Journal of Bioethical Inquiry

, Volume 12, Issue 3, pp 429–436 | Cite as

Conflicts Between Parents and Health Professionals About a Child’s Medical Treatment: Using Clinical Ethics Records to Find Gaps in the Bioethics Literature

  • Rosalind McDougallEmail author
  • Lauren Notini
  • Jessica Phillips
Original Research


Clinical ethics records offer bioethics researchers a rich source of cases that clinicians have identified as ethically complex. In this paper, we suggest that clinical ethics records can be used to point to types of cases that lack attention in the current bioethics literature, identifying new areas in need of more detailed bioethical work. We conducted an analysis of the clinical ethics records of one paediatric hospital in Australia, focusing specifically on conflicts between parents and health professionals about a child’s medical treatment. We identified, analysed, and compared cases of this type from the clinical ethics records with cases of this type discussed in bioethics journals. While the cases from journals tended to describe situations involving imminent risk to the child’s life, a significant proportion of the clinical ethics records cases involved different stakes for the child involved. These included distress, poorer functional outcome, poorer psychosocial outcome, or increased risk of surgical complications. Our analysis suggests that one type of case that warrants more detailed ethics research is parental refusal of recommended treatment, where the refusal does not endanger the child’s life but rather some other aspect of the child’s well-being.


Paediatrics Clinical ethics Parents Conflict 



The authors thank Alison Brookes for her research assistance. This project was funded by an Australian Research Council Discovery Early Career Researcher Award (grant number DE120100488).


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Copyright information

© Journal of Bioethical Inquiry Pty Ltd. 2015

Authors and Affiliations

  • Rosalind McDougall
    • 1
    • 2
    Email author
  • Lauren Notini
    • 1
    • 2
  • Jessica Phillips
    • 1
    • 2
  1. 1.Centre for Health Equity, Melbourne School of Population and Global HealthUniversity of MelbourneParkvilleAustralia
  2. 2.Children’s Bioethics CentreRoyal Children’s Hospital, MelbourneParkvilleAustralia

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