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Psychosocial Problems and Marital Adjustments of Families Caring for a Child with Intellectual Disability

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Abstract

Caring for a child with intellectual disability can often be stressful and can influence the inter- and intra-familial relationships of all family members throughout the child’s lifetime. This descriptive and comparative study was conducted to identify psychosocial problems and marital adjustments in families having a child with intellectual disability. One hundred and fifty parents whose children with intellectual disability attended the East Anatolia Special Education and Rehabilitation Center (Group 1), 140 parents whose children with intellectual disability were registered with the Handicapped Education and Cooperation Association but were not receiving special education and rehabilitation support (Group 2), and 150 parents with healthy children (Group 3) were participated in the study. The Problem Identification form, Beck Depression Inventory, Beck Anxiety Scale, Social Support Scale were applied to parents. Marital adjustments (compatibility and cooperation) of spouses were assessed using the Birtchnell Parent Evaluation Scale. Most of the parents in Groups 1 and 2 reported that they had psychological, physical and economic problems and that they had concerns about their children’s care and future. Parents in Group 2 had higher depression and anxiety scores and lower social support scores than those in Groups 1 and 3. Anxiety and depression levels in parents increased as their marital adjustments decreased. In summary, the data emphasize the importance of continuing provision of comprehensive education and rehabilitation support to parents who have a child with an intellectual disability, especially those who are economically challenged.

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References

  1. Yıldırım, F., Conk, Z.: Effects of planned education on coping ways of stress on depressive symptoms of parents who have mentally retarded child. Cumhuriyet Üniversitesi Hemşirelik Yüksekokulu Dergisi 9(2), 1–10 (2005)

    Google Scholar 

  2. Ozsoy-Altuğ, S., Ozkahraman, Ş., Callı, F.: Review of hardships undergone by families with mentally retarded children. Aile ve Toplum Ocak-Mart 3(9), 69–77 (2006)

    Google Scholar 

  3. Yıldırım-Sarı, H.: Family burden on families of children with intellectual disability. Cumhuriyet Üniversitesi Hemşirelik Yüksekokulu Dergisi 11(2), 1–7 (2007)

    Google Scholar 

  4. State Institute of Statistics: The Research of Handicapped Population of Turkey 2002. Turkey in Statistics, Ankara (2004)

    Google Scholar 

  5. Durmaz, A., Cankaya, T., Durmaz, B., et al.: Interview with parents of children with Down syndrome: their perceptions and feelings. Indian J. Pediatr. 78(6), 698–702 (2011)

    Article  PubMed  Google Scholar 

  6. Risdal, D., Singer, G.H.S.: Marital Adjustment in parents of children with disabilities: a historical review and meta-analysis. Res. Pract. Pers. Severe Disabil. 29(2), 95–103 (2004)

    Article  Google Scholar 

  7. Uguz, Ş., Toros, F., Yazgan Inanç, B., et al.: Assessment of anxiety, depression and stress levels of mothers of handicapped children. Klinik Psikiyatri 7, 42–47 (2004)

    Google Scholar 

  8. Brobst, J.B., Clopton, J.R., Hendrick, S.S.: Parenting children with autism spectrum disorders the couple’s relationship. Focus Autism Other Dev. Disabil. 24(1), 38–49 (2009)

    Article  Google Scholar 

  9. Huang, Y.T., Ososkie, J., Hsu, T.H.: Impact on marital and sibling relationships of Taiwanese families who have a child with a disability. J. Comp. Fam. Stud. 42(2), 213 (2011)

    Google Scholar 

  10. Sarısoy, M.: Otistik ve zihinsel Engelli Çocuğa Sahip Ebeveynlerin Evlilik Uyumları. Yayımlanmamış Yüksek Lisans Tezi, Ege Üniversitesi Sosyal Bilimler Enstitüsü, İzmir (2000)

    Google Scholar 

  11. Aylaz, R., Yılmaz, U., Polat, S.: Effect of difficulties experienced by parents of autistic children on their sexual life: a qualitative study. Sex. Disabil. (2012). doi:10.1007/s11195-011-9251-3

    Google Scholar 

  12. Bahar, A., Bahar, G., Savaş, H.A., et al.: Determining the ways of coping with stress with depression and anxiety levels of the mothers of children with intellectual disability. Fırat Sağlık Hizmetleri Dergisi 4(11), 97–112 (2009)

    Google Scholar 

  13. Eisenhower, A., Blacher, J.: A mutual-help project for families of handicapped children. J. Couns. Dev. 65(4), 213–215 (2004)

    Google Scholar 

  14. Farmer, J.E., Marien, W.E., Clark, M.J., et al.: Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs. J. Pediatr. Psychol. 29, 355–367 (2004)

    Article  PubMed  Google Scholar 

  15. Sen, E., Yurtsever, S.: Difficulties experienced by families with disabled children. JSPN 12(4), 238–250 (2007)

    PubMed  Google Scholar 

  16. Gönener, H.D., Güler, Y., Altay, B., et al.: Caring of a mental-impaired child at home and nursing approach. Gaziantep Tıp Dergisi 16(2), 57–65 (2010)

