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What Constitutes Adequate Public Consultation? Xenotransplantation Proceeds in Australia

Abstract

The Australian moratorium on human clinical trials of xenotransplantation was lifted in December 2009. This decision follows public consultations on whether xenotransplantation should or should not proceed in Australia, which occurred in 2002 and 2004. However, the public consultation, in its design and process, did not facilitate meaningful public engagement and involvement, thus marginalising the public and devaluing their social experiences and diverse knowledges. This brief article questions what constitutes adequate public consultation, and suggests that consensus conferences or citizen juries should be explored as a mechanism for meaningful public engagement for future public consultation exercises in Australia.

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References

  1. Cook, P.S. 2007. Informed consent and human rights: Some regulatory challenges of xenotransplantation. Social Alternatives. 26(4): 29–34.

    Google Scholar 

  2. Cooper, D.K.C., and R.P. Lanza. 2000. Xeno: The promise of transplanting animal organs into humans. New York: Oxford University Press.

    Google Scholar 

  3. Einsiedel, E.F., and H. Ross. 2002. Animal spare parts? A Canadian public consultation on xenotransplantation. Science and Engineering Ethics 8(4): 579–591.

    PubMed  Article  Google Scholar 

  4. Irwin, A., and B. Wynne. 1996. Introduction. In Misunderstanding science? The public reconstruction of science and technology, ed. A. Irwin and B. Wynne, 1–17. Cambridge: Cambridge University Press.

    Chapter  Google Scholar 

  5. Jasanoff, S. 2003. Technologies of humility: Citizen participation in governing science. Minerva 41(3): 223–244.

    Article  Google Scholar 

  6. Leroux, T., M. Hirtle, and L. Fortin. 1998. An overview of public consultation mechanisms developed to address the ethical and social issues raised by biotechnology. Journal of Consumer Policy. 21(4): 445–481.

    Article  Google Scholar 

  7. Living Cell Technologies. 2009. Living cell technologies considers Australian trials following lifting of animal cell transplant ban. http://www.lctglobal.com/downloads/cms_latest_news/2009-12-09-31mnq6y96z9q8p.pdf (accessed December 10, 2009).

  8. National Health and Medical Research Council. 2009. Clinical trials involving animal-to-human transplantation. http://www.nhmrc.gov.au/_files_nhmrc/file/media/media/rel09/091210-xenotransplantation.pdf (accessed December 10, 2009).

  9. Wynne, B. 2006. Public engagement as a means of restoring public trust in science—hitting the notes, but missing the music? Community Genetics 9(3): 211–220.

    PubMed  Article  Google Scholar 

  10. Xenotransplantation Working Party. 2002. Draft guidelines and discussion paper on xenotransplantation. Canberra: Commonwealth of Australia. http://www.nhmrc.gov.au/_files_nhmrc/file/about/committeess/expert/gtrap/xeno.pdf (accessed December 10, 2009).

    Google Scholar 

  11. Xenotransplantation Working Party. 2003a. Animal-to-human transplantation research: A guide for the community. Canberra: Commonwealth of Australia. http://www.nhmrc.gov.au/_files_nhmrc/file/publications/synopses/e54.pdf (accessed December 10, 2009).

    Google Scholar 

  12. Xenotransplantation Working Party. 2003b. Animal-to-human transplantation research: How should Australia proceed? Canberra: Commonwealth of Australia. http://www.nhmrc.gov.au/_files_nhmrc/file/publications/synopses/e55.pdf (accessed December 10, 2009).

    Google Scholar 

  13. Xenotransplantation Working Party. 2004. Animal-to-human transplantation (xenotransplantation): Final report and advice to the National Health and Medical Research Council. Canberra: Commonwealth of Australia. http://www.nhmrc.gov.au/about/committees/expert/gtrap/_files/xenotrans.pdf (accessed July 10, 2007).

    Google Scholar 

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Correspondence to Peta S. Cook.

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Cook, P.S. What Constitutes Adequate Public Consultation? Xenotransplantation Proceeds in Australia. Bioethical Inquiry 8, 67–70 (2011). https://doi.org/10.1007/s11673-010-9269-8

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Keywords

  • Xenotransplantation
  • Public participation
  • Decision-making
  • Persuasive communication
  • Policy development
  • Consensus development