Skip to main content

Advertisement

Log in

Whakapapa – A Foundation for Genetic Research?

  • Published:
Journal of Bioethical Inquiry Aims and scope Submit manuscript

Abstract

Whakapapa is the foundation of traditional Māori social structure and it perpetuates a value base that locates people through their relationships to the physical and spiritual worlds. As part of a new envirogenomics research programme, researchers at the Institute of Environmental Science and Research (ESR) are developing a study with an iwi (tribe) to identify combinations of genetic and environmental factors that may contribute to current health status. A major objective of this study is to utilise whakapapa (genealogical information) to explore patterns of genetic variation unique to the iwi and to correlate these with potential disease or ill health. Genetic testing and screening raises numerous ethical issues, particularly when indigenous peoples are the subjects. This paper will outline ESR’s strategy for addressing indigenous concerns about genetic testing and how whakapapa forms an integral part of the envirogenomics research programme.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Similar content being viewed by others

References

  1. Williams, H. W. (1997). Dictionary of the Māori language. Wellington: GP.

    Google Scholar 

  2. Moon, P. (2003). Tohunga, Hohepa Kereopa. Auckland: David Ling.

    Google Scholar 

  3. Tipene-Matua, B. (2000). A Māori response to the biogenetic age. In R. Prebble (Ed.), Designer genes: The New Zealand guide to the issues, facts and theories about genetic engineering. Wellington: Dark Horse.

    Google Scholar 

  4. Roberts, M., Haami, B., Benton, R., Satterfield, T., Finucane, M. L., Henare, M., et al. (2004). Whakapapa as a Māori mental construct: Some implications for the debate over genetic modification of organisms. Contemporay Pacific, 16(1), 1–28.

    Article  Google Scholar 

  5. Mead, A. T. P., & Tomas, N. (1995). The convention on biological diversity: Are human genes biological resources? NZ Env Law Reporter, 130–131. (Cited by: Waitangi Tribunal. Wai 262: Mātauranga Māori and taonga. 2001; Wellington: Waitangi Tribunal.)

  6. O’Regan, H. (2005). Whose line is it anyway? Lineage/whakapapa, fertility and the Māori world view [presentation to the Fertility Society Australia Scientific Meeting]. NZ: Christchurch, Sept 4–7.

    Google Scholar 

  7. Durie, M. (2003). Ngā kahui pou: Launching Māori futures. Wellington: Huia.

    Google Scholar 

  8. Kukutai, T. (2003). The dynamics of ethnicity reporting: Māori in New Zealand. Wellington: Te Puni Kōkiri.

    Google Scholar 

  9. Howden-Chapman, P., & Cram, F. (1998). Social, economic and cultural determinants of health. Wellington: National Health Committee.

    Google Scholar 

  10. Ajwani, S., Blakely, T., Robson, B., Tobias, M., & Bonne, M. (2003). Decades of disparity: ethnic mortality trends in New Zealand 1980–1999. Wellington: Ministry of Health and University of Otago.

    Google Scholar 

  11. Blakely, T., Fawcett, J., Atkinson, J., Tobias, M., & Cheung, J. (2005). Decades of disparity II: Socioeconomic mortality trends in New Zealand 1981–1999. Wellington: Ministry of Health and University of Otago.

    Google Scholar 

  12. Bishop, R. (1996). Collaborative research stories: Whakawhanaungatanga. Palmerston North: Dunmore.

    Google Scholar 

  13. Smith, L. T. (1999). Decolonizing methodologies: Research and indigenous peoples. London and New York: Zed Books.

    Google Scholar 

  14. Lea, R. A., Benowitz, N., Green, M., Fowles, J., Visvanath, A., Dickson, S., et al. (2005). Ethnic differences in nicotine metabolic rate in New Zealand. NZ Med J, 118(1227), U1773, Dec 16.

    Google Scholar 

  15. O’Regan, T. (1993). Who owns the past? Changes in Māori perceptions of the past. In W. Ihimaera, H. Williams, I. Ramsden, & D. S. Long (Ed.), Te ao mārama, regaining Aotearoa: Māori writers speak out. Auckland: Reed Books.

