Neuroinformatics

, Volume 10, Issue 4, pp 331–339

Sharing Heterogeneous Data: The National Database for Autism Research

  • Dan Hall
  • Michael F. Huerta
  • Matthew J. McAuliffe
  • Gregory K. Farber
Review

DOI: 10.1007/s12021-012-9151-4

Cite this article as:
Hall, D., Huerta, M.F., McAuliffe, M.J. et al. Neuroinform (2012) 10: 331. doi:10.1007/s12021-012-9151-4

Abstract

The National Database for Autism Research (NDAR) is a secure research data repository designed to promote scientific data sharing and collaboration among autism spectrum disorder investigators. The goal of the project is to accelerate scientific discovery through data sharing, data harmonization, and the reporting of research results. Data from over 25,000 research participants are available to qualified investigators through the NDAR portal. Summary information about the available data is available to everyone through that portal.

Keywords

Autism Database Common data elements Unique subject identifier Data federation Data repository 

Copyright information

© Springer Science+Business Media, LLC (outside the USA) 2012

Authors and Affiliations

  • Dan Hall
    • 1
  • Michael F. Huerta
    • 2
  • Matthew J. McAuliffe
    • 3
  • Gregory K. Farber
    • 4
  1. 1.OMNITEC Solutions, Inc.RockvilleUSA
  2. 2.Office of Health Information Programs DevelopmentNational Library of MedicineBethesdaUSA
  3. 3.Center for Information TechnologyNational Institute of HealthBethesdaUSA
  4. 4.Office of Technology Development and CoordinationNational Institute of Mental Health, National Institutes of HealthRockvilleUSA

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