Arguments against the possible use of genetic test results in private health and life insurance predominantly refer to the problem of certain gene carriers failing to obtain affordable insurance cover. However, some moral intuitions speaking against this practice seem to be more fundamental than mere concerns about adverse distributional effects. In their perspective, the central ethical problem is not that some people might fail to get insurance cover because of their ‘bad genes’, but rather that some people would manage to get insurance cover because of their ‘good genes’. This paper tries to highlight the ethical background of these intuitions. Their guiding idea appears to be that, by pointing to his favourable test results, a customer might make an attempt to ‘sell his body’. The rationale of this concept is developed and its applicability to the case at issue is critically investigated. The aim is to clarify an essential objection against the use of genetic information in private insurance which has not yet been openly addressed in the academic debate of the topic.
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S.A. Anderson (2002) ArticleTitle‘Prostitution and Sexual Autonomy: Making Sense of the Prohibition of Prostitution’ Ethics 112 IssueID4 748–780 Occurrence Handle10.1086/339672
F. Breyer (2000) ‘Implikationen der Genetischen Diagnostik für Versicherungsmärkte’ C.R. Bartram J.P. Beckmann F. Breyer G.H. Fey C. Fonatsch B. Irrgang K.-M. Seel J. Taupitz F. Thiele (Eds) Humangenetische Diagnostik. Wissenschaftliche Grundlagen und gesellschaftliche Konsequenzen Springer Berlin, Heidelberg, New York 163–184
J. Burley (1999) ‘Bad Genetic Luck and Health Insurance’ J. Burley (Eds) The Genetic Revolution and Human Rights. The Oxford Amnesty Lectures 1998 Oxford Oxford University Press 54–60
R. Chadwick H. ten Have J. Husted M. Levitt T. McGleenan D. Shickle U. Wiesing (1998) ArticleTitle‘Genetic Screening and Ethics: European Perspectives’ Journal of Medicine and Philosophy 23 IssueID3 255–273 Occurrence Handle10.1076/jmep.184.108.40.20680 Occurrence Handle1:STN:280:DyaK1cvgsFGqtw%3D%3D Occurrence Handle9736188
M.J. Cherry (Eds) (1999) Persons and Their Bodies: Rights, Responsibilities, Relationships Kluwer Academic Publishers Dordrecht, Boston, London
Council of Europe: 2002, Additional Protocol to the Convention on Human Rights and Biomedicine, on Transplantation of Organs and Tissues of Human Origin, http://conventions.coe.int/Treaty/en/Treaties/Html/186.htm
Council of Europe: 2005, Additional Protocol to the Convention on Human Rights and Biomedicine, Concerning Biomedical Research, http://conventions.coe.int/Treaty/en/Treaties/Html/195.htm
Council of Europe, Committee of Experts: 2000, ‘Medical Examinations Preceding Employment and/or Private Insurance: A Proposal for European Guidelines’, European Journal of Health Law 7(2), 147–172
Council of Europe, Committee of Ministers: 1992, Recommendation No. R (92) 3 on Genetic Testing and Screening for Health Care Purposes, http://www1.umn.edu/humanrts/instree/coerecr92-3.html
Crosbie, D.: 2000, Protection of Genetic Information: An International Comparison. Report to the Human Genetics Commission, http://www.hgc.gov.uk/UploadDocs/DocPub/Document/international_regulations.pdf
Deutsches Referenzzentrum für Ethik in den Biowissenschaften (DRZE): 2001, Dossier. Postnatale prädiktive Gentests, Bonn: Deutsches Referenzzentrum für Ethik in den Biowissenschaften
European Group on Ethics in Science and New Technologies (EGE): 2003, Ethical Aspects of Genetic Testing in the Workplace, http://europa.eu.int/comm/european_group_ethics/docs/avis18EN.pdf
European Parliament: 1989, ‘Resolution on the Ethical and Legal Problems of Genetic Engineering (16 March 1989)’, Official Journal C 096 (17 April 1989), 165–171
European Society of Human Genetics (ESHG): 2000, Genetic Information and Testing in Insurance and Employment: Technical, Social and Ethical Issues. Recommendations of the European Society of Human Genetics, http://www.eshg.org/ESHGinsurancerec.pdf
