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Perceptions d’enfants et d’adultes sur le bien-être après une tumeur cérébrale pédiatrique

Well-being after paediatric brain tumour: perceptions of child and adult survivors

  • Article Original / Original Article
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Psycho-Oncologie

Résumé

L’objectif était d’établir les perceptions qu’ont de leur bien-être des enfants et des adultes guéris d’une tumeur cérébrale pédiatrique. L’analyse de contenu d’entrevues de 49 survivants révèle leurs critères d’évaluation du bien-être, leurs conduites pour y contribuer et la présence de bénéfices liés à leur expérience. Des différences de perceptions selon l’âge sont expliquées par les défis rencontrés et lamaturité cognitive des adultes. Il importe d’en tenir compte dans les interventions pour favoriser le bien-être à long terme de ces patients.

Abstract

The aim of this study was to determine how child and adult survivors of paediatric brain tumours perceive their well-being. Content analysis of interviews with 49 participants revealed their criteria of well-being, what contributes to it, the way they behave to feel well, and some perceived benefits from the cancer experience. Cognitive maturity and challenges in the life cycle may explain the differences in perceptions observed between children and adults. These should be taken into account in interventions to promote the long-term well-being of these patients.

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Références

  1. Comité directeur de la Société canadienne du cancer (2011) Statistiques canadiennes sur le cancer 2011. Toronto

    Google Scholar 

  2. INCa (Institut national du cancer) (2014) Plan cancer 2014–2019, France

    Google Scholar 

  3. Goldman S, Turner C (2009) Late effects of treatment for brain tumors. Springer, New York, NY

    Book  Google Scholar 

  4. Trocmé N, Vaudre G, Landman-Parker J, et al (2006) Impact d’une leucémie aiguë lymphoblastique (LAL) survenue dans l’enfance sur des adolescents aujourd’hui guéris. Rev Fr Psycho- Oncol 3:170–5

    Article  Google Scholar 

  5. Bradley Eilertsen ME, Jozefiak T, Rannestad T, et al (2012) Quality of life in children and adolescents surviving cancer. Eur J Oncol Nurs 16:185–93

    Article  PubMed  Google Scholar 

  6. Zebrack BJ, Gurney JG, Oeffinger K, et al (2004) Psychological outcomes in long-term survivors of childhood brain cancer: a report from the Childhood Cancer Survivor Study. J Clin Oncol 22:999–1006

    Article  PubMed  Google Scholar 

  7. Brière ME, Scott JG, McNall-Knapp RY, Adams RL (2008) Cognitive outcome in pediatric brain tumor survivors: delayed attention deficit at long-term follow-up. Pediatr Blood Cancer 50:337–40. doi:10.1002/pbc.21223

    Article  PubMed  Google Scholar 

  8. Frange P, Alapetite C, Gaboriaud G, et al (2009) From childhood to adulthood: long-term outcome of medulloblastoma patients. The Institut Curie experience (1980–2000). J Neuro-Oncol 95:271–9. doi:10.1007/s11060-009-9927-z

    Article  Google Scholar 

  9. Klassen A, Anthony S, Khan A, et al (2011) Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review. Support Care Cancer 19:1275–87

    Article  PubMed  Google Scholar 

  10. Cowen EL (1994) The enhancement of psychological wellness: challenges and opportunities. Am J Community Psychol 22:149–79. doi:10.1007/BF02506861

    Article  PubMed  Google Scholar 

  11. Huppert FA (2009) Psychological well-being: evidence regarding its causes and consequences. Appl Psychol Health Well Being 1:137–64. doi:10.1111/j.1758-0854.2009.01008.x

    Article  Google Scholar 

  12. Aked J, Marks N, Cordon C, Thompson S (2008) Five ways to well-being: the evidence (Government Office for Science Ed.). Centre for well-being, NEF (the New Economics Foundation), London

    Google Scholar 

  13. Barakat LP, Alderfer MA, Kazak AE (2006) Posttraumatic growth in adolescent survivors of cancer and their mothers and fathers. J Pediatr Psychol 31:413–9

    Article  PubMed  Google Scholar 

  14. Parry C, Chesler MA (2005) Thematic evidence of psychosocial thriving in childhood cancer survivors. Qual Health Res 15:1055–73

    Article  PubMed  Google Scholar 

  15. Jutras S (2012) Les bénéfices associés à l’expérience du cancer pédiatrique. Le point de vue d’enfants, d’adultes guéris et de parents. Cah Intern Psychol Soc 93:159–80

    Google Scholar 

  16. Boydell KM, Stasiulis E, Greenberg M, et al (2008) I’ll show them: the social construction of (in)competence in survivors of childhood brain tumors. J Pediatr Oncol Nurs 25:164–74

    Article  PubMed  Google Scholar 

  17. Abrams AN, Hazen EP, Penson RT (2007) Psychosocial issues in adolescents with cancer. Cancer Treat Rev 33:622–30

    Article  PubMed  Google Scholar 

  18. Chaves C, Vazquez C, Hervas G (2013) Benefit finding and wellbeing in children with life threatening illnesses: an integrative study. Terapia psicologica 31:59–68

