Abstract
The purpose of this paper is to analyze whether professionals who work with people with an upper limb deficiency (ULD) received questions about sexuality from their patients and whether they addressed sexuality themselves, and to analyze their knowledge and comfort level, approach and attitudes towards sexuality. An online questionnaire, including questions on self-perceived sexological competence and the Knowledge, Comfort, Approach and Attitudes towards Sexuality Scale (KCAASS) was used to asses these aspects. One out of three professionals had received a question about sexuality from their patients. Nearly one out of five professionals had addressed sexuality themselves. Professionals who received a question about sexuality from patients or addressed this issue themselves had significantly higher scores on self-perceived knowledge about sexuality and on self-perceived conversation skills compared to professionals who did not. The scores on the KCAASS Knowledge and Comfort of professionals who received a question about sexuality or addressed the issue of sexuality were significantly higher than those of professionals who did not. Sexuality is thus only scantly discussed by professionals working with patients with an ULD. Professionals indicated they do not feel confident nor comfortable enough to address this issue. They also experience a lack of appropriate knowledge to address sexuality with patients. Professionals reported a need for courses and training on both knowledge and conversation skills concerning sexuality. In addition, a protocol and necessary facilities need to be provided for the team working with people with an ULD in order to be able to address sexuality systematically.
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References
Geertzen, J.H.B., Rietman, J.S.: Amputation (Amputation). In: Gianotten, W.L., Meihuizen-de Regt, M.J., van Son-Schoones, N. (eds.) Seksualiteit bij ziekte en lichamelijke beperking (Sexuality in chronic disease and physical disability), pp. 262–269. van Gorcum, Assen (2008)
Rybarczyk, B., Belhel, J.: Limb loss and body image. In: Gallagher, P., Desmond, D., Maclachlan, M. (eds.) Psychoprosthetics, pp. 23–31. Springer, London (2008)
Saradjian, A., Thompson, A.R., Datta, D.: The experience of men using an upper limb prosthesis following amputation: positive coping and minimizing feeling different. Disabil. Rehabil. 30, 871–883 (2008)
Baumgartner, R.F.: Upper extremity amputation and prosthetics. J. Rehabil. Res. Dev. 38, vii–x (2001)
Geertzen, J.H., Van Es, C.G., Dijkstra, P.U.: Sexuality and amputation: a systematic literature review. Disabil. Rehabil. 31, 522–527 (2009)
Conine, T.A., Evans, J.H.: Sexual reactivation of chronically ill and disabled adults. J. Allied Health 11, 261–270 (1982)
Ide, M., Watanabe, T., Toyonaga, T.: Sexuality in persons with limb amputation. Prosthet. Orthot. Int. 26, 189–194 (2002)
Bodenheimer, C., Kerrigan, A.J., Garber, S.L., Monga, T.N.: Sexuality in persons with lower extremity amputations. Disabil. Rehabil. 22, 409–415 (2000)
Ide, M.: Sexuality in persons with limb amputation: a meaningful discussion of re-integration. Disabil. Rehabil. 26, 939–943 (2004)
Whipple, B.: The health benefits of sexual expression: Introduction. In: Tepper, M.S., Owens, A. (eds.) Love and Psychology: Sexual Health, vol. 1. Psychological Foundations, pp. 17–18. Praeger, Westport (2007)
Whipple, B., Knowles, J., Davis, J.: The health benefits of sexual expression. In: Tepper, M.S., Owens, A. (eds.) Love and Psychology: Sexual Health, vol. 1. Psychological Foundations, pp. 18–28. Praeger, Westport (2007)
Enzlin, P.: Seksualiteit, een plaatsbepaling (Sexuality, a position statement). In: Gianotten, W.L., Meihuizen-de Regt, M.J., van Son-Schoones, N. (eds.) Seksualiteit bij ziekte en lichamelijke beperking (Sexuality in chronic disease and physical disability), pp. 16–20. van Gorcum, Assen (2008)
Hordern, A.J., Street, A.F.: Let’s talk about sex: risky business for cancer and palliative care clinicians. Contemp. Nurse 27, 49–60 (2007)
McLaughlin, J., Cregan, A.: Sexuality in stroke care: a neglected quality of life issue in stroke rehabilitation? A pilot study. Sex. Disabil. 23, 213–226 (2005)
Kendall, M., Booth, S., Fronek, P., Miller, D., Geraghty, T.: The development of a scale to assess the training needs of professionals in providing sexuality rehabilitation following spinal cord injury. Sex. Disabil. 21, 49–64 (2003)
Alexander, M.S., Alexander, C.J.: Recommendations for discussing sexuality after spinal cord injury/dysfunction in children, adolescents, and adults. J. Spinal Cord Med. 30(Suppl 1), S65–S70 (2007)
