Skip to main content
Log in

Gender invariance of dignity in non-terminal elderly patients with chronic diseases: a multicentric study

  • Published:
Quality & Quantity Aims and scope Submit manuscript

Abstract

The Dignity construct, originally developed in end-of-life care, includes perceptions, cognitions and emotions related to the quality of being worthy of esteem or respect. The Patient Dignity Inventory is a self-report questionnaire developed to measure this construct. There is a lack of research on the construct in populations with chronic diseases, where Dignity may be expected to be impaired due to the associated changes in life. In addition, gender invariance of the construct has not been investigated yet. The current study investigated the single-dimension structure of the PDI in non-terminal elderly patients with different chronic diseases. A multicentric study at general hospitals included 421 elderly patients with chronic respiratory, renal or heart failure, stroke and oncological pathology in the initial phase of chemotherapeutic treatment. The dimensionality of the PDI was assessed by structural equation models and gender invariance by multigroup analysis. A single-dimension model optimized based on the Modification Indices showed excellent reliability and good fit. The inclusion of covariances between residuals of some items improved the model fit and suggested content overlap between some items which was interpreted considering the specific characteristics of chronic patients. The Dignity construct resulted invariant in relation to gender. Dignity in care appears to be an unitary construct also in chronic diseases. Future research should include also other types of chronicity and might assess further item fit through Item Response Theory analysis.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1

Similar content being viewed by others

References

  • Abdel-Kader, K., Unruh, M.L., Weisbord, S.D.: Symptom burden, depression, and quality of life in chronic and end-stage kidney disease. Clin. J. Am. Soc. Nephrol. 4, 1057–1064 (2009)

    Article  Google Scholar 

  • Albers, G., Pasman, H.R.W., Rurup, M.L., de Vet, H.C., Onwuteaka-Philipsen, B.D.: Analysis of the construct of dignity and content validity of the patient dignity inventory. Health Qual. Life Outcomes 45, 9 (2011)

    Google Scholar 

  • Baillie, L.: Mixed-sex wards and patient dignity: nurses’ and patients’ perspectives. Br. J. Nurs. 17, 1220–1225 (2008)

    Article  Google Scholar 

  • Bagheri, H., Yaghmaei, F., Ashktorab, T., Zayeri, F.: Relationship between illness-related worries and social dignity in patients with heart failure. Nurs. Ethics 25, 618–627 (2018)

    Article  Google Scholar 

  • Bentler, P.M.: Comparative fit indexes in structural models. Psychol. Bull. 107, 238–246 (1990)

    Article  Google Scholar 

  • Bentler, P.M., Bonett, D.G.: Significance tests and goodness of fit in the analysis of covariance structures. Psychol. Bull. 88, 588–606 (1980)

    Article  Google Scholar 

  • Boehmer, A., Audet, C.M., Blevins, M., Gebi, U.I., Wester, C.W., Vermund, S.H., Aliyu, M.H.: Patient and provider satisfaction with a comprehensive strategy to improve prevention of mother-to-child HIV transmission services in rural Nigeria. J. Acquir. Immune Defic. Syndr. 72, S117 (2016)

    Article  Google Scholar 

  • Borhani, F., Abbaszadeh, A., Moosavi, S.: Status of human dignity of adult patients admitted to hospitals of Tehran. J. Med. Ethics Hist. 7, 20 (2014)

    Google Scholar 

  • Byrne, B.M.: Structural equation modeling with AMOS, EQS, and LISREL: comparative approaches to testing for the factorial validity of a measuring instrument. Int. J. Test. 1, 55–86 (2001)

    Article  Google Scholar 

  • Carta, M.G., Patten, S., Nardi, A.E., Bhugra, D.: Mental health and chronic diseases: a challenge to be faced from a new perspective. Int. Rev. Psychiatry 29, 373–376 (2017)

    Article  Google Scholar 

  • Chochinov, H.M.: Dignity-conserving care-a new model for palliative care: helping the patient feel valued. JAMA 287, 2253–2260 (2000)

    Article  Google Scholar 

  • Chochinov, H.M.: Dignity and the eye of the beholder. J. Clin. Oncol. 22, 1336–1340 (2004)

    Article  Google Scholar 

  • Chochinov, H.M.: Dignity and the essence of medicine: the A, B, C and D of dignity conserving care. BMJ 335, 184–187 (2007)

