Skip to main content

Transition von der Kindheit in das Erwachsenenalter bei chronischen Krankheiten

Transition from childhood into adulthood with chronic diseases

Zusammenfassung

Dank des medizinischen Fortschritts erleben zunehmend mehr Kinder mit chronischen Erkrankungen das Erwachsenenalter. Patienten mit angeborenen Stoffwechselkrankheiten stellen nur eine, jedoch in ihrer Größe und Problematik besondere Gruppe heranwachsender Patienten dar. Allerdings fehlen vielfach begleitende Strukturen im Gesundheitssystem, um eine erfolgreiche Transition zu ermöglichen. Dies kann zu erheblicher Beeinträchtigung der Gesundheit der Betroffenen führen. Der Artikel beschreibt den Transitionsprozess des gesunden Adoleszenten zum jungen Erwachsenen sowie die Schwierigkeiten dieses Prozesses für chronisch kranke junge Menschen mit erhöhtem Bedarf an Gesundheitsbetreuung, die zusätzlich den Übergang aus der pädiatrischen Medizin in die Erwachsenenmedizin zu bewältigen haben.

Abstract

Medical progress results in longer survival for those with chronic diseases. Children with chronic conditions and special healthcare needs survive into adolescence and young adulthood. Patients with congenital metabolic disorders are a large and important subgroup due to their very specific needs. Unfortunately, the social and healthcare structures needed for successful transition of each of these steps are still lacking, sometimes with severe medical consequences. This article describes the transition from adolescence to young adulthood for healthy youth. The transition process will be further investigated from the viewpoint of adolescents with special healthcare needs, emphasizing the transition from young to mature adulthood.

This is a preview of subscription content, access via your institution.

Abb. 1
Abb. 2

Literatur

  1. 1.

    American Academy of Pediatrics AAoF, Physicians ACoP-ASo, Medicine. I (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110:1304–1306

    Google Scholar 

  2. 2.

    Annunziato RA, Shemesh E (2010) Tackling the spectrum of transition: what can be done in pediatric settings? Pediatr Transplant 14:820–822

    Article  PubMed  Google Scholar 

  3. 3.

    Annunziato RA, Parkar S, Dugan CA, Barsade S, Arnon R, Miloh T, Iyer K, Kerkar N, Shemesh E (2011) Brief report: deficits in health care management skills among adolescent and young adult liver transplant recipients transitioning to adult care settings. J Pediatr Psychol 36:155–159

    Article  PubMed  Google Scholar 

  4. 4.

    Anthony SJ, Martin K, Drabble A, Seifert-Hansen M, Dipchand AI, Kaufman M (2009) Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. Am J Transplant 9:614–619

    CAS  Article  PubMed  Google Scholar 

  5. 5.

    Betz CL (2013) Health care transition for adolescents with special healthcare needs: where is nursing? Nurs Outlook 61:258–265

    Article  PubMed  Google Scholar 

  6. 6.

    Betz CL, Lobo ML, Nehring WM, Bui K (2013) Voices not heard: a systematic review of adolescents’ and emerging adults’ perspectives of health care transition. Nurs Outlook 61:311–336

    Article  PubMed  Google Scholar 

  7. 7.

    Bitzer J (2013) Oral contraceptives in adolescent women. Best Pract Res Clin Endocrinol Metab 27:77–89

    CAS  Article  PubMed  Google Scholar 

  8. 8.

    Bleidorn W (2012) Hitting the road to adulthood: short-term personality development during a major life transition. Pers Soc Psychol Bull 38:1594–1608

    Article  PubMed  Google Scholar 

  9. 9.

    Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 14:570–576

    CAS  Article  PubMed  Google Scholar 

  10. 10.

    Bundes Gd (2013) Verteilung der Bevölkerung nach ihrem Gesundheitszustand in Prozent. Gliederungsmerkmale: Jahre, Deutschland, Alter, Geschlecht, Gesundheitszustand. https://wwwgbe-bundde/oowa921-install/servlet/oowa/aw92/WS0100/_XWD_FORMPROC. Zugegriffen: 28. Apr. 2015

  11. 11.

