Skip to main content
Log in

A Mixed Methods Approach of End-of-Life Care, Social Rites, and Bereavement Outcomes: A Transnational Perspective

  • Original Paper
  • Published:
Culture, Medicine, and Psychiatry Aims and scope Submit manuscript

Abstract

The current article focused on examining the potential benefits of the End-of-Life (EoL) informal caregiving, communication, and ritualistic behaviors in adaptation to the conjugal bereavement across two different cultural-background contexts: France and Togo, West Africa. The investigation adopted a transnational approach including a total of 235 bereaved spouses. Despite the variation in the length of time since death, no significant difference was found between the Togolese and French bereaved with respect to the level of complicated grief symptoms. However, the Togolese bereaved perceived a significant postloss growth, fostered by EoL communication with the dying and the performance of ritualistic behaviors. In the French sample, bereaved individuals who had experienced more intimate communication with their dying spouse reported a high level of postloss growth. Moreover, findings showed that EoL caregiving without ritualistic support or communication is associated with poor postbereavement outcomes. These findings suggest a clinical need to promote informal caregiving to the dying, communication with the dying, and ritualistic support during the process of dying as entangled components of EoL care.

Résumé

Dans cet article, nous avons examiné le potentiel effet positif de l’assistance au conjoint en fin de vie, de la communication avec lui et des actes rituels sur le processus d’adaptation à la perte. Adoptant une approche transculturelle comparative, l’étude a été menée en France et au Togo (Afrique de l’ouest), deux contextes culturels differents dans leur approche du mourir, à la mort et au deuil. Les deux échantillons ont inclu au total 235 conjoints endeuillés. Bien que les deux échantillons ne soient pas homognènes pour la période du deuil, aucune différence significative n’a été constatée quant au niveau des symptômes du deuil compliqué. Cependant, les endeuillés Togolais ont plus rapporté une croissance postdeuil perçue surtout lorsque le défunt meurt âgé. Cette croissance postdeuil est également favorisée par la communication en fin de vie avec le mourant et l’accomplissement des actes rituels en soutien à la phase d’agonie. Dans l’échantillon français, la croissance postdeuil est plus vécue par les endeuillés qui avaient eu des communications plus intimes avec leur conjoint mourant. Nos résultats ont clairement montré que l’assistance au mourant sans un soutien rituel ou sans communication avec lui constituait un facteur de risque associé à un processus de deuil difficile. Ces résultats suggèrent, sur le plan clinique, de promouvoir la communication avec le mourant, les actes rituels symboliques dans l’accompagnement de la fin de vie et en particulier dans l’assistance des proches au mourant.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

References

  • American Psychiatric Association (2013) Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: Author.

    Google Scholar 

  • Aries, Phillipe (1974) Western attitudes toward death. London: Johns Hopkins University Press.

    Google Scholar 

  • Aries, Phillipe (1981) The hour of our death. London: Allen Lane.

    Google Scholar 

  • Bacqué, Marie-Frédérique (2013) Parler du deuil pour éviter de parler de la mort? La société occidentale face aux changements démographiques et culturels du XXIème siècle [Speaking from bereavement instead of speaking from death? Western societies in front of demographic and cultural changes of the 21st century]. Annales Médico-psychologiques 171, 176-181.

    Google Scholar 

  • Bardin, Laurence (2003) L’analyse de contenu [Content Analysis] (10e ed). Paris: Presses Universitaires de France.

    Google Scholar 

  • Beach, Diane. L. (1995) Caregiver Discourse: Perceptions of Illness Related Dialogue. Hospice Journal 10(3): 13 – 25.

    Google Scholar 

  • Boerner, Kathrin and Schulz, Richard (2009) Caregiving, Bereavement and Complicated Grief. Bereavement Care 28(3):10-13. https://doi.org/10.1080/02682620903355382

    Article  Google Scholar 

  • Currier, Joseph M., Mallot, Jesse, Martinez, Tiffany E., Sandy, Charlotte, and Neimeyer, Robert A. (2013) Bereavement, Religion, and Posttraumatic Growth: A Matched Control Group Investigation. Psychology of Religion and Spirituality 5(2):69-77.