    Article  Google Scholar 

  • Chochinov, H.M., Hack, T., McClement, S., Kristjanson, L., Harlos, M.: Dignity in the terminally ill: a developing empirical model. Soc. Sci. Med. 54, 433–443 (2002)

    Article  Google Scholar 

  • Chochinov, H.M., Hassard, T., McClement, S., Hack, T., Kristjanson, L.J., Harlos, M., Sinclair, S., Murray, A.: The patient dignity inventory: a novel way of measuring dignity-related distress in palliative care. J. Pain Symptom Manage. 36, 559–571 (2008)

    Article  Google Scholar 

  • Chochinov, H.M., Johnston, W., McClement, S.E., Hack, T.F., Dufault, B., Enns, M., Thompson, G., Harlos, M., Damant, R.W., Ramsey, C.D., Davison, S., Zacharias, J., Milke, D., Strang, D., Campbell-Enns, H.J., Kredentser, M.S.: Dignity and distress towards the end of life across four non-cancer populations. PLoS One 11, e0147607 (2016)

    Article  Google Scholar 

  • Coluccia, A., Fagiolini, A., Ferretti, F., Pozza, A., Costoloni, G., Bolognesi, S., Goracci, A.: Adult obsessive-compulsive disorder and quality of life outcomes: a systematic review and meta-analysis. Asian J. Psychiatry 22, 41–52 (2016)

    Article  Google Scholar 

  • Coluccia, A., Ferretti, F., Fagiolini, A., Pozza, A.: Psychometric properties and relations with coping and family strain of the Health Services and Caregiver Experience questionnaire (HSCE): an outcome measure of informal caregivers’ experience for inpatient care in Italy. BMC Health Serv. Res. 17, 494 (2017)

    Article  Google Scholar 

  • Denton, M., Prus, S., Walters, V.: Gender differences in health: a Canadian study of the psychosocial, structural and behavioural determinants of health. Soc. Sci. Med. 58, 2585–2600 (2004)

    Article  Google Scholar 

  • Di Lorenzo, R., Cabri, G., Carretti, E., Galli, G., Giambalvo, N., Rioli, G.: A preliminary study of patient dignity inventory validation among patients hospitalized in an acute psychiatric ward. Neuropsych. Dis. Treat. 13, 177–190 (2017)

    Article  Google Scholar 

  • Di Marco, F., Verga, M., Reggente, M., Casanova, F.M., Santus, P., Blasi, F., Centanni, S.: Anxiety and depression in COPD patients: the roles of gender and disease severity. Respir. Med. 100, 1767–1774 (2006)

    Article  Google Scholar 

  • Eriksen, B.O., Ingebretsen, O.C.: The progression of chronic kidney disease: a 10-year population-based study of the effects of gender and age. Kidney Int. 69, 375–382 (2006)

    Article  Google Scholar 

  • Fleischmann, M., Carr, E., Xue, B., Zaninotto, P., Stansfeld, S.A., Stafford, M., Head, J.: Changes in autonomy, job demands and working hours after diagnosis of chronic disease: a comparison of employed and self-employed older persons using the English Longitudinal Study of Ageing (ELSA). J. Epidemiol. Community Health 72, 1–7 (2018)

    Article  Google Scholar 

  • Ganzini, L., Nelson, H.D., Schmidt, T.A., Kraemer, D.F., Delorit, M.A., Lee, M.A.: Physicians’ experiences with the Oregon death with dignity act. N. Engl. J. Med. 342, 557–563 (2000)

    Article  Google Scholar 

  • Gore, J.M., Brophy, C.J., Greenstone, M.A.: How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 55, 1000–1006 (2000)

    Article  Google Scholar 

  • Grassi, L., Costantini, A., Caruso, R., Brunetti, S., Marchetti, P.: Dignity and psychosocial-related variables in advanced and non advanced cancer patients by using the patient dignity inventory-Italian version. J. Pain Symptom Manage. 53, 279–287 (2017)

    Article  Google Scholar 

  • Gueldner, S.H.: Preserving dignity and sense of worth in older adults. J. Gerontol. Nurs. 38, 55–56 (2012)

    Article  Google Scholar 

  • Guo, Q., Jacelon, C.S.: An integrative review of dignity in end-of-life care. Palliat. Med. 28, 931–940 (2014)

