International Diabetes Federation (IDF). Global guideline for managing older people with type 2 diabetes. Brussels: IDF; 2013.
Mc Ewen L. More death certificates cite diabetes as underlying cause of death. Diabetes Care. 2011;34:1529–33.
IDF. IDF diabetes atlas. 7th ed. Brussels: IDF; 2015.
National Health and Medical Research Council (NHMRC). An ethical framework for integrating palliative care principles into the management of advanced chronic or terminal conditions, National Health and Medical Research Council, 2011. Discusses some of the ethical issues involved when implementing palliative care for people with severe and terminal chronic diseases.
Worldwide Palliative Care Alliance (WPCA)/World health Organisation (WHO). 2014. www.THEWPCA.org.
Sinclair A, Gadsby R, Penfold S, Croxon S, Bayer A. Prevalence of diabetes in care home residents. Diabetes Care. 2001;24(6):1066–58.
Lynn J, Adamson D, Rand Corporation. Living well at the end of life adapting health care to serious chronic illness in old age. Santa Monica: RAND, CA; 2003. http://www.rand.org/publications/WP/WP137//. Accessed March 2016. Discusses general disease trajectories.
Agency for Healthcare Research and Quality. 2014. http://www.ahrq.gov/research/findings/factsheets/aging/enlifeia/index/html. Accessed Feb 2016.
Buckley T, Sunari D, Marshall A, et al. Physiological correlates of bereavement and the impact of bereavement interventions. Dialogues Clin Neurosci. 2012;14(92):129–39.
Shammas M. Telomeres, lifestyle, cancer and aging. Curr Opin Clin Nutr Metab Care. 2011;14(1):26–34.
Weissman D. Decision making at a time of crisis near the end of life. J Am Med Assoc. 2016;282(14):1738–43.
Bailey A, Harman S, Bruera E, Arnold R, Savarese D. Palliative care; the last hours and days of life, 2016. Wolters Kluwer UpToDate www.uptodate.com. Accessed June 2016. Comprehensive discussion about terminal care with a paragraph about diabetes in the terminal stage.
Clegg A, Bates C, Young J, et al. Development and validation of an electronic frailty index using routine primary care electronic health record data. Age Ageing. 2016;45:353–60.
Hogan D, MacKnight C, Bergman H. Models, definitions and criteria of frailty. Aging Clin Exp Res. 2003;15 Suppl 1:1–29.
Rockwood K, Song X, Bergman H, Hogan D, McDowell I, Mintski A. A global clinical measure of fitness and frailty in elderly people. CAMJ. 2006;17(3):489–96.
Stirling C, McInerney F, Andrews S, et al. A tool kit to aid talking about dementia and dying—development and evaluation. Collegian. 2013;21:337–43.
National Health Service (NHS) England (2015) Personalised care and support planning handbook. https://www.england.nhs.uk/wp-content/uploads/2015/01/pers-care-guid-core-guid.pdf. Accessed Feb 2016.
Leadership Alliance for the Care of Dying People. One chance to get it right. London: LACDP; 2014.
Emanuel L, Alexander C, Arnold R, et al. Integrating palliative care into disease management guidelines. J Palliat Med. 2004;7:74–83.
Worldwide Palliative Care Alliance and World Health Organisation. Global atlas of palliative care at the end of life, 2014 www.THEWPCA.org. Accessed March 2016. Leading proponent of palliative care with important care information and strategies.
Dunning T. Integrating palliative care with usual care of diabetic foot wounds. Diabetes Metab Res Rev. 2016. doi:10.1002/dmrr.2758. Suggest some strategies for combining usual diabetes foot care with a palliative approach to care.
Gold Standards Framework Centre 2011. Prognostic indicator guidance, 2011. http://www.goldstandardsframework.org.uk/cd-content/uploads/files/General%20Files/Prognostic%20Indicator%20Guidance%20October%202011.pdf. Discusses some prognostic indicators that the individual with chronic disease is deteriorating but does not include diabetes.
Munshi M, Hermes F, Huang E, et al. Management of diabetes in long-term care and skilled nursing facilities: a position statement of the American Diabetes Association. Diabetes Care. 2016;39(2):308–18. doi:10.2337/dc15-2512.
Rowles S, Kilvert A, Sinclair A, on behalf of the Association of British Clinical Diabetologists. ABCD position statement on diabetes and end of life care. Pract Diabetes Int. 2011;28(1):26–7.
Dunning T, Martin P, Savage S, Duggan N. Guidelines for managing diabetes at the end of life, 2010. http://www.adma.org.au/clearinghouse/doc_details/35-guidelines-for-managing-diabetes-at-the-end-of-life.html. Innovative first guideline to describe diabetes management at the end of life.
Ganna IE. 5-year mortality predictors in 498,103 participants: a prospective population-based study. Lancet. 2015;386(9993):533–40. doi:10.1016/S0140-6736(15)60175-1.
UK Biobank Longevity Explorer http://www.ubble.co.uk. Accessed June 2016.
