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Sexual Education of Persons with Autistic Spectrum Disorders: Use of the Technique: ‘Social Stories

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Abstract

The difficulty in the area of social skills for persons with Autism Spectrum Disorders (ASD) is particularly visible in the area of sexuality and intimate relationships. Therefore, it is important to create a curriculum including information about sexuality and to address the individual and specific needs of persons with ASD. For this purpose we designed a study using Social Stories for conducting sexuality education following the criteria of Carol Gray. The main goal of our study was to assess the effects of the use of Social Stories to implement sexuality education with three participants with ASD. The individual sessions lasted for 45 min and they continued for a period of 6 months. The participants were tested and their parents interviewed before starting and after finishing 6 months of sexual education, and this allowed us to assess knowledge and behavioral changes regarding sexuality. The most significant changes were determined through assessment of the following areas: the private and reproductive parts of the body; changes occurring during the period of puberty; distinguishing pleasant and unpleasant touch; sexual relations and contraception. Our conclusion after analyzing results were that a period of 6 months implementing sexuality education through Social Stories was sufficient to upgrade and expand knowledge, but definitely was insufficient for noticing visible behavioral changes.

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References

  1. American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, 5th edn. APA, Washington (2013)

    Book  Google Scholar 

  2. Baron-Cohen, S.: Autism—‘‘autos’’: literally, a total focus on the self? In: Feinberg, T.E., Keenan, J.P. (eds.) The Lost Self: Pathologies of the Brain and Identity, pp. 166–180. Oxford University Press, New York (2005)

    Chapter  Google Scholar 

  3. Wellman, M.H., Gross, D.: Theory of Mind and Conceptual Change. Child Dev. 72(3), 702–707 (2001)

    Article  PubMed  Google Scholar 

  4. Baron-Cohen, S., Leslie, A.M., Frith, U.: Does the autistic child have a “theory of mind?”. Cognition 21, 27–43 (1985)

    Article  Google Scholar 

  5. Baron-Cohen, S.: Theories of the autistic mind. Autism 21(2), 112–116 (2008)

    Google Scholar 

  6. Wimmer, H., Perner, J.: Beliefs about beliefs: representation and the constraining function of wrong beliefs of young children’s understanding of deception. Cognition 13, 103–128 (1983)

    Article  PubMed  Google Scholar 

  7. Howlin, P., Baron-Cohen, S., Hadwin, J.: Teaching Children with Autism to Mind Read: a Practical Guide for Teachers and Parents. Wiley, England (1999)

    Google Scholar 

  8. Flavell, J.H., Flavell, E.R., Green, F.L.: Young children’s knowledge about the apparent-real and pretend-real distinctions. Dev. Psychol. 23, 816–822 (1987)

    Article  Google Scholar 

  9. Harris, P.L.: Children and Emotion. Basil Blackwell, Oxford (1989)

    Google Scholar 

  10. Baron-Cohen, S., Leslie, M.A., Frith, U.: Mechanical, bechavioral and Intentional understanding of picture stories in autistic children. Br. J. Dev. Psychol. 4, 113–125 (1986)

    Article  Google Scholar 

  11. Leekam, R.S., Perner, J.: Does the autistic children have a metarepresentational deficit? Cognition 40, 203–218 (1991)

    Article  PubMed  Google Scholar 

  12. Perner, J., Frith, U., Leslie, M.A., Leekam, R.S.: Exploration of the autistic child’s theory of mind: knowledge, belief and communication. Child Dev. 60, 689–700 (1989)

    Article  Google Scholar 

  13. Reed, T., Peterson, C.: A comparative study of autistic subject’s performance at two levels of visual and cognitive perspective thinking. J. Autism Dev. Disord. 20(4), 555–567 (1990)

    Article  PubMed  Google Scholar 

  14. Swettenham, J.: Can children with autism be taught to understand false belief using computers? J. Child Psychol. Psychiatry 37(2), 157–165 (1996)

    Article  PubMed  Google Scholar 

  15. Swettenham, J., Baron-Cohen, S., Gomez, J.-C., Walsh, S.: What’s inside a person’s head? Conceiving of the mind as a camera helps children with autism develop an alternative theory of mind. Cognit. Neuropsychiatry 1, 73–88 (1996)

