Beyond Biomedicine: Relationships and Care in Tuberculosis Prevention
With attention to the experiences, agency, and rights of tuberculosis (TB) patients, this symposium on TB and ethics brings together a range of different voices from the social sciences and humanities. To develop fresh insights and new approaches to TB care and prevention, it is important to incorporate diverse perspectives from outside the strictly biomedical model. In the articles presented in this issue of the Journal of Bioethical Inquiry, clinical experience is married with historical and cultural context, ethical concerns are brought to bear on global health, and structural analyses shed light upon the lived experience of people living with TB. The relational and reciprocal dimensions of care feature strongly in these discussions, which serve as a poignant reminder that behind each of the yearly deaths from TB is a deeply personal story. No single discipline holds a monopoly on how to care for each of these people, but strong cases are made for support from mental health and social workers in addressing the kaleidoscope of needs in TB prevention. As the World Health Organization moves towards the goal of eliminating TB globally by 2050, attending to the needs of TB patients serves global interests to lower disease burden and to develop better integrated communities worldwide.
KeywordsTuberculosis Medical anthropology Medical history Reciprocity Social policy Socio-ecological model Care
- Armus, D. 2016. On TB vaccines, patients’ demands, and modern printed media in times of biomedical uncertainties: Buenos Aires, 1920–1950. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9692-y.
- Barnes, D.S. 1995. The making of a social disease: Tuberculosis in nineteenth-century France. Berkeley: University of California Press.Google Scholar
- Carroll, J. 2016. The ethics of isolation for patients with tuberculosis in Australia. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9685-x.
- Denholm, J. 2016. Ethics, tuberculosis, and compassion: Lessons from praxis. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9693-x.
- Dubos, R., and J. Dubos. 1952. The white plague: Tuberculosis, man, and society. Boston: Little, Brown, Boston.Google Scholar
- Farmer, P. 2003. Pathologies of power: Health, human rights, and the new war on the poor. Berkeley: University of California Press.Google Scholar
- Halovic, S. 2016. Effective therapeutic relationships using psychodynamic psychotherapy in the face of trauma. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-016-9701-9.
- Hershkovitz, I., H.D. Donoghue, D.E. Minnikin, et al. 2008. Detection and molecular characterization of 9,000-year-old Mycobacterium tuberculosis from a Neolithic settlement in the Eastern Mediterranean. PLoS One 3(10): e3426. doi:10.1371/journal.pone.0003426.CrossRefPubMedPubMedCentralGoogle Scholar
- Horner, J. 2016. From exceptional to liminal subjects: Reconciling tensions in the politics of tuberculosis and migration. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-016-9700-x.
- Koch, E. 2016. Negotiating “the social” and managing tuberculosis in Georgia. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9689-6.
- Mol, A., I. Moser, and J. Pols. 2010. Care: Putting practice into theory. In Care in practice: On tinkering in clinics, homes and farms, edited by A. Mol, I. Moser, and J. Pols, 7–26. Bielefeld, Germany: Transcript-Verlag.Google Scholar
- Packard, R.M. 1989. White plague, black labor: Tuberculosis and the political economy of health and disease in South Africa. Berkeley: University of California Press.Google Scholar
- Silva, D.S., A. Dawson, and R.E.G. Upshur. 2016. Reciprocity and ethical tuberculosis treatment and control. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9691-z.
- Upshur, R. 2010. What does it mean to “know” a disease? The tragedy of XDR-TB. In Public health ethics and practice, edited by S. Peckham and A. Hann, 51–65. Bristol, UK: Policy Press.Google Scholar
- Watts, K. 2016. MDR-TB, isolation, and anomie: Has anyone referred to social work? Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-016-9707-3.
- Yamada, S., S. Riklon, and G.G. Maskarinec. 2016. Ethical responsibility for the social production of tuberculosis. Journal of Bioethical Inquiry 13(1). doi:10.1007/s11673-015-9681-1.