    Bundesärztekammer (2011) 114. Deutscher Ärztetag. Beschlußprotokoll; VI-111 Tranistion von Jugendlichen mit Behinderungen oder chronischen Erkrankungen. http://wwwbundesaerztekammerde/downloads/114Beschlussprotokoll20110704pdf. Zugegriffen: 25. März 2015

  12. 12.

    Burt KB, Paysnick AA (2012) Resilience in the transition to adulthood. Psychopathol 24:493–505

    Article  Google Scholar 

  13. 13.

    Dorr HG, Hauffa BP, Wallaschofski H (2009) [Management of adolescents with childhood onset growth hormone deficiency in the transition–results of a field based study in Germany]. Dtsch Med Wochenschr 134:2551–2555

    CAS  Article  PubMed  Google Scholar 

  14. 14.

    Dummer TJ, Kirk SF, Penney TL, Dodds L, Parker L (2012) Targeting policy for obesity prevention: identifying the critical age for weight gain in women. J Obes 2012:934895

    PubMed Central  Article  PubMed  Google Scholar 

  15. 15.

    Flume PA (2009) Smoothing the transition from pediatric to adult care: lessons learned. Curr Opin Pulm Med 15:611–614

    Article  PubMed  Google Scholar 

  16. 16.

    Frech A (2012) Healthy behavior trajectories between adolescence and young adulthood. Adv Life Course Res 17:59–68

    PubMed Central  Article  PubMed  Google Scholar 

  17. 17.

    Fredericks EM (2009) Nonadherence and the transition to adulthood. Liver Transpl 15(Suppl 2):S63–S69

    Google Scholar 

  18. 18.

    Gesundheitswesen SzBdEi (2009) Sondergutachten 2009 4. Spezielle Versorgungsnaforderungen im Übergang vom Jugend- ins Erwachsenenalter. http://wwwsvr-gesundheitde/indexphp?id=22. Zugegriffen: 25. März 2015

  19. 19.

    Herzer M, Goebel J, Cortina S (2010) Transitioning cognitively impaired young patients with special health needs to adult-oriented care: collaboration between medical providers and pediatric psychologists. Curr Opin Pediatr 22:668–672

    PubMed  Google Scholar 

  20. 20.

    Hollak CEM, van Spronsen F (2014) Transitionsmedizin in den Niederlanden. In: vom Dahl S et al (Hrsg) Angeborene Stoffwechselkrankheiten bei Erwachsenen. Springer-Verlag, Berlin, S 48–53

  21. 21.

    Irwin C (2010) Young adults are worth off than adolescents. J Adolesc Health 46:405–406

    Article  PubMed  Google Scholar 

  22. 22.

    LaRosa C, Baluarte HJ, Meyers KE (2011) Outcomes in pediatric solid-organ transplantation. Pediatr Transplant 15:128–141

    Article  PubMed  Google Scholar 

  23. 23.

    Lausch M, Reincke M (2004) [Transition clinics in endocrinology and diabetology for the chronically ill in Germany. A recent inquiry]. Dtsch Med Wochenschr 129:1125–1129

    CAS  Article  PubMed  Google Scholar 

  24. 24.

    Moons P, Pinxten S, Dedroog D, Van Deyk K, Gewillig M, Hilderson D, Budts W (2009) Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. J Adolesc Health 44:316–322

    Article  PubMed  Google Scholar 

  25. 25.

    Mutze U, Roth A, Weigel JF, Beblo S, Baerwald CG, Buhrdel P, Kiess W (2011) Transition of young adults with phenylketonuria from pediatric to adult care. J Inherit Metab Dis 34:701–709

    Article  PubMed  Google Scholar 

  26. 26.

    Nursing RCo (2004) Adolescent transition Care- guidance for nursing staff. http://wwwrcnorguk/__data/assets/pdf_file/0011/78617/004510pdf. Zugegriffen: 26. Apr. 2015

  27. 27.

    Office NALfPwrDNC (2014) National plan of action for people with rare diseases. Action fields, recommendations, proposed actions. http://wwwnamsede/images/stories/Dokumente/Aktionsplan/national%20plan%20of%20actionpdf. Zugegriffen: 4. Apr. 2015

  28. 28.

