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Understanding the Bariatric Patient Perspective in the National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study

Abstract

Background

In 2016, the Patient-Centered Outcomes Research Institute funded the National Patient Centered Clinical Research Network (PCORnet) Bariatric Study (PBS). Understanding the experience of postoperative patients was a key component of this study.

Methods

Nine focus groups were conducted in Southern California, Louisiana, Pennsylvania, and Ohio and in a national advocacy conference for patients with obesity. Participants were identified and recruited in both clinical and community settings. Focus group transcripts were analyzed using an iterative inductive-deductive approach to identify global overarching themes.

Results

There were 76 focus group participants. Participants were mostly women (81.4%), had primarily undergone gastric sleeve (47.0%), were non-Hispanic white (51.4%), had some college education (44.3%), and made $100,000 annual income or less (65.7%). Qualitative findings included negative reactions patients received from friends, family, and co-workers once they disclosed that they had bariatric surgery to lose weight; and barriers to follow-up care included insurance coverage, emotional and situational challenges, and physical pain limiting mobility.

Conclusions

These findings confirm the other qualitative findings in this area. The approach to bariatric surgery should be expanded to provide long-term comprehensive care that includes in-depth postoperative lifetime monitoring of emotional and physical health.

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Change history

  • 16 February 2020

    In the original article the list of author names and affiliations were incorrect

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Funding

The PCORnet Study reported in this article was conducted using PCORnet, the National Patient-Centered Clinical Research Network, an initiative funded by the Patient-Centered Outcomes Research Institute (PCORI). The study was funded by PCORI through PCORI Award OBS-1505-30683. The views expressed in this manuscript are solely those of the authors and do not reflect the views of PCORnet or PCORI.

Author information

Correspondence to Karen J. Coleman.

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Conflict of Interest

The authors declare that they have no conflict of interest.

Informed Consent

Informed consent was obtained from all participants in the study.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional review boards involved in the study and with the 1964 Helsinki Declaration and its later amendments or comparable ethical standards.

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Coleman, K.J., Schlundt, D.G., Bonnet, K.R. et al. Understanding the Bariatric Patient Perspective in the National Patient-Centered Clinical Research Network (PCORnet) Bariatric Study. OBES SURG (2020). https://doi.org/10.1007/s11695-020-04404-8

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Keywords

  • Qualitative
  • Healthcare