Résumé
Cette étude a pour objectif l’examen de l’impact de l’identité sexuée sur la participation aux soins de support dans le contexte de la maladie cancéreuse. Deux analyses différentes ont été conduites dans le contexte d’un service d’oncologie médicale. Premièrement, nous avons examiné quantitativement la participation à différents soins de support (psycho-oncologie et interventions d’une infirmière clinicienne) pendant deux mois. Deuxièmement, nous avons réalisé 25 entretiens autour de l’expérience du soin avec des patients du service. L’analyse des activités de soin montre une participation plus importante des patientes. Le nombre d’interventions et leur durée moyenne sont significativement plus importants pour ces dernières. En outre, les patientes prennent plus fréquemment l’initiative de recourir à ces soins que les patients. Les données d’entretiens montrent différentes conceptions de la participation au soin. Des conceptions associées à la virilité et à une identité collective sont employées par les hommes pour expliquer leurs choix et besoins. Deux modèles de participation émergent des discours: un modèle de «mise à contribution» (plus fréquent chez les femmes) et un modèle de «mise à disposition» (plus fréquent chez les hommes). Ces résultats confirment une association entre dimensions sociales de l’identité et expérience de la maladie et du soin. Ce type d’analyse constitue un facteur clé pour comprendre les modèles de participation dans le contexte du soin psychosocial en oncologie.
Abstract
This study examines the impact of sexual identity on the participation of cancer patients in supportive care. Two different analyses were conducted within the context of an oncology department. First, we quantitatively examined the modalities of participation in different supportive care environments (psycho-oncologist and specialised nurse interventions) over a period of two months. Second, we conducted 25 interviews of patients of the oncology department on their care experiences. Analyses of the supportive care activities demonstrate a greater participation of female patients. The length and average number of interventions are significantly higher in this group. In addition, female patients initiate this kind of care more often than men. Interview data indicates different concepts of supportive care participation. Men use a number of concepts of virility and collective identity to explain their choices and needs. Two models of participation emerge from discussions: a contribution model (more frequent in women) and a disposal model (more frequent in men). These findings provide evidence of an association between the social dimensions of identity and experience of illness and care. This kind of analysis constitutes a key factor in understanding models of participation in the context of supportive care in oncology.
Références
Addis ME, Mahalik JR (2003) Men, Masculinity, and the context of kelp seeking. Am Psychol 58: 5–14
Aitken-Swan J, Easson EC (1959) Reactions of cancer patients on being told their diagnosis. BMJ 1: 779–783
Aliaga C (2002) Les femmes plus attentives à leur santé que les hommes. INSEE Première, 869
Baider L, Koch U, Esacson R, Kalan De-Nour A (1998) Prospective study of cancer patients and their spouses: the weakness of marital strengh. Psychooncology 7: 49–56
Bardin L (1977) L’analyse de contenu. Presses universitaires de France, Paris
Bataille P (2003) Un cancer et la vie. Balland, Paris
Blois S, Dany L, Roussel P, Morin M (2006) Croyances relatives à la douleur: rôle dans le rapport aux soins et l’ajustement chez des patients douloureux chroniques. Douleurs 7(5): 262–269
Bray F, Atkin W (2004) International cancer patterns in men: geographical and temporal variations in cancer risk and the role of gender. J Mens Health Gend 1(1): 38–46
Chochinov HM, Tataryn DJ, Wilson KG, et al. (2000) Prognostic awareness and the terminally ill. Psychosomatics 41: 500–504
Connell RW (1999) Men’s health: A research agenda and background report. Commonwealth Department of Health and Aged Care, Canberra
Courtenay WH (2000) Constructions of masculinity and their influence on men’s well-being: a theory of gender and health. Soc Sci Med 50: 1385–1401
Coustou B (2000) Violences physiques et prises de risques. Baromètre Santé: premiers résultats 2000. CFES, Vanves
Cunningham-Burley S, Allbutt H, Garraway WM, et al. (1996) Perceptions of urinary symptoms and health-care-seeking behaviour amongst men aged 40–79 years. Br J Gen Pract 46: 349–352
Deans G, Bennett-Emslie GB, Weir J, Smith DC, et al. (1988) Cancer support groups-Who joins and why? Br J Cancer 58: 670–674
Fife BL, Kennedy VN, Robinson L (1994) Gender and adjustment to cancer: clinical implications. J Psychosoc Oncol 12: 1–20
Folstad I, Karter AJ (1992) Parasites, bright males, and the immunocompetence handicap. Am Nat 139: 603–622
Franks P, Bertakis K (2003) Physician gender, patient gender, and primary care. J Womens Health 12(1): 73–80
