Impact of autism in adolescents on parental quality of life

Abstract

Purpose

To study the impact of autism spectrum disorders (ASDs) on parental quality of life (QoL) at adolescence using the parental–developmental disorders-quality of life scale (Par–DD-QoL).

Methods

One hundred and fifty-two mothers of adolescents with ASD completed Par–DD-QoL. This scale assesses the following dimensions: emotional, daily disturbance and global QoL. This cross-sectional study uses a subset of data collected at the final time of a follow-up study (EpiTED cohort).

Results

A polytomic regression identified an increase in aberrant behavior scores as the major independent risk factor for parental QoL. The identified protective factors were the increase in daily living, communication and object cognition scores and a higher number of siblings.

Conclusions

Those results suggest that there is a negative effect of externalizing behaviors and a protective effect of adaptive skills, communication and object cognition on parental QoL. Study limitations and implications are discussed.

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Abbreviations

QoL:

Quality of life

ASD:

Autism spectrum disorders

Par–DD-QoL:

Parental–developmental disorders-quality of life

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Acknowledgments

This study was supported by a grant from the Orange Foundation and the PHRC 1997 and 2007. We are extremely grateful to all the teenagers and their families who took part in this study, and the whole EpiTED Team.

Conflict of interest

The authors have no conflict of interest to report.

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Correspondence to Amaria Baghdadli.

Additional information

Copyright Par–DD-QoL scale is adapted from Par–ENT-Qol, exclusive property of Pierre Fabre SA. The adaptation has been the subject of an agreement between Pierre Fabre Laboratories and the University Hospital of Montpellier who owns this form. The use of this adaptation must imperatively mention «Adapted from the questionnaire Par–ENT-QoL Exclusive property of PIERRE FABRE».

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Baghdadli, A., Pry, R., Michelon, C. et al. Impact of autism in adolescents on parental quality of life. Qual Life Res 23, 1859–1868 (2014). https://doi.org/10.1007/s11136-014-0635-6

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Keywords

  • Parental quality of life
  • Autism spectrum disorders
  • Risk factors
  • Adolescents
  • Cohort