    Google Scholar 

  • Dassa, Kolou S., Soedje, Kokou. M., Kokou-Kpolou, Kossigan, and Gaba Dovi, Adama G. (2012) Veuvage traditionnel et travail de deuil chez les Ewé du Togo [Traditional Widowhood and Mourning Work at in Ewe Land (Togo)]. Annales africaines de Psychiatrie 1(1&2):87-97.

    Google Scholar 

  • Davis, Christopher G., Nolen-Hoeksema, Susan, and Larson, Judith (1998) Making Sense of Loss and Benefiting from the Experience: Two Construals of Meaning. Journal of Personality and Social Psychology 75:561–574.

    Google Scholar 

  • Djassoa, Gnansa 1988 Esquisse théorique des pratiques thérapeutiques chez les Nawdeba du Nord Togo. Contribution à l’étude psychologique de la médecine traditionnelle en Afrique Noire [Theoretical model of therapeutic practices among Nawdeba… Contribution to the psychological study of traditional medicine in Black Africa]. Thèse de doctorat de Psychologie, Université de Lomé.

  • Edmonds, Sarah, and Hooker, Karen (1992) Perceived Changes in Life Meaning Following Bereavement. Omega The Journal of Death and Dying 25:307-318.

    Google Scholar 

  • Eisenbruch, Maurice (1984a) Cross-cultural Aspects of Bereavement I: A Conceptual Framework for Comparative Analysis. Culture, Medicine and Psychiatry 8:283-309.

  • Eisenbruch, Maurice (1984b) Cross-cultural Aspects of Bereavement. II: Ethnic and Cultural Variations in the Development of Bereavement Practices. Culture, Medicine and Psychiatry 8:315 -347

  • Elias, Norbert (1985) The Loneliness of the Dying. Oxford: Blackwell.

    Google Scholar 

  • Gamino, Louis A., Sewell, Kenneth W., and Easterling, Larry W. (2000) Scott and White Grief Study–Phase 2: Toward an Adaptive Model of Grief. Death Studies 24(7):633-660.

    Google Scholar 

  • Glaser, Barney G., and Strauss, Anselm (1965) Awareness of Dying. Chicago: Aldine.

    Google Scholar 

  • Glaser, Barney G., and Strauss, Anselm (1968) Time for Dying. Chicago: Aldine.

    Google Scholar 

  • Gorer, Geoffrey (1965) Death, Grief and Mourning. New York: Doubleday.

    Google Scholar 

  • Gysels, Marjolein, Pell, Christopher, Straus, Lianne, and Pool, Robert (2011) End of Life Care in Sub-Saharan Africa: A Systematic Review of the Qualitative Literature. BMC Palliative Care 10(1):6.

    Google Scholar 

  • Hogan, N. S., and Schmidt, L. A. (2002) Testing the Grief to Personal Growth Model Using Structural Equation Modeling. Death Studies 26(8):615-634.

    Google Scholar 

  • K’delant, Pascaline 2010 Le trouble du deuil persistant chez la personne âgée: évaluation et étude des effets de la personnalité. [The persistent bereavement disorder in the elderly: assessment and study of the effects of personality]. University of Nancy: PhD thesis in psychology, unpublished document.

  • Keeley, Maureen P., and Yingling, Julie M. (2007) Final Conversations: Helping the Living and Dying Talk to Each Other. VanderWyk & Burnham: Acton

    Google Scholar 

  • Kellehear, Allan (2008) Dying as a Social Relationship: A Sociological Review of Debates on the Determination of Death. Social Science & Medicine 66:1533-1544.

    Google Scholar 

  • Kokou-Kpolou, Kossigan, Moukouta, Charlemagne S. Bacqué, Marie-Frédérique., Kpelly, Dzodzo E., and Baugnet, Lucy (2016) L’accompagnement du mourir et le deuil créateur dans le contexte de la perte du conjoint Quelques aspects transculturels [Accompaning the Dying and Grief Within the Framework of the Death of a Spouse: Transcultural Perspective]. Etudes sur la Mort 150(2): 135-149. https://doi.org/10.3917/eslm.150.0135

    Article  Google Scholar 

  • Kokou-Kpolou, Kossigan, Tremblay, Joël, Moukouta, Charlemagne S., and Baugnet, Lucy (2017) Unexpected Death, Religious Coping and Conjugal Bereavement Outcomes in Africa (Togo). Mental Health, Religion & Culture 20(8): 766-782. https://doi.org/10.1080/13674676.2017.1408578

    Article  Google Scholar 

  • Kramer, Diane (1997) How Women Relate to Terminally Ill Husbands and Their Subsequent Adjustment to Bereavement. Omega: Journal of Death and Dying 34: 93 – 106

    Google Scholar 

  • Kübler-Ross, Elisabeth (1969) On Death and Dying. New York: MacMillan.

