Abstract
Purpose
The aim of this study was to describe the cultural adaptation, validity, and reliability of a Turkish version of the pediatric quality-of-life inventory (PedsQL) 3.0 Arthritis Module in a population with juvenile idiopathic arthritis (JIA).
Methods
A total of 169 patients with JIA and their parents were enrolled in the study. The Turkish version of the childhood health assessment questionnaire (CHAQ) was used to evaluate the validity of related domains in the PedsQL 3.0 Arthritis Module. Both the PedsQL 3.0 Arthritis Module and CHAQ were filled out by children over 8 years of age and by the parents of children 2–7 years of age.
Results
Internal reliability was poor to excellent (Cronbach’s alpha coefficients 0.56–0.84 for self-reporting and 0.63–0.82 for parent reporting), and interobserver reliability varied from good to excellent (intraclass correlation coefficient (ICC) 0.79–0.91 for self-reporting and 0.80–0.88 for parent reporting) for the total scores of the PedsQL 3.0 Arthritis Module. Parent–child concordance for all scores was moderate to excellent (ICC 0.42–0.92). The PedsQL 3.0 Arthritis Module and CHAQ were highly positively correlated, with coefficients from 0.21 to 0.76, indicating concurrent validity.
Conclusions
We demonstrated the reliability and validity of quality-of-life measurement using the Turkish version of the PedsQL 3.0 Arthritis Module in our sociocultural context. The PedsQL 3.0 Arthritis Module can be utilized as a tool for the evaluation of quality of life in patients with JIA aged 2–18 years.
Abbreviations
- HRQOL:
-
Health-related quality of life
- CAC:
-
Cultural adaptation committee
- CHAQ:
-
Childhood health assessment questionnaire
- ICC:
-
Intraclass correlation coefficient
- ILAR:
-
International League of Associations for Rheumatology
- JIA:
-
Juvenile idiopathic arthritis
- PedsQL:
-
Pediatric quality-of-life inventory
- SPSS:
-
Statistical package for social sciences
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Acknowledgments
We would like to thank Dr. J. W. Varni for permission to use the PedsQL 3.0 Arthritis Module. We are also grateful to all the children and their parents who participated in this study.
Conflict of interest
There was no conflict of interest with regard to the work.
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Tarakci, E., Baydogan, S.N., Kasapcopur, O. et al. Cross-cultural adaptation, reliability, and validity of the Turkish version of PedsQL 3.0 Arthritis Module: a quality-of-life measure for patients with juvenile idiopathic arthritis in Turkey. Qual Life Res 22, 531–536 (2013). https://doi.org/10.1007/s11136-012-0180-0
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DOI: https://doi.org/10.1007/s11136-012-0180-0