Abstract
The sexuality of autistic adults has historically been overlooked. A positive framework for understanding sexuality of autistic adults is critical for designing sexuality and relationship education programming to support best outcomes. This study used an online survey of US-based adults with and without autism to develop a model of psychosexual wellbeing. Three factors (Sexual Knowledge, Sexual Feelings and Attitudes, and Sexual Self-Concept) comprise this model. Comparisons of the different factors relative to diagnostic status were made using t-tests. Overall psychosexual well-being was lower for the autistic group compared to the neurotypical group. The sexual self-concept factor was significantly lower from autistic participants, as hypothesized. The correlation between sexual self-concept and sexual knowledge was significant for neurotypical participants but not significant for autistic participants. Differences by group highlight the need for tailored sexuality and relationship education programming for autistic individuals. Further, there is a need to study the developmental processes of identity and self-concept formation for autistic individuals, given how this concept is intertwined with sexual development and psychosexual wellbeing.
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References
American Psychiatric Association, Ed. (2013). Autism Spectrum Disorder. In Diagnostic and statistical manual of mental disorderes 5th (ed.,) Washington, DC.
Allison, C., Auyeung, B., Baron-Cohen, S.: Toward brief ‘red flags’ for autism screening: The short autism spectrum quotient and the short quantitative Checklist in 1,000 Cases and 3,000 Controls. Jornal of American Acadcadamy of Child & Adolescent Psychiatry 51(2), 202-212.e7 (2012). https://doi.org/10.1016/j.jaac.2011.11.003
Anderson, R.M.: Positive sexuality and its impact on overall well-being. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 56(2), 208–214 (2013). https://doi.org/10.1007/s00103-012-1607-z
Antičević, V., Jokić-Begić, N., Britvić, D.: Sexual self-concept, sexual satisfaction, and attachment among single and coupled individuals. Personal Relationship 24(4), 858–868 (2017). https://doi.org/10.1111/pere.12217
Baron-Cohen, S., Wheelwright, S., Skinner, R., Martin, J., Clubley, E.: The autism-spectrum quotient (AQ): evidence from Asperger syndrome/high-functioning autism, males and females, scientists and mathematicians. Journal of Autism Developmental Disorders 31(1), 5–17 (2001)
Brown, M., McCann, E.: Sexuality issues and the voices of adults with intellectual disabilities: A systematic review of the literature. Research in Developmental Disabilities 74, 124–138 (2018). https://doi.org/10.1016/j.ridd.2018.01.009
Byers, E.S., Nichols, S., Voyer, S.D.: Challenging stereotypes: sexual functioning of single adults with high functioning autism spectrum disorder. Journal of Autism Developmental Disorders 43(11), 2617–2627 (2013). https://doi.org/10.1007/s10803-013-1813-z
Byers, E.S., Nichols, S., Voyer, S.D., Reilly, G.: Sexual well-being of a community sample of high-functioning adults on the autism spectrum who have been in a romantic relationship. Autism 17(4), 418–433 (2013). https://doi.org/10.1177/1362361311431950
Byers, E., Rehman, U.: Sexual well-being, pp. 317–337. American Psychological Association, Washington (2014)
Crehan, E.T., Rocha, J., Dufresne, S.: Brief report: Sources of sexuality and relationship education for autistic and Neurotypical adults in the U.S. and a call to action. Journal of Autism Developmental Disorders (2021). https://doi.org/10.1007/s10803-021-04992-z
Dekker, L.P., et al.: Psychosexual functioning of cognitively-able adolescents with Autism Spectrum Disorder compared to typically developing peers: The development and testing of the teen transition inventory- a self- and parent report questionnaire on psychosexual functioning. Journal of Autism Developmental Disorders 47(6), 1716–1738 (2017). https://doi.org/10.1007/s10803-017-3071-y
DeLamater, J., Friedrich, W.N.: Human sexual development. J. Sex Res. 39(1), 10–14 (2002). https://doi.org/10.1080/00224490209552113
Fortenberry J. D. (2014). Sexual learning, sexual experience, and healthy adolescent sex. In: Positive and negative outcomes of sexual behaviors, Jossey-Bass/Wiley. pp. 71–86. Accessed: Jan. 19, 2022. [Online]. Available: https://psycnet-apa-org.ezproxy.library.tufts.edu/record/2014-31185-005
Hannah, L.A., Stagg, S.D.: Experiences of sex education and sexual awareness in young adults with autism spectrum disorder. Journal of Autism Developmental Disorders 46(12), 3678–3687 (2016). https://doi.org/10.1007/s10803-016-2906-2
Harden, K.P.: A sex-positive framework for research on adolescent sexuality. Perspectives on Psychological Science 9(5), 455–469 (2014). https://doi.org/10.1177/1745691614535934
Henault, I.: Asperger’s syndrome and sexuality: from adolescence through adulthood, 1st edn. Jessica Kingsley Publishers, London; Philadelphia (2005)
Klein, F., Sepekoff, B., Wolf, T.J.: Sexual orientation: a multi-variable dynamic process. Journal of Homosex 11(1–2), 35–49 (1985). https://doi.org/10.1300/J082v11n01_04
Koller, R.: Sexuality and adolescents with Autism. Sexuality Disability 18(2), 125–135 (2000). https://doi.org/10.1023/A:1005567030442
Mehzabin, P., Stokes, M.A.: Self-assessed sexuality in young adults with high-functioning autism. Research in Autism Spectrum Disorders 5(1), 614–621 (2011). https://doi.org/10.1016/j.rasd.2010.07.006
Müller, E., Schuler, A., Yates, G.B.: Social challenges and supports from the perspective of individuals with Asperger syndrome and other autism spectrum disabilities. Autism 12(2), 173–190 (2008). https://doi.org/10.1177/1362361307086664
Autistic Self Advocacy Network. (2015). Real Talk: Improving quality of sexual health care for patients with disabilities. Autistic Self Advocacy Network, Dec. 04. https://autisticadvocacy.org/projects/completed/realtalk/ (accessed Jan. 19, 2022).