    Google Scholar 

  • Kübler-Ross, Elisabeth (1975) Death: The Final Stage of Growth. New Jersey: Prentice Hall.

    Google Scholar 

  • Launay, Pauline (2016) Du “tabou de la mort” à l’accompagnement de fin de vie. La mise en scène du mourir dans une Unité de Soins Palliatifs française. [From the “Taboo of Death” to the End-of-Life Accompaniment. The Spatial Arrangement of Dying Process into a French Palliative Care Unit]. Anthropologie & Santé, https://doi.org/10.4000/anthropologiesante.2094

    Article  Google Scholar 

  • Lee, Rebekah, and Vaughan, Megan (2008) Death and Dying in the History of Africa Since 1800. Journal of African History 49:341-59. https://doi.org/10.1017/s002185370800395

    Article  Google Scholar 

  • Lövgren, Malin., Sveen, Josefin., Nyberg, Tommy., Eilegård Wallin, Alexandra., Prigerson, Holly G., Steineck, Gunnar, Kreicbergs, Ulrika (2018) Care at End of Life Influences Grief: A Nationwide Long-Term Follow-Up among Young Adults Who Lost a Brother or Sister to Childhood Cancer. Journal of Palliative Medicine 21(2):156–162

    Google Scholar 

  • McDonald Deborah D., Deloge Jo-Ann, Joslin Nicole, Petow Weny A, Severson Judith S, Votino Roberta, Shea Michael D, Drenga Jessica M. L, Brennan Mary T, Moran Andrea B, and Sigore, Enrico Del (2003) Communicating End-of-Life Preferences. Western Journal of Nursing Research 25: 652 – 666.

    Google Scholar 

  • Metzger Patricia L., and Matt J. Gray (2008) End-of-Life Communication and Adjustment: Pre-Loss Communication as a Predictor of Bereavement-Related Outcomes. Death Studies 32(4): 301-325, https://doi.org/10.1080/07481180801928923

    Article  Google Scholar 

  • Moon, Marilyn (2017) The Unprepared Caregiver. Gerontologist 57(1):26-31. https://doi.org/10.1093/geront/gnw080

    Article  Google Scholar 

  • M’Uzan, Michel De (1977) Le travail du trépas [The Work of Death]. Paris: Gallimard.

    Google Scholar 

  • Mwangi-Powell, Faith N., Powell, Richard A., and Harding, Richard (2013) Models of Delivering Palliative and End-of-Life Care in Sub-Saharan Africa: A Narrative Review of the Evidence. Current Opinion in Supportive & Palliative Care 7(2):223-228 https://doi.org/10.1097/spc.0b013e328360f835.

    Article  Google Scholar 

  • Pace C. James, and Mobley Tyree S. (2016) Rituals at End-of-Life. Nursing Clinics 51(3): 471 - 487

    Google Scholar 

  • Prigerson, Holly G., Maciejewski, Paul K., Reynolds III, Charles F., Bierhals, Andrew J., Newsom, Jason T., Fasiczka, Amy, Frank, Ellen, Doman, Jack, and Miller, Mark (1995) Inventory of Complicated Grief: A Scale to Measure Maladaptive Symptoms of Loss. Psychiatry Research 59:65‐79

    Google Scholar 

  • Rivière, Claude (1982) Deuil et veuvage chez les Evé du Togo [Mourning and Widowhood Among the Evé People of Togo]. Anthropos 77:461-474.