    Article  Google Scholar 

  • Hall, S., Chochinov, H., Harding, R., Murray, S., Richardson, A., Higginson, I.J.: A phase II randomised controlled trial assessing the feasibility, acceptability and potential effectiveness of dignity therapy for older people in care homes: study protocol. BMC Geriatr 9, 9 (2009)

    Article  Google Scholar 

  • Harries, M.: Dignity. Nurs. Older People 24, 12 (2012)

    Article  Google Scholar 

  • Hu, L.T., Bentler, P.M.: Cut-off criteria for fit indexes in covariance structure analysis: conventional criteria versus new alternatives. Struct. Equ. Modeling 6, 56–83 (1999)

    Article  Google Scholar 

  • Johnston, B., Lawton, S., McCaw, C., Law, E., Murray, J., Gibb, J., Pringle, J., Munro, G., Rodriguez, C.: Living well with dementia: enhancing dignity and quality of life, using a novel intervention, Dignity Therapy. Int. J. Older People Nurs. 11, 107–120 (2016)

    Article  Google Scholar 

  • Jöreskog, K., Sörbom, D.: LISREL 8: User’s Reference Guide. Scientific Software International Inc, Chicago (1996)

    Google Scholar 

  • Jöreskog, K., Sörbom, D., Du Toit, S., Du Toit, M.: LISREL 8: New Statistical Features. Scientific Software International, Lincolnwood (2000)

    Google Scholar 

  • Kitson, A.L., Dow, C., Calabrese, J.D., Locock, L., Athlin, Å.M.: Stroke survivors’ experiences of the fundamentals of care: a qualitative analysis. Int. J. Nurs. Stud. 50, 392–403 (2013)

    Article  Google Scholar 

  • Kline, P.: An Easy Guide to Factor Analysis. Routledge, Abingdon (1994)

    Google Scholar 

  • Loehlin, J.: Latent Variable models: An Introduction to Factor, Path and Structural Equation Analysis. Lawrence Erlbaum Associates Publishers, Mahwah (2004)

    Google Scholar 

  • Macklin, R.: Dignity is a useless concept: it means no more than respect for persons or their autonomy. BMJ 327, 1419–1420 (2003)

    Article  Google Scholar 

  • Magallares, A., Graffigna, G., Barello, S., Bonanomi, A., Lozza, E.: Spanish adaptation of the Patient Health Engagement scale (S. PHE-s) in patients with chronic diseases. Psicothema 29, 408–413 (2017)

    Google Scholar 

  • Murata, H.: Spiritual pain and its care in patients with terminal cancer: construction of a conceptual framework by philosophical approach. Palliat. Support. Care 1, 15–21 (2003)

    Article  Google Scholar 

  • Nunnally, J., Bernstein, I.: Psychometric Theory. McGraw-Hill, New York (1994)

    Google Scholar 

  • Orfila, F., Ferrer, M., Lamarca, R., Tebe, C., Domingo-Salvany, A., Alonso, J.: Gender differences in health-related quality of life among the elderly: the role of objective functional capacity and chronic conditions. Soc. Sci. Med. 63, 2367–2380 (2006)

    Article  Google Scholar 

  • Peate, I.: Dignity and geriatrics. Br. J. Hosp. Med. 73, 354 (2012)

    Article  Google Scholar 

  • Rafferty, K.A., Billig, A.K., Mosack, K.E.: Spirituality, religion, and health: the role of communication, appraisals, and coping for individuals living with chronic illness. J. Relig. Health 54, 1870–1885 (2015)

    Article  Google Scholar 

  • Redondo-Sendino, Á., Guallar-Castillón, P., Banegas, J.R., Rodríguez-Artalejo, F.: Gender differences in the utilization of health-care services among the older adult population of Spain. BMC Public Health 6, 155 (2006)

    Article  Google Scholar 

  • Remen, R.N.: The power of words: how the labels we give patients can limit their lives. West. J. Med. 175, 353–354 (2001)

    Article  Google Scholar 

  • Ripamonti, C.I., Buonaccorso, L., Maruelli, A., Bandieri, E., Pessi, M.A., Boldini, S., Primi, C., Miccinesi, G.: Patient dignity inventory (PDI) questionnaire: the validation study in Italian patients with solid and hematological cancers on active oncological treatments. Tumori 98, 491–500 (2012)