    Article  Google Scholar 

  19. Currier JM, Hermes S, Phipps S (2009) Brief report: children’s response to serious illness: perceptions of benefit and burden in a pediatric cancer population. J Pediatr Psychol 34:1129–34

    Article  PubMed  PubMed Central  Google Scholar 

  20. Bowling A (1995) What things are important in people’s lives? A survey of the public’s judgements to inform scales of health related quality of life. Soc Sci Med 41:1447–62

    Article  PubMed  Google Scholar 

  21. Counterpoint Research (2008) Childhood wellbeing: qualitative research study research report DCSF-RWO31

    Google Scholar 

  22. Fattore T, Mason J, Watson E (2007) Children’s conceptualisation(s) of their well-being. Soc Indic Res 80:5–29

    Article  Google Scholar 

  23. Ryff CD (1989) In the eye of the beholder: views of psychological well-being among middle-aged and older adults. Psychol Aging 4:195

    Article  PubMed  Google Scholar 

  24. Sastre MTM (1999) Lay conceptions of well-being and rules used in well-being judgments among young, middle-aged, and elderly adults. Soc Indic Res 47:203–31

    Article  Google Scholar 

  25. Chiasson N, Dubé L, Blondin JP (1996) Happiness: a look into the folk psychology of four cultural groups. J Cross Cult Psychol 27:673–91

    Article  Google Scholar 

  26. Egan K, Harcourt D, Rumsey N, Collaboration AR (2011) A qualitative study of the experiences of people who identify themselves as having adjusted positively to a visible difference. J Health Psychol 16:739–49. doi:10.1177/1359105310 390246

    Article  PubMed  Google Scholar 

  27. Gray C, Hunt K, Lorimer K, et al (2011) Words matter: a qualitative investigation of which weight status terms are acceptable and motivate weight loss when used by health professionals. BMC Public Health 11:513

    Article  PubMed  PubMed Central  Google Scholar 

  28. Brunet J, Love C, Ramphal R, Sabiston CM (2014) Stress and physical activity in young adults treated for cancer: the moderating role of social support. Support Care Cancer 22:689–95

    Article  PubMed  Google Scholar 

  29. Eiser C (2007) Beyond survival: quality of life and follow-up after childhood cancer. J Pediatr Psychol 32:1140–50. doi:10.1093/jpepsy/jsm052

    Article  PubMed  Google Scholar 

  30. Ford JS, Ostroff JS (2006) Health behaviors of childhood cancer survivors: what we’ve learned. J Clin Psychol Med Settings 13:144–60

    Article  Google Scholar 

  31. Bardin L (2001) L’analyse de contenu (10e éd.). Presses universitaires de France, Paris (document original paru en 1977)

    Google Scholar 

  32. L’Écuyer R (1990) Méthodologie de l’analyse développementale de contenu. Méthode GPS et concept de soi. Presses de l’université du Québec, Sillery, Canada

    Google Scholar 

  33. Peterson C, Seligman MEP (2004) Character strengths and virtues: a handbook and classification. American Psychological Association, Washington, DC

    Google Scholar 

  34. Dupont A, Antoine P, Reich M, Bève C (2007) Qualité de vie et sexualité des femmes atteintes d’un cancer du sein: impact de la chirurgie et de l’hormonothérapie. Psycho-Oncologie 1:174–8

    Article  Google Scholar 

  35. Schumm WR, Pratt KK, Hartenstein JL, et al (2013) Determining statistical significance (alpha) and reporting statistical trends: controversies, issues, and facts. Compr Psychol 2:1–6

    Article  Google Scholar 

  36. Cohen J (1992) A power primer. Psychol Bull 112:155–9

    Article  PubMed  Google Scholar 

  37. Hefferon K, Grealy M, Mutrie N (2009) Post-traumatic growth and life threatening physical illness: a systematic review of the qualitative literature. Br J Health Psychol 14:343–78

    Article  PubMed  Google Scholar 

  38. Tedeschi RG, Calhoun LG (1996) The posttraumatic growth inventory: measuring the positive legacy of trauma. J Trauma Stress 9:455–71

    Article  PubMed  Google Scholar 

  39. Calhoun LG, Tedeschi RG (1998) Beyond recovery from trauma: implications for clinical practice and research. J Soc Issues 54:357–71

    Article  Google Scholar 

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Authors and Affiliations

  1. Département de psychologie., Université du Québec à Montréal C.P. 8888, Succursale Centre-Ville., Montréal, Québec, Canada, H3C 3P8

    C. Lanoue & S. Jutras

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  1. C. Lanoue
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  2. S. Jutras
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Correspondence to C. Lanoue.

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Lanoue, C., Jutras, S. Perceptions d’enfants et d’adultes sur le bien-être après une tumeur cérébrale pédiatrique. Psycho Oncologie 11, 97–103 (2017). https://doi.org/10.1007/s11839-017-0626-2

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  • DOI: https://doi.org/10.1007/s11839-017-0626-2

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