkins, B. L., Woschkolup, K., Urrea-Mendoza, E., Revilla, F. J., & Schmid, A. A. (2018). Perceived benefits for informal caregivers after an 8-week yoga intervention for people with Parkinson’s disease. American Journal of Recreation Therapy, 16(4), 23. https://doi.org/10.5055/ajrt.2017.0144
WHO (2018). Disability and health. https://www.who.int/news-room/fact-sheets/detail/disability-and-health. Accessed 29 Oct 2023.
WHO (2020). WHOQOL: Measuring quality of life introducing the WHOQOL instruments. https://www.who.int/healthinfo/survey/whoqol-qualityoflife/en/. Accessed 29 Oct 2023.
Yeun, Y.-R., & Kim, S.-D. (2021). Effects of yoga on immune function: A systematic review of randomized controlled trials. Complementary Therapies in Clinical Practice, 44(February), 101446. https://doi.org/10.1016/j.ctcp.2021.101446
Acknowledgements
We gratefully would like to thank all the caregivers participating in the research.
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TO; Conceptualization; intervention and study monitoring; manuscript writing and final approval. GK; Conceptualization; Supervision; review & editing; final approval.
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Written permission was obtained for the scales used in the study. Ethics committee approval was obtained from the Non-Interventional Research Ethics Committee of Dokuz Eylul University (decision number: 2021/32–03). Institutional permission was obtained from the Provincial Directorate of National Education. Informed Consent was obtained from the caregivers who accepted to participate in the study.
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Özdemir, T., Karadağ, G. The effect of yoga on care burden, quality of life and psychological well being of caregivers individuals with special needs: a randomized controlled trial. Curr Psychol 43, 15243–15254 (2024). https://doi.org/10.1007/s12144-023-05481-5
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DOI: https://doi.org/10.1007/s12144-023-05481-5