    Packman W, Mehta I, Rafie S, Mehta J, Naldi M, Mooney KH (2012) Young adults with MSUD and their transition to adulthood: psychosocial issues. J Genet Couns 21:692–703

    Article  PubMed  Google Scholar 

  29. 29.

    Park MJ, Adams SH, Irwin CE Jr (2011) Health care services and the transition to young adulthood: challenges and opportunities. Acad Pediatr 11:115–122

    Article  PubMed  Google Scholar 

  30. 30.

    Pediatrics AAo, Physicians AAoF, Medicine ACoP-ASoI (2002) A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 110:1304–1306

    Google Scholar 

  31. 31.

    Poobalan AS, Aucott LS, Clarke A, Smith WC (2012) Physical activity attitudes, intentions and behaviour among 18–25 year olds: a mixed method study. BMC Public Health 12:640

    PubMed Central  Article  PubMed  Google Scholar 

  32. 32.

    Protheroe S (2009) Symposium 6: young people, artificial nutrition and transitional care. Transition in young people on home parenteral nutrition. Proc Nutr Soc 68:441–445

  33. 33.

    Rakhmanina NY, van den Anker JN, Soldin SJ, van Schaik RH, Mordwinkin N, Neely MN (2010) Can therapeutic drug monitoring improve pharmacotherapy of HIV infection in adolescents? Ther Drug Monit 32:273–281

    PubMed Central  CAS  Article  PubMed  Google Scholar 

  34. 34.

    Roberts BW, Wood D; Smith, JL (2005) Evaluating five factor theory and social investment perspectives on personality trait development. J Res Pers 39:166–184

    Article  Google Scholar 

  35. 35.

    Rodeck B (2015) Bericht der interdisziplinären AG Transition. Monatsschrift Kinderheilkunde Mitteilungen DGKJ 179(2):179–180

    Google Scholar 

  36. 36.

    Rook M, Rosenthal P (2009) Caring for adults with pediatric liver disease. Curr Gastroenterol Rep 11:83–89

    Article  PubMed  Google Scholar 

  37. 37.

    Suris JC, Akre C, Rutishauser C (2009) How adult specialists deal with the principles of a successful transition. J Adolesc Health 45:551–555

    Article  PubMed  Google Scholar 

  38. 38.

    Tsybina I, Kingsnorth S, Maxwell J, Bayley M, Lindsay S, McKeever P, Colantonio A, Hamdani Y, Healy H, Macarthur C (2012) Longitudinal Evaluation of Transition Services („LETS Study“): protocol for outcome evaluation. BMC Pediatr 12:51

    PubMed Central  Article  PubMed  Google Scholar 

  39. 39.

    WHO Adolescent Health Epidemiology. http://wwwwhoint/maternal_child_adolescent/epidemiology/adolescence/en/. Zugegriffen: 27. Apr. 2015

  40. 40.

    Wong LH, Chan FW, Wong FY, Wong EL, Huen KF, Yeoh EK, Fok TF (2010) Transition care for adolescents and families with chronic illnesses. J Adolesc Health 47:540–546

    Article  PubMed  Google Scholar 

Download references

Danksagung

Die Arbeit an diesem Manuskript wurde durch eine Spende von Genzyme ermöglicht.

Author information

Affiliations

Authors

Corresponding author

Correspondence to Ursula Plöckinger.

Ethics declarations

Interessenkonflikt

U. Plöckinger erhielt Vortragshonorare, Spenden, Projektunterstützungen von Genzyme, Shire, BioMarin, Vitaflow, Milupa, Merck Serono, Pfizer und Novartis.

Dieser Beitrag beinhaltet keine Studien an Menschen oder Tieren.

Rights and permissions

Reprints and Permissions

About this article

Verify currency and authenticity via CrossMark

Cite this article

Plöckinger, U. Transition von der Kindheit in das Erwachsenenalter bei chronischen Krankheiten. medgen 27, 288–295 (2015). https://doi.org/10.1007/s11825-015-0066-y

Download citation

Schlüsselwörter

  • Adoleszenz
  • Junge Erwachsene
  • Transition
  • Angeborene Stoffwechselkrankheiten

Keywords

  • Adolescence
  • Young adult
  • Transition to adult care
  • Inherited metabolic disease