    Article  Google Scholar 

  • Rullán, M., Carvajal, A., Núñez-Córdoba, J.M., Martínez, M., Carrasco, J.M., García, I., Arantzamendi, M., Centeno, C.: Spanish version of the patient dignity inventory: translation and validation in patients with advanced cancer. J. Pain Symptom Manage. 50, 874–881 (2015)

    Article  Google Scholar 

  • Sautier, L.P., Vehling, S., Mehnert, A.: Assessment of patients’ dignity in cancer care: preliminary psychometrics of the German version of the Patient Dignity Inventory (PDI-G). J. Pain Symptom Manage. 47, 181–188 (2014)

    Article  Google Scholar 

  • Schram, M.T., Baan, C.A., Pouwer, F.: Depression and quality of life in patients with diabetes: a systematic review from the European depression in diabetes (EDID) research consortium. Curr. Diabetes Rev. 5, 112–119 (2009)

    Article  Google Scholar 

  • Solomon, B.K., Wilson, K.G., Henderson, P.R., Poulin, P.A., Kowal, J., McKim, D.A.: Loss of dignity in severe chronic obstructive pulmonary disease. J. Pain Symptom Manage. 51, 529–537 (2016)

    Article  Google Scholar 

  • Soni, R.K., Weisbord, S.D., Unruh, M.L.: Health-related quality of life outcomes in chronic kidney disease. Curr. Opin. Nephrol. Hypertens. 19, 153–159 (2010)

    Article  Google Scholar 

  • Steiger, J.H.: Structural model evaluation and modification. Multivar. Behav. Res. 25, 173–180 (1990)

    Article  Google Scholar 

  • Stevens, J.: Applied Multivariate Statistics for the Social Sciences. Lawrence Erlbaum Publishers, Mahwah (1996)

    Google Scholar 

  • Street, A.F., Kissane, D.W.: Constructions of dignity in end-of-life care. J. Palliat. Care 17, 93–101 (2001)

    Article  Google Scholar 

  • Thissen, D., Steinberg, L., Wainer, H.: Detection of differential item functioning using the parameters of item response models. In: Holland, P.W., Wainer, H. (eds.) differential item functioning, pp. 67–113. Lawrence Erlbaum Associates, Hillsdale (1993)

    Google Scholar 

  • Van Gennip, I.E., Pasman, H.R.W., Oosterveld-Vlug, M.G., Willems, D.L., Onwuteaka-Philipsen, B.D.: Dynamics in the sense of dignity over the course of illness: a longirudinal study into the perspective of serious ill patients. Int. J. Nurs. Stud. 52, 1694–1704 (2015)

    Article  Google Scholar 

  • Webster, C., Bryan, K.: Older people’s views of dignity and how it can be promoted in a hospital environment. J. Clin. Nurs. 18, 1784–1792 (2009)

    Article  Google Scholar 

  • Wheaton, B., Muthén, B., Alwin, D.F., Summers, G.F.: Assessing reliability and stability in panel models. In: Heise, D.R. (ed.) Sociological Methodology, pp. 84–136. Jossey-Bass, San Francisco (1977)

    Google Scholar 

  • WHO: Global Status Report on Non-communicable Diseases 2010. World Health Organization, Geneva (2011)

  • WHO: Noncommunicable Diseases (2016). http://www.who.int/topics/noncommunicable_diseases/en/. Accessed 13 Sept. 2018

  • Wilson, K.G., Curran, D., McPherson, C.J.: A burden to others: a common source of distress for the terminally ill. Cogn. Behav. Ther. 34, 115–123 (2005)

    Article  Google Scholar 

  • World Medical Association: World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects. JAMA 310, 2191–2194 (2013)

    Article  Google Scholar 

  • Wyld, M., Morton, R.L., Hayen, A., Howard, K., Webster, A.C.: A systematic review and meta-analysis of utility-based quality of life in chronic kidney disease treatments. PLOS Med. 9, e1001307 (2012)

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Andrea Pozza.

Additional information

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Ferretti, F., Pozza, A., Pallassini, M. et al. Gender invariance of dignity in non-terminal elderly patients with chronic diseases: a multicentric study. Qual Quant 53, 1645–1656 (2019). https://doi.org/10.1007/s11135-018-00831-z

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11135-018-00831-z

Keywords

Navigation