    Article  Google Scholar 

  16. Connect People Network. (2012). Database of sexuality and disability resources. https://www.academia.edu/2241679/Database_of_Sexuality_and_Disability_Resources. Accessed 10 Feb 2018

  17. Sullivan, A., Caterino, L.C.: Addressing the sexuality and sex education of individuals with Autism Spectrum Disorders. Educ. Treat. Child. 31(3), 381–394 (2008)

    Article  Google Scholar 

  18. Szollos, A.A., McCabe, M.P.: The sexuality of people with mild intellectual disability: perceptions of clients and caregivers. N. Z. J. DevelopmentalDisabil. 20, 205–222 (1995)

    Google Scholar 

  19. Wolfe, P.S., Blanchett, W.J.: Sex education for students with disabilities: an evaluation guide. Teach. Except. Child. 36, 46–51 (2003)

    Article  Google Scholar 

  20. Rogers, S.J.: Interventions that facilitate social interactions in children with autism. J. Autism Dev. Disord. 30(5), 399–409 (2000)

    Article  PubMed  Google Scholar 

  21. Leekam, S., Libby, S., Wing, L., Gould, J., Gillberg, C.: Comparison of ICD-10 and Gillberg’s criteria for Asperger syndrome. Autism 4, 11–28 (2000)

    Article  Google Scholar 

  22. Eaves, L.C., Ho, H.H.: Stability and change in cognitive and behavioral characteristics of autism through childhood. J. Autism Dev. Disabil. 26(5), 557–569 (1996)

    Article  Google Scholar 

  23. Henault, I.: Asperger’s Syndrome and Sexuality: from Adolescent Through Adulthood: Foreword by Tony Attwood. Jessica Kingsley Publishers, London (2006)

    Google Scholar 

  24. Tolman, L.D., McClelland, I.S.: Normative sexuality development in adolescence: a decade in review, 2000–2009. J. Res. Adolesc. 21(1), 242–255 (2011)

    Article  Google Scholar 

  25. Byers, E.S., Nichols, S., Voyer, D.S.: Challenging stereotypes: sexual functioning of single adults with high functioning autism spectrum disorder. J. Autism Dev. Disord. 43(11), 2617–2627 (2013)

    Article  PubMed  Google Scholar 

  26. Haracopos, D., Pedersen, L.: Sexuality and autism. A nationwide survey in Denmark. Unpublished manuscript (1992)

  27. Hellemans, H., Colson, K., Verbraeken, C., et al.: Sexual behavior in high-functioning male adolescents and young adults with autism spectrum disorders. J. Autism Dev. Disord. 37(2), 260–269 (2007)

    Article  PubMed  Google Scholar 

  28. Ousley, O., Mesibov, G.B.: Sexual attitudes and knowledge of high-functioning adolescents and adults with autism. J. Autism Dev. Disord. 21, 471–482 (1991)

    Article  PubMed  Google Scholar 

  29. Byers, E.S., Nichols, S., Voyer, S.D., Reilly, G.: Sexual well-being of a community sample of high-functioning adults on the autism spectrum who have been in a romantic relationship. J. Autism 17(4), 418–433 (2012)

    Article  Google Scholar 

  30. World Health Organization. (2006). Defining Sexual Health. www.who.int/reproductivehealth/topics/sexual_health/sh_definitions/en/. Accessed 5 Feb 2018

  31. Reynolds, К.: Sexuality and Severe Autism: a Practical Guide for Parents, Caregivers and Health Educators. Jessica Kingsley Publishers, London (2014)

    Google Scholar 

  32. Sicile-Kira, C.: Adolescents on the autism spectrum: a parent’s guide to the cognitive, social, physical and transition needs of teenagers with autism spectrum disorders: foreword by Temple Grandin. The Berkley Publishing Group, New York (2006)

    Google Scholar 

  33. Heighway, S., Webster, S.: S.T.A.R.S A social skills training guide for teaching assertiveness, relationship skills and sexual awareness. Future Horizons, New York (2008)

    Google Scholar 

  34. Hartman, D.: Sexuality and Relationship Education for Children and Adolescents with Autism Spectrum Disorders: a Professional’s Guide to Understanding, Preventing Issues, Supporting Sexuality and Responding to Inappropriate Behaviors. Jessica Kingsley Publishers, London (2014)

    Google Scholar 

  35. Wrobel, M.: Taking Care of Myself: a Healthy Hygiene, Puberty and Personal Curriculum for Young People with Autism. Future Horizons, New York (2003)

    Google Scholar 

  36. Hannah, A., Cutler, C., Johnston, M.: (undated). Relationships, sexual health and parenthood resources for young people with autism spectrum disorder. Learn. Teach. Scotl.