Parchomiuk, M.: Sexuality of persons with autistic spectrum disorders (ASD). Sex Disabilities 37(2), 259–274 (2019). https://doi.org/10.1007/s11195-018-9534-z
Pearlman-Avnion, S., Cohen, N., Eldan, A.: Sexual well-being and quality of life among high-functioning adults with autism. Sexuality Disability 35(3), 279–293 (2017). https://doi.org/10.1007/s11195-017-9490-z
Rocha J. N. (2020). Psychosexual well-being in adults with and without autism spectrum disorder. M.A., Tufts University, United States – Massachusetts. Accessed: Jul. 11, 2022. [Online]. Available: https://www.proquest.com/docview/2413387903/abstract/3448EE22B6DE4675PQ/1
Rostosky, S.S., Dekhtyar, O., Cupp, P.K., Anderman, E.M.: Sexual self-concept and sexual self-efficacy in adolescents: A possible clue to promoting sexual health? Journal Sex Research 45(3), 277–286 (2008). https://doi.org/10.1080/00224490802204480
Sala, G., Hooley, M., Attwood, T., Mesibov, G.B., Stokes, M.A.: Autism and intellectual disability: A systematic review of sexuality and relationship education. Sex Disabilities 37(3), 353–382 (2019). https://doi.org/10.1007/s11195-019-09577-4
Stokes, M.A., Kaur, A.: High-functioning autism and sexuality: a parental perspective. Autism 9(3), 266–289 (2005). https://doi.org/10.1177/1362361305053258
T. Williams The difference in post-secondary sexual self-efficacy and sexual self-concept outcomes among transitioning youth with autism spectrum disorder. Doctoral Dissertations and Projects. (2022). [Online]. Available: https://digitalcommons.liberty.edu/doctoral/3752
Tolman, D.L., McClelland, S.I.: Normative sexuality development in adolescence: A decade in review, 2000–2009. Journal of Research Adolescence 21(1), 242–255 (2011). https://doi.org/10.1111/j.1532-7795.2010.00726.x
Travers, J., Tincani, M.: Sexuality education for individuals with autism spectrum disorders: Critical issues and decision making guidelines. Education and Training in Autism and Developmental Disabilities. 45, 2 (2010)
Travers, J., Tincani, M., Whitby, P.S., Boutot, E.A.: Alignment of sexuality education with self Determination for people with significant disabilities: A review of research and future directions. Education and Training in Autism and Developmental Disabilities 49(2), 16 (2014)
Turner, D., Briken, P., Schöttle, D.: Autism-spectrum disorders in adolescence and adulthood: focus on sexuality. Curr. Opin. Psychiatry 30(6), 409–416 (2017). https://doi.org/10.1097/YCO.0000000000000369
World Health Organization. (2019). Sexual health. https://www.who.int/westernpacific/health-topics/sexual-health (Accessed Feb. 04, 2022).
World Health Organization. (2015). Sexual health, human rights and the law. WHO Document Production Services. Accessed: Feb. 26, 2019. [Online]. Available: https://apps.who.int/iris/bitstream/handle/10665/175556/9789241564984_eng.pdf;jsessionid=DC3F34A9C91D3617833C02576C6E5F4F?sequence=1
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The authors would also like to thank the Autism Community Advisory Board which provides feedback and suggestions on study design.
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Funding for this study was provided by the Office of Vice Provost for Research at Tufts University and by the Graduate Student Research Competition.
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Dr. Crehan contributed to the study conception and design. Ms. Rocha contributed to the data collection and performed the analyses. Ms. Rocha wrote an initial draft of this paper and Ms. Aladin provided revisions. All authors commented on previous versions and have read and approved this final manuscript.
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Rocha, J., Aladin, S. & Crehan, E.T. A Model of Psychosexual Wellbeing for Autistic and Neurotypical Adults in the United States. Sex Disabil 41, 3–16 (2023). https://doi.org/10.1007/s11195-022-09764-w
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DOI: https://doi.org/10.1007/s11195-022-09764-w