S. Gevers (1993) ArticleTitle‘Use of Genetic Data, Employment and Insurance: An International Perspective’ Bioethics 7 IssueID2/3 126–134 Occurrence Handle11651525
H.A.M.J. ten Have Welie J.V.M. (Eds) (1998) Ownership of the Human Body. Philosophical Considerations of the Human Body and Its Parts in Healthcare Kluwer Academic Publishers Dordrecht, Boston, London
B. Heinrichs (2004) ArticleTitle‘Pecunia (non) olet? Bemerkungen zur Frage, ob man Eigentümer des eigenen Körpers ist und ob ein solches Eigentumsrecht zugleich ein Recht zur Kommerzialisierung impliziert’ Zeitschrift für medizinische Ethik 50 IssueID3 277–288
House of Commons, Select Committee on Science and Technology: 2001, Fifth Report. Genetics and Insurance, http://www.parliament.the-stationery-office.co.uk/pa/cm 200001/cmselect/cmsctech/174/17402.htm
K.L. Hudson K.H. Rothenberg L.B. Andrews M.J.E. Kahn F.L. Collins (1995) ArticleTitle‘Genetic Discrimination and Health Insurance: An Urgent Need for Reform’ Science 270 391–393 Occurrence Handle1:CAS:528:DyaK2MXovVeku7w%3D Occurrence Handle7569991
Human Genetics Advisory Commission (HGAC): 1997, The Implications of Genetic Testing for Insurance, in: DRZE 2001
Human Genetics Commission (HGC): 2001, ‘The Use of Genetic Information in Insurance: Interim Recommendations of the Human Genetics Commission’, Jahrbuch für Wissenschaft und Ethik 6, 463–467
Kant, I.: 1785, Grundlegung zur Metaphysik der Sitten, in: Werke, ed. by W. Weischedel, vol. 4. Darmstadt: Wissenschaftliche Buchgemeinschaft 1983
Kant, I.: 1797/98, Die Metaphysik der Sitten, in: Werke, ed. by W. Weischedel, vol. 4. Darmstadt: Wissenschaftliche Buchgemeinschaft 1983
N.E. Kass (1992) ArticleTitle‘Insurance for the Insurers. The Use of Genetic Tests’ Hastings Center Report 22 IssueID6 6–11 Occurrence Handle1:STN:280:ByyD2MzlvVE%3D Occurrence Handle1428853
Locke, J.: 1690, The Second Treatise of Government (An Essay Concerning the True Original, Extent, and End of Civil Government), T.P. Peardon (ed.). Upper Saddle River (New Jersey): Prentice Hall 1997
T. McGleenan U. Wiesing (2000) ArticleTitle‘Insurance and Genetics: European Policy Options’ European Journal of Health Law 7 IssueID4 367–385
Mill, J.S.: 1861/71, Utilitarianism. New York: Prometheus Books 1987
T.H. Murray (1992) ArticleTitle‘Genetics and the Moral Mission of␣Health Insurance’ Hastings Center Report 22 IssueID6 12–17 Occurrence Handle1:STN:280:ByyD2Mzlslc%3D Occurrence Handle1428841
National Institutes of Health-Department of Energy (NIH-DOE) Working Group on Ethical, Legal, and Social Implications of Human Genome Research: 1993, Genetic Information and Health Insurance: Report of the Task Force on Genetic Information and Insurance, http://www.genome.gov/10001750
National Reference Center for Bioethics Literature: 2004, Scope Note 22: Genetic Testing and Genetic Screening, http://www.georgetown.edu/research/nrcbl/publications/scopenotes/sn22.htm
W. Nowlan (2002) ArticleTitle‘A Rational View of Insurance and Genetic Discrimination’ Science 297 195–196 Occurrence Handle10.1126/science.1070987 Occurrence Handle1:CAS:528:DC%2BD38XlsVChurc%3D Occurrence Handle12114609
Nuffield Council on Bioethics: 1993, Genetic Screening. Ethical Issues, London: Nuffield Council on Bioethics
J. Taupitz (2001) ArticleTitle‘Die Biomedizin-Konvention und das Verbot der Verwendung genetischer Informationen für Versicherungszwecke’ Jahrbuch für Wissenschaft und Ethik 6 123–177
World Health Organization (WHO): 1998, Proposed International Guidelines on Ethical Issues in Medical Genetics and Genetic Services, http://www.who.int/genomics/publications/en/ethicalguidelines1998.pdf
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Hübner, D. Genetic Testing and Private Insurance – A Case of “Selling One’s Body”?. Med Health Care Philos 9, 43–55 (2006). https://doi.org/10.1007/s11019-005-7983-5
- genetic testing
- private insurance
- selling one’s body