    Google Scholar 

  17. Palisano, R.J., Almarsi, N., Chiarello, L.A., et al.: Family needs of parents of children and youth with cerebral palsy. Child: Care Health Dev. 36(1), 85–92 (2009)

    Article  Google Scholar 

  18. Birtchnell, J.: The assessment of the marital relationship by questionnaire. Sex. Marital Ther. 3, 57–70 (1987)

    Article  Google Scholar 

  19. Kabakçı, E., Tuğrul, C., Oztan, N.: Birtcnell eşdeğerlendirme ölçeği: Geçerlik ve Güvenirlik Çalışması. Psikoloji Dergisi 8, 31–37 (1993)

    Google Scholar 

  20. Beck, A.T., Ward, C.H., Mendelson, M., et al.: An inventory for measuring depression. Arch. Gen. Psychiatry 4, 561–571 (1961)

    Article  PubMed  Google Scholar 

  21. Hisli, N.: Beck Depresyon envanterinin üniversite öğrencileri için geçerliği ve güvenirliği. Psikoloji Dergisi 7, 3–13 (1989)

    Google Scholar 

  22. Spielberg, C.D., Gorsuch, R.L., Lushene, R.E.: Manual for the State-Trait Anxiety Inventory. Consulting Psychologist Press, Palo Alto (1970)

    Google Scholar 

  23. Öner, N., Le Compte, A.: Durumluk-Sürekli Kaygı Envanteri Elkitabı. Boğaziçi Yayınları, Istanbul (1985)

    Google Scholar 

  24. Zimet, G.D., Dahlem, N.W., Zimet, S.G., et al.: The multidimensional scale of perceived social support. J. Pers. Assess. 52, 30–41 (1988)

    Article  Google Scholar 

  25. Eker, D., Arkar, H., Yaldız, H.: Çok boyutlu algılanan sosyal destek ölçeğinin gözden geçirilmiş formunun faktör yapısı geçerlik ve güvenirliği. Türk Psikiyatri Dergisi 12(1), 17–25 (2001)

    Google Scholar 

  26. Keskin, G., Bilge, A., Engin, E., et al.: The evaluation of anxiety, parental attitude and coping strategy in parents of children with mental retardation. Anatol. J. Psychiatry 11, 30–37 (2010)

    Google Scholar 

  27. Bilgin, S., Gozum, S.: Reducing burnout in mothers with an intellectually disabled child: an education programme. J. Adv. Nurs. 65(12), 2552–2561 (2009)

    Article  PubMed  Google Scholar 

  28. Aysan, F., Ozben, S.: An investigation of the variables related to the quality of life of parents of disabled children. Dokuz Eylül Üniversitesi Buca Eğitim Fakültesi Dergisi 22, 1–6 (2007)

    Google Scholar 

  29. Çoşkun, Y., Akkaş, G.: The relation which between anxiety level of the mothers who have disabled children and social support. Ahi Evran Üniversitesi Kırşehir Eğitim Fakültesi Dergisi (KEFAD) 10(1), 213–227 (2009)

    Google Scholar 

  30. Koçak Uyaroğlu, A., Bodur, S.: Anxiety of parents of children with intellectual disability and effects of informing on anxiety level. TAF Prev. Med. Bull. 8(5), 405–412 (2009)

    Google Scholar 

  31. Fırat, S., Diler, R.S., Avci, A., et al.: Comparison of psychopathology in the mothers of autistic and mentally retarded children. J. Korean Med. Sci. 17, 679–685 (2002)

    PubMed  Google Scholar 

  32. Stoneman, Z., Gavidia-Payne, S.: Marital adjustment in families of young children with disabilities: associations with daily hassles and problem-focused coping. Am. J. Ment. Retard. 111(1), 1–14 (2006)

    Article  PubMed  Google Scholar 

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Acknowledgments

The present work was supported by the Research Fund of Atatürk University, Project No.: BAP 316. We are grateful to all the parents of the intellectually disabled children who participated in our research. This study has been presented as a poster at the 1st International Congress on Nursing Education, Research & Practice, October 15–17 2009, Thessaloniki, Greece.

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Authors and Affiliations

  1. Department of Publich Health Nursing, Faculty of Health Sciences, Atatürk University, Erzurum, Turkey

    Dilek Kilic

  2. Kazım Karabekir School of Education Department, Atatürk University, Erzurum, Turkey

    Başaran Gencdogan

  3. Department of Psychiatric Nursing, Faculty of Health Sciences, Atatürk University, Erzurum, Turkey

    Beyhan Bag

  4. Department of Publich Health Nursing, Health Sciences Institute, Atatürk University, Erzurum, Turkey

    Derya Arıcan

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  1. Dilek Kilic
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  2. Başaran Gencdogan
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  3. Beyhan Bag
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  4. Derya Arıcan
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Correspondence to Dilek Kilic.

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Kilic, D., Gencdogan, B., Bag, B. et al. Psychosocial Problems and Marital Adjustments of Families Caring for a Child with Intellectual Disability. Sex Disabil 31, 287–296 (2013). https://doi.org/10.1007/s11195-013-9308-6

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  • DOI: https://doi.org/10.1007/s11195-013-9308-6

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