Sharing Heterogeneous Data: The National Database for Autism Research
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The National Database for Autism Research (NDAR) is a secure research data repository designed to promote scientific data sharing and collaboration among autism spectrum disorder investigators. The goal of the project is to accelerate scientific discovery through data sharing, data harmonization, and the reporting of research results. Data from over 25,000 research participants are available to qualified investigators through the NDAR portal. Summary information about the available data is available to everyone through that portal.
KeywordsAutism Database Common data elements Unique subject identifier Data federation Data repository
- Cox, R. W., Ashburner, J., et al. (2004). A (Sort of) new image data format standard: NifTI-1. Abstrace, 10th Annual Meeting of the Organization for Human Brain Mapping, June 13–17, Budapest, Hungary.Google Scholar
- McAuliffe, M. J., Lalonde, F. M., et al. (2001). Medical image processing, analysis & visualization in clinical research. 14th IEEE Symposium on Computer-Based Medical Systems (CBMS), 381–386.Google Scholar
- Sansone, S. M., Widaman, K. F., et al. (2011). Psychometric study of the aberrant behavior checklist in fragile X syndrome and implications for targeted treatment. Journal of Autism and Developmental Disorders. doi:10.1007/s10803-011-1370-2.