Hill, E.K., Sandbo, S., Abramsohn, E., Makelarski, J., Wroblewski, K., Wenrich, E.R., McCoy, S., Temkin, S.M., Yamada, S.D., Lindau, S.T.: Assessing gynaecologic and breast cancer survivors’ sexual health care needs. Cancer 117, 2643–2651 (2011)
Hordern, A.J., Street, A.F.: Communicating about patient sexuality and intimacy after cancer: mismatched expectations and unmet needs. Med. J. Aust. 186, 224–227 (2007)
Jaarsma, T., Steinke, E.E., Gianotten, W.L.: Sexual problems in cardiac patients: how to assess, when to refer. J. Cardiovasc. Nurs. 25, 159–164 (2010)
Sahin, N.H., Ozcan, S., Yilmaz, S.D., Bilgic, D.: Attitudes and barriers of diabetes health care professionals on sexual health. Sex. Disabil. 29, 3–9 (2011)
Post, M.W.M., Gianotten, W.L., Heijnen, L., Lambers, E.J.H.R., Willems, M.: Sexological competence of different rehabilitation disciplines and effects of a discipline-specific sexological training. Sex. Disabil. 26, 3–14 (2008)
Fronek, P., Booth, S., Kendall, M., Miller, D., Geraghty, T.: The effectiveness of a sexuality training program for the interdisciplinary spinal cord injury rehabilitation team. Sex. Disabil. 23, 51–63 (2005)
Gamel, C., Hengeveld, M.W., Davis, B., Van der Tweel, I.: Factors that influence the provision of sexual health care by Dutch cancer nurses. Int. J. Nurs. Stud. 32, 301–314 (1995)
Haboubi, N.H.J., Lincoln, N.: Views of health professionals on discussing sexual issues with patients. Disabil. Rehabil. 25, 291–296 (2003)
Hoekstra, T., Lesman-Leegte, I., Couperus, M.F., Sanderman, R., Jaarsma, T.: What keeps nurses from the sexual counselling of patients with heart failure? Heart Lung 41, 492–499 (2012)
Taylor, B., Davis, S.: The extended PLISSIT model for addressing the sexual wellbeing of individuals with an acquired disability or chronic illness. Sex. Disabil. 25, 135–139 (2007)
Gianotten, W.L., Bender, J.L., Post, M.W., Höing, M.: Training in sexology for medical and paramedical professionals: a model for the rehabilitation setting. Sex. Relat. Ther. 21, 303–317 (2006)
Weijmar Schultz, W., Incrocci, L., Weijenborg, P., van de Wiel, H., Gianotten, W.L.: Ziekte, handicap en medische interventies (Disease, disability and medical interventions). In: Gijs, L., Gianotten, W.L., Vanwesenbeeck, I., Weijenborg, P. (eds.) Seksuologie (Sexology), pp. 533–559. Bohn Stafleu Van Loghum, Houten (2004)
Brotto, L.A., Kingsberg, S.A.: Sexual consequences of cancer survivorship. In: Levine, S.B., Risen, C.B., Althof, S.E. (eds.) Handbook of clinical sexuality for mental health professionals, pp. 329–347. Routledge, New York (2010)
Maurice, W.L., Yule, M.: Sex and chronic and severe mental illness. In: Levine, S.B., Risen, C.B., Althof, S.E. (eds.) Handbook of clinical sexuality for mental health professionals, pp. 469–481. Routledge, New York (2010)
Hanna, B.: Sexuality, body image, and self-esteem: the future after trauma. J. Trauma Nurs. 3, 13–17 (1996); quiz 19–20
Rieve, J.E.: Sexuality and the adult with acquired physical disability. Nurs. Clin. N. Am. 24, 265–276 (1989)
Shindel, A.W., Ando, K.A., Nelson, C.J., Breyer, B.N., Lue, T.F., Smith, J.F.: Medical student sexuality: how sexual experience and sexuality training impact US and Canadian medical students’ comfort in dealing with patients’ sexuality in clinical practice. Acad. Med. 85, 1321–1330 (2010)
Kazukauskas, K.A., Lam, C.S.: Disability and sexuality: knowledge, attitudes, and level of comfort among certified rehabilitation counsellors. Rehabil. Couns. Bull. 54, 15–25 (2010)
Fronek, P., Kendall, M., Booth, S., Eugarde, E., Geraghty, T.: A longitudinal study of sexuality training for the interdisciplinary rehabilitation team. Sex. Disabil. 29, 87–100 (2011)
Tsimtsiou, Z., Hatzimouratidis, K., Nakopoulou, E., Kyrana, E., Salpigidis, G., Hatzichristou, D.: Predictors for physicians’ involvement in addressing sexual health issues. J. Sex. Med. 3, 583 (2006)
Booth, S., Kendall, M., Fronek, P., Miller, D., Geraghty, T.: Training the interdisciplinary team in sexuality rehabilitation following spinal cord injury: a needs assessment. Sex. Disabil. 21, 249–261 (2003)
Acknowledgments
Data collection was facilitated by the Working committee ‘Amputation and Prosthetics of the Arm’ (WAP-A) of the Netherlands Society for Physical and Rehabilitation Medicine (Nederlandse Vereniging van Revalidatieartsen; VRA).
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Verschuren, J.E.A., Geertzen, J.H.B., Enzlin, P. et al. Addressing Sexuality as Standard Care in People with an Upper Limb Deficiency: Taboo or Necessary Topic?. Sex Disabil 31, 167–177 (2013). https://doi.org/10.1007/s11195-013-9298-4
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DOI: https://doi.org/10.1007/s11195-013-9298-4