  37. Gray, C.: Social stories 101. Morn. News 10(1), 2–6 (1998)

    Google Scholar 

  38. Wing, L.: Social, behavioral, and cognitive characteristics: An epidemiological approach. In: Rutter, M., Schopler, E. (eds.) Autism: A Reappraisal of Concepts and Treatment, pp. 27–45. Plenum, New York (1978)

    Chapter  Google Scholar 

  39. Gray, C.: The New Social Story Book: 15th Anniversary Edition. Future Horizons, Arlington (2015)

    Google Scholar 

  40. Reynhout, G., Carter, M.: Social Stories for children with disabilities. J. Autism Dev. Disord. 36(4), 445–469 (2006)

    Article  PubMed  Google Scholar 

  41. Wolfe, P.S., Tarnai, B.: Using social stories for sexuality education for persons having autism/Pervasive Developmental Disorder. Sex. Disabil. 26, 29–36 (2008)

    Article  Google Scholar 

  42. Rashikj, O., Trajkovski, V.: Sex education of persons with disabilities. J. Spec. Educ. Rehabil. 10(1–2), 7–24 (2009)

    Google Scholar 

  43. Mladenovska, B., Trajkovski, V.: Opinions and attitudes of parents and students for sexual development, sexual behavior and gender identity of persons with autism in the Republic of Macedonia. J. Spec. Educ. Rehabil. 11(1–2), 7–24 (2010)

    Google Scholar 

  44. Mladenovska, B.: Sexual education program: Impact on the knowledge and attitudes of people with disabilities about sexuality. Master thesis. Faculty of Philosophy, Institute for Special Educationa and Rehabilitation, Skopje, (2014)

  45. Koller, R.: Sexuality and Adolescents with Autism. Sex. Disabil. 18(2), 125–135 (2000)

    Article  Google Scholar 

  46. Wolfe, P.S., Condo, B., Hardaway, E.: Sociosexual education for persons with autism spectrum disorders using principles od applied behavior analysis. Teach. Except. Child. 42(1), 50–61 (2009)

    Article  Google Scholar 

  47. Gutierrez, M.J.: Social Skills Training Targeting Inappropriate Sexual Behavior for Adolescents with Autism. Capstone Projects and Theses. California State University Monterey Bay, Paper 569 (2016)

  48. Preece, D., Trajkovski, V.: Parent education in autism spectrum disorder—a review of the literature. Hrvatska revija za rehabilitacijska istraživanja 53(1), 128–138 (2017)

    Article  Google Scholar 

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Acknowledgements

The authors would like to thank Susan Costen Owens Ph.D., independent researcher from Dallas in USA for her valuable advice on proofreading the article. We would like also to show our gratitude to the parents of the persons with ASD enrolled in our study for their generous contribution and involvement in the research process.

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Authors and Affiliations

  1. Primary School ‘Gjorche Petrov’, Skopje, Republic of North Macedonia

    Tanja Stankova

  2. Institute of Special Education and Rehabilitation, Ss. Cyril and Methodius University of Skopje, Skopje, Republic of North Macedonia

    Vladimir Trajkovski

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  1. Tanja Stankova
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  2. Vladimir Trajkovski
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Correspondence to Tanja Stankova.

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Stankova, T., Trajkovski, V. Sexual Education of Persons with Autistic Spectrum Disorders: Use of the Technique: ‘Social Stories. Sex Disabil 39, 377–393 (2021). https://doi.org/10.1007/s11195-020-09655-y

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  • DOI: https://doi.org/10.1007/s11195-020-09655-y

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