George A, Fleming P (2004) Factors affecting men’s hel-seeking in the early detection of prostate cancer: implications for health promotion. J Mens Health Gend 1(4): 345–352
Gerschick TJ, Miller AS (1995) Coming to terms. masculinity and physical disability. In: Sabo D, Gordon DF (eds) Men’s health and illness. Sage, Thousand Oaks, pp. 183–204
Gilbar O (1999) Gender as a predictor of burden and psychological distress of elderly husbands and wives of cancer patients. Psychooncology 8: 287–294
Gisjbers van Wijk CMT, Vliet van KP, Kolk KP, et al. (1991) Symptom sensitivity and sex differences in physical morbidity: a review of health surveys in the United States and the Netherlands. Women Health 17: 91–124
Good GE, Sherrod NB (2004) The psychology of men and masculinity: research status and future directions. In: Unger RK (ed) Handbook of the psychology of women and gender. Wiley, New York, pp. 201–214
Green C, Pope CR (1999) Gender, psychosocial factors and the use of medical services: a longitudinal analysis. Soc Sci Med 48: 1363–1372
Greimel ER, Padilla GV, Grant MM (1989) Gender differences in outcomes among patients with cancer. Psychooncology 7: 197–206
Guilbert P, Baudier F, Gautier A (2001) Baromètre santé 2000. CFES, Paris
Guilbert P, Gautier A (2006) Baromètre santé 2005. INPES, Saint-Denis
Hazzard W (1990) The sex differential in longevity. In: Hazzard W, Endres R, Bierman E, Blass J (eds) Principles of Geriatric Medicine and Gerontology. McGraw Hill, New York, pp. 37–47
Hill C, Doyon F (2004) La fréquence des cancers en France: quoi de neuf depuis l’année dernière? Bull Cancer 91(1): 9–14
Kraemer S (2000) The fragile male. BMJ 321: 1609–1612
Krizek C, Roberts C, Ragan R, et al. (1999) Gender and cancer support group participation. Cancer Pract 7: 86–92
Lazarus RS, Folkman, S (1984) Stress, Appraisal, and Coping. Springer, New York
Le Feuvre N (2003) Le «genre» comme outil d’analyse sociologique. In: Fougeyrollas-Schwebel D, Planté C, Riot-Sarcey M, Zaidman C (eds) Le genre comme catégorie d’analyse. L’Harmattan, Paris, pp. 39–52
Leigh H, Unegerer J, Percarpio B (1980) Denial and helplessness in cancer patients undergoing radiation therapy: sex differences and applications for prognostic. Cancer 45: 3086–3089
Mathieu NC (1973) Homme culture et femme nature. L’Homme 13(3): 101–113
Micheli A, Mariotto A, Rossi AG, et al. (1998) The prognostic role of gender in survival of adult cancer patients: Eurocare Working Group. Eur J Cancer 34: 2271–2278
Möller-Leimkühler AM (2002) Barriers to help seeking by men: a review of sociocultural and clinical literature with particular reference to depression. J Affect Disord 71: 1–9
Moynihan C (1998) Theories of masculinity. BMJ 317: 102–175
Moynihan C, Bliss J, Davidson J, et al. (1998) Evaluation of adjuvant psychosocial therapy in patients with testicular cancer: randomised controlled trial. BMJ 316: 429–435
Nathanson C (1977) Sex roles as variables in preventive health behaviour. J Community Health 3: 142–155
Parkin D, Bray F, Devesa S (2001) Cancer burden in the year 2000. The global picture. Eur J Cancer 37: 4–66.
Pleck JH, Sonenstein FL, Ku LC (1994) Attitudes toward male roles among adolescent males: a discriminant validity analysis. Sex Roles 30: 481–501
Pollard TM, Hyatt SB (1999) Sex, Gender and Health. Cambridge University Press, Cambridge
Potts MK, Burnam MA, Wells KB (1991) Gender differences in depression detection: a comparison of clinician diagnosis and standardised assessment. Psychol Assess 3: 609–615
Reinert M (1999) Quelques interrogations à propos de «l’objet» d’une analyse de discours de type statistique et de la réponse «Alceste». Langage et Société 90: 57–70
Robinson ME, Wise EA, Gagnon C, et al. (2004) Influences of gender role and anxiety on sex differences in temporal summation of pain. J Pain 5(2): 77–82
Schmid Mast M (2004) Dominance and gender in the physician-patient interaction. J Mens Health Gend 1(4): 354–358
Seale C, Ziebland S, Charteris-Black J (2006) Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups. Soc Sci Med 62: 2577–2590
Tubiana M, Hill C (2004) Les progrès dans la lutte contre le cancer en France et dans l’union européenne. Oncologie 6: 229–244
Vinsonneau G (2000) Culture et comportement. Armand Colin, Paris
Welzer-Lang, D (2004) Les hommes changent aussi. Payot, Paris
White A, Cash K (2004) The state of men’s health in Western Europe. J Mens Health Gend 1(1): 60–66
Wise EA, Price DD, Myers CD, et al. (2002) Gender role expectations of pain: relationship to experimental pain perception. Pain 96: 335–342
Zakowski SG, Harris C, Krueger N, et al. (2003) Social barriers to emotional expression and their relations to distress in male and female cancer patients. Br J Health Psychol 8: 271–286
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Dudoit, É., Dany, L., Blois, S. et al. Rôle de l’identité sexuée et de l’influence du genre pour l’analyse de l’expérience des soins de support en oncologie. Psycho Oncologie 1, 265–275 (2007). https://doi.org/10.1007/s11839-007-0051-z
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DOI: https://doi.org/10.1007/s11839-007-0051-z