    Google Scholar 

  16. Royal Commission on Genetic Modification (2002). Report of the Royal Commission on Genetic Modification. Wellington: Ministry for the Environment.

    Google Scholar 

  17. Smith, C., & Reynolds, P. (2000). Māori, genes and genetics: What Māori should know about the new biotechnology. Whanganui: Whanganui Iwi Law Centre.

    Google Scholar 

  18. Cram, F., Phillips, H., Tipene-Matua, B., Parsons, M., & Taupo, K. (2004). A ‘parallel process’? Beginning a constructive conversation about a Māori methodology. Journal of Bioethical Inquiry, 1(1), 14–19.

    Article  PubMed  Google Scholar 

  19. Du Plessis, R., Scott, A., Phillips, H., Cram, F., Tipene-Matua, B., Parsons, M., et al. (2004). The social, cultural, ethical and spiritual implications of genetic testing. Research report 3. Christchurch: University of Canterbury.

    Google Scholar 

  20. Cram, F., Pihama, L., & Barbara, G. (2000). Māori and genetic engineering. Auckland: International Research Institute for Māori and Indigenous Education.

    Google Scholar 

  21. Hudson, M. (2004). Māori and ethical review in health research [thesis]. Auckland: Auckland University of Technology.

  22. United Nations Permanent Forum on Indigenous Issues. International workshop on methodologies regarding free, prior and informed consent and indigenous peoples [homepage on the Internet]. [Updated 2006; cited 2006 May 8]. Available from http://www.un.org/esa/socdev/unpfii/en/workshops.html.

  23. Leach, M., Tamasese, K., & Fairburn-Dunlop, P. (2006). United Nations Educational, Scientific and Cultural Organisation Ethics of Knowledge Production conference [responses to Universal Declaration on Bioethics and Human Rights]. N.Z.: Dunedin, Feb 12–14.

    Google Scholar 

  24. Nelkins, D. (2002). A brief history of the political work of genetics. Jurimetrics Journal, 42, 121–132.

    Google Scholar 

  25. Collins, F. S. (2004). What we do and don’t know about ‘race,’ ‘ethnicity,’ genetics and health at the dawn of the genome era. N Genetics, 36, S13–S15.

    Article  CAS  Google Scholar 

  26. Chaix, R., Austerlitz, F., Khegay, T., Jacquesson, S., Hammer, M. F., Heyer, E., et al. (2004). The genetic or mythical ancestry of descent groups: Lessons from the Y chromosome. American Journal of Human Genetics, 75, 1113–1116.

    Article  PubMed  CAS  Google Scholar 

  27. Petersen, A., & Bunton, R. (Eds.) (2002). The new genetics and the public’s health. London and New York: Routledge.

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Annabel L. M. Ahuriri-Driscoll.

Glossary

Hapū

clan/sub-tribe

Iwi

tribe

Kaitiaki/kaitiakitanga

guardian/guardianship

Kaupapa

purpose/agenda

Kawa

protocol, etiquette

Manaakitanga

caring, hospitality

Māori

indigenous people of Aotearoa/New Zealand

MātaurangaMāori

Māori knowledge

Mauri

life-force, essence

Ngāti Kahungunu

tangata whenua of Hawkes Bay and lower East Coast of the North Island

Pepeha

a saying that can locate the speaker to a place, a region, and an ancestry

Rakaipaaka

iwi of Nuhaka and Mahia peninsula, Hawke’s Bay

Tangata whenua

people of the land

Te Ao Māori

the Māori world

Tikanga

custom, obligations and conditions

Tūpuna

ancestors

Wairua

spirit

Whakapapa

genealogy/genealogical information

Whakatauki

proverb

Whānau

family

Whanaunga/whanaungatanga

relative/kinship

Whenua

land, placenta

Rights and permissions

Reprints and permissions

About this article

Cite this article

Hudson, M.L., Ahuriri-Driscoll, A.L.M., Lea, M.G. et al. Whakapapa – A Foundation for Genetic Research?. Bioethical Inquiry 4, 43–49 (2007). https://doi.org/10.1007/s11673-007-9033-x

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11673-007-9033-x

Keywords

Navigation