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Behavioral Problems, Quality of Life and Caregiver Burden in Children with Idiopathic Nephrotic Syndrome: Improving Outcomes by Pragmatic Interventions in a Resource-Poor Setting

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Abstract

A cross-sectional questionnaire-based study was conducted on 38 children with idiopathic nephrotic syndrome. The prevalence and pattern of behavioral abnormalities was studied. Except in the conduct domain, the prevalence of behavioral problems was comparable with controls. Severe complications of disease and adverse drug effects were significantly associated with abnormal behavior. The Quality of life (QOL) of these children and their caregivers was assessed. It appeared to be unaffected by illness. Additional findings were high maternal literacy, no disruption of schooling, regular follow-up and good adherence to treatment. Behavioral problems in childhood nephrotic syndrome can be minimized by regular follow-up and supportive interventions to reduce caregiver burden. Such children and their caregivers can do well in terms of QOL, even in a resource-poor setting, with appropriate psycho-social support.

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Authors and Affiliations

  1. Department of Pediatrics, Government Medical College, Thrissur, Kerala, India

    Janaki Menon, Nithya Thuruthiyath & Anugraha Kannankulangara

  2. Department of Community Medicine, Karuna Medical College, Palakkad, Kerala, India

    Rohini Kolady

Authors
  1. Janaki Menon
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  2. Nithya Thuruthiyath
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  3. Anugraha Kannankulangara
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  4. Rohini Kolady
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Contributions

JM was involved with concept and design of the study, clinical management and follow-up of patients, data collection, and drafting and revising the manuscript. NT was involved with concept and design of the study, clinical management of the cases, data collection and critical revision of the manuscript. AKS was involved with data collection and revision of the manuscript. RK was involved with data analysis and review of the manuscript. JM will act as guarantor for this paper.

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Correspondence to Janaki Menon.

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Source of Funding

State Board of Medical Research, Govt of Kerala.

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Menon, J., Thuruthiyath, N., Kannankulangara, A. et al. Behavioral Problems, Quality of Life and Caregiver Burden in Children with Idiopathic Nephrotic Syndrome: Improving Outcomes by Pragmatic Interventions in a Resource-Poor Setting. Indian J Pediatr 88, 476–478 (2021). https://doi.org/10.1007/s12098-020-03494-7

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  • DOI: https://doi.org/10.1007/s12098-020-03494-7

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