Reymond L. End of life care: proactive clinical management of older Australians. Aust Fam Physician. 2016;45(1–2):76–8.
National Prescribing Service Ltd/Palliative Care Australia. Achieving quality use of medicines in the community for palliative and end of life care: a consultation report. Sydney: National Prescribing Service; 2009.
Cox-North P, Doorenbo A, Shannon S, Scott J, Curtis J. The transition to end-of-life care in end-stage liver disease. J Hosp Palliat Nurs. 2013;15(4):209–15.
Claessen S, Francke A, Engels Y, Deliens L. How do GPs identify a need for palliative care in their patients? An interview study. BMC Family Pract. 2013;14:42.
Sommerfield A, Deary I, Frie B. Acute hyperglycemia alters mood state and impairs cognitive performance in people with type 2 diabetes. Diabetes Care. 2004;27(10):2335–40.
Feinkohl I, Keller P, Aung M, et al. Severe hypoglycemia and cognitive decline in older people with type 2 diabetes: the Edinburgh type 2 diabetes study. Diabetes Care. 2014;37(2):507–15.
Swerissen H, Duckett S. Dying Well. Grattan Institute, 2014. ISBN: 1-925015-61-4.
Quinn K, Hudson P, Dunning T. Diabetes management in patients receiving palliative care. J Pain Symptom Manag. 2006;32(3):275–86.
Savage S, Duggan N, Dunning T, Martin P. The experiences and care preferences of people with diabetes at the end of life: a qualitative study. J Hosp Palliat Nurs. 2012;14(4):293–302. doi:10.1097/NJH.0b013e31824bdb39.
Temel J. When more is not better: how to integrate goals of care in conversations about stopping chemotherapy. Program and Abstracts of the 2015 American Society of Clinical Oncology Annual Meeting, May 29 June, Chicago, Illinois, 2015.
Holloway K, Toye C, McConlgley R, Tieman J, Currow D, Hegarty M. National consultation informing development of guidelines for a palliative approach for aged care community settings. Aus J Ageing. 2012;34(1):21–6.
Majesko A. Palliative care: more than a natural talent and good communication. Society of Critical Care Medicine, 2012 www.sccm.org/…/Palliative-Care---More-Than-Natural-Talent-and-Good-Communication.aspx. Accessed June 2016.
Diabetes UK, End of life diabetes care. A strategy document, Diabetes UK, 2012. One of the first publications to address diabetes and end of life care.
Advisory Board Company. Realising the full benefit of palliative care advisory, 2013.com/pec/pctoolkit https://www.advisory.com/research/physician-executive-council/studies/2013/realizing-the-full-benefit-of-palliative-care. Accessed Feb 2016. Suggests useful information to guide conversations and decisions about palliative care.
The Strengthening Palliative Care: Policy and Strategic Directions 2012–2022. Victorian Health Priorities Framework 2012–2022: Metropolitan Health Plan. Victorian Government 2014. Advance Care Planning http//:www.health.vic.gov.au/acp/training.htm. Accessed Dec 2015.
Care search smart phone apps, https://www.caresearch.com.au/caresearch/tabid/3224/Default.aspx. Accessed May 2016.
Death Over Dinner. deathoverdinner.org.au. Accessed June 2016.
Payne T. The Ancient art of growing old. London: Vintage Classics, Random House; 2013.
Palliative Care Outcomes Collaboration (PCOC). PCOC clinical manual, 2014, http://ahsri.uow.edu.au/content/groups/public/@web/@chsd/@pcoc/documents/doc/uow129133.pdf#page=23.
Lamont E, Chrisakis N. Prognostication in advanced disease. In: Berger A, Portenoy H, Weissman D, editors. Principles and practice of palliative care and supportive oncology. Philadelphia: Lippincott Williams & Wilkins; 2002. p. 607–14.
Roter D, Hall A, Aoki Y. Physician gender effects in medical communication: a meta-analytic review. J Am Med Assoc. 2002;288:756–64.
Karppinen H, Laakkonen M-L, Strandberg T, Tivis R, Pikaia K. Will-to-live and survival in 10-year follow-up among older people. Age Ageing. 2012;41(6):789–94.
Cardoso-Cruz H, Lima D, Galhardo V. Impaired spatial memory performance in a rat model of neuropathic pain is associated with reduced hippocampal-prefrontal cortex connectivity. J Neurosci. 2012;33(6):2465–80.
Shi Q, Liu S, Fonseca V, Shi L. The effect of metformin exposure on neurodegenerative disease among elder adult veterans with diabetes mellitus, American Diabetes Association 2016 scientific sessions, June 11, 2016, New Orleans, Louisiana, 2016. Abstract 72-OR/72. Accessed June 2016.
Chua W-L, Liaw S-L. Assessing beyond vital signs to detect early patient deterioration. Evid Based Nurs. 2016;19(2):53.
Stewart F, Goddard C, Schiff R, Hall S. Advanced Care planning in care homes for older people: a qualitative study of the views of care staff and families. Age Ageing. 2011;40:230–5.