Quality of Life Research

, Volume 14, Issue 2, pp 373–386 | Cite as

Development and evaluation of an instrument to assess social difficulties in routine oncology practice

  • E. P. Wright
  • M. Kiely
  • C. Johnston
  • A. B. Smith
  • A. Cull
  • P. J. Selby
Article

Abstract

Purpose: To develop and preliminarily evaluate a Social Difficulties Inventory (SDI) for use in oncology practice. Methods: Item generation from patients (n=96), staff (n=49) and the literature. Questions constructed and pre-tested (n=42) resulting in a 22-item questionnaire. Psychometric evaluation (n=271) assessed frequency of endorsement, factor structure, summated scales and construct validity followed by randomisation to criterion validity or test-retest arms. Results: Items met preset frequency of endorsement criteria. Factor analysis revealed a four-factor structure, three clearly definable, (1) Physical ability, (2) Providing for the family and (3) Contact with others, explaining 45.8% variance. Summated scales developed from these demonstrated good reliability (Cronbach’s alpha > 0.7) and were used to test and confirmed construct validity. Several comparators from the Life Events and Difficulties Schedule (LEDS) and CAncer Rehabilitation Evaluation System Short Form (CARES-SF) tested criterion validity and majority agreements were moderate to good. Test–retest reliability was good with most kappa values > 0.6. One item was eliminated resulting in a 21-item questionnaire. Conclusion: The SDI is relevant and easy to understand. Initial psychometric evaluation was encouraging. Ongoing work to evaluate the clinical meaning and utility of the instrument and to examine the relationships between SDI scores and clinical outcomes will provide guidance about its usefulness as an assessment tool in routine oncology practice.

Keywords

Patient centred assessment Quality of life Social difficulties 

Abbreviations

SDI

Social Difficulties Inventory

QL

Quality of Life

EORTC QLQ-C30

European Organization for Research and Treatment of Cancer QLQ-C30

FACT-G

Functional Assessment of Cancer Therapy general measure

BIDS

Bath Information and Data Services

CARES

CAncer Rehabilitation Evaluation System

CARES-SF

CAncer Rehabilitation Evaluation System Short Form

FLIC

Functional Living Index-Cancer

LASA

Linear.Analogue.Self.Assessment

SPQ

Social Problem Questionnaire

LEDS

Life Events and Difficulties Schedule

HADS

Hospital Anxiety and Depression Scale

MHI-5

Mental Health Inventory 5

SPSS

Statistical Package for Social Sciences

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Copyright information

© Springer 2005

Authors and Affiliations

  • E. P. Wright
    • 1
  • M. Kiely
    • 1
  • C. Johnston
    • 1
  • A. B. Smith
    • 1
  • A. Cull
    • 2
  • P. J. Selby
    • 1
  1. 1.Cancer Research UK, Clinical Centre in LeedsSt James’s University HospitalLeedsUK
  2. 2.Cancer Research UK Medical Oncology UnitWestern General HospitalEdinburghUK

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