    Google Scholar 

  • Rosenblatt, Paul C. (2007) Grief: What we Have Learned from Cross Cultural Studies. In K. Doka (Ed.), Living with grief: Before and After the Death. Washington, DC: Hospice Foundation of America 123-136

    Google Scholar 

  • Sas, Corina, and Coman, Alina (2016) Designing Personal Grief Rituals: An Analysis of Symbolic Objects and Actions. Death Studies 40(9):558-569. https://doi.org/10.1080/07481187.2016.1188868

    Article  Google Scholar 

  • Schulz, Richard, Hebert, Randy, and Boerner, Kathrin (2008) Bereavement After Caregiving. Geriatrics 63(1):20-22.

    Google Scholar 

  • Shear, Katherine M., Simon, Naomi, Wall, Melanie, Zisook, Sidney, Neimeyer, Robert, Duan, Naihua, Reynolds III, Charles, Lebowitz, Barry, Sung, Sharon, Ghesquiere, Angela, Gorscak Bonnie, Clayton, Paula, Ito, Massaya, Nakajima, Satomi, Konishi, Takako, Melhem, Nadine, Meert, Kathleen, Schiff, Miriam, O’Connor, Mary-Frances, First, Michael, Sareen, Jitender, Bolton, James, Skritskaya Natalia, Mancini, Anthony D., and Keshaviah, Apama (2011) Complicated Grief and Related Bereavement Issues for DSM-5. Depression and Anxiety 28(2): 103-117.

    Google Scholar 

  • Taylor, Andrew, and Box, Margaret (1999) Multicultural Palliative Care Guidelines. South Australia: Eastwood.

    Google Scholar 

  • Tedeschi, Richard G., and Calhoun, Lawrence G. (1996) The Posttraumatic Growth Inventory: Measuring the Positive Legacy of Trauma. Journal of Traumatic Stress 9(3):455-471.

    Google Scholar 

  • Tedeschi, Richard G., and Calhoun, Lawrence G. (2004) Posttraumatic Growth: Conceptual Foundations and Empirical Evidence. Psychological lnquiry 15(1):1-18.

    Google Scholar 

  • Thomas, Louis-Vincent (1985) Rites de mort Pour la paix des vivants [Rites of Death. For the Peace of the Living]. Paris: Fayard

    Google Scholar 

  • Van Gennep, Arnold 1908/1969 The Rites of Passage. Chicago: University of Chicago Press.

  • Walter, Tony (2012) Why Different Countries Manage Death Differently: A Comparative Analysis of Modern Urban Societies. British Journal of Sociology 63(1):123-45

    Google Scholar 

  • World Health Organization (WHO) 2019 ICD-11 Prolonged Grief Disorder Criteria. WHO (https://icd.who.int/browse11/l-m/en#/http://id.who.int/icd/entity/1183832314).

  • Yamaguchi, Takashi, Maeda, Isseki, Hatano, Yutaka, Mori, Masanori, Shima, Yasuo, Tsuneto, Satoru, Kizawa Yoshiyuki, Morita, Tatsuya, Yamaguchi, Takuhiro, Aoyama, Maho, and Miyashita, Mitsunori (2017) Effects of End-of-Life Discussions on the Mental Health of Bereaved Family Members and Quality of Patient Death and Care. Journal of Pain and Symptom Management. 54(1):17-26, https://doi.org/10.1016/j.jpainsymman.2017.03.008

    Article  Google Scholar 

  • Ziegler, Jean (2008) Les vivants et la mort [The Living and The Death]. Paris: Seuil.

    Google Scholar 

Download references

Acknowledgements

The authors thank wholeheartedly all the participants of this study.

Funding

The author(s) received no financial support for the research, authorship, and/or publication of this article.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Cyrille Kossigan Kokou-Kpolou.

Ethics declarations

Conflict of interest

Cyrille Kossigan Kokou-Kpolou, Charlemagne S. Moukouta, Livia Sani, Sara-Emilie McIntee, Jude Mary Cénat, Atiyihwè Awesso, and Marie-Frédérique Bacqué declare that they have no conflict of interest.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Kokou-Kpolou, C.K., Moukouta, C.S., Sani, L. et al. A Mixed Methods Approach of End-of-Life Care, Social Rites, and Bereavement Outcomes: A Transnational Perspective. Cult Med Psychiatry 44, 501–523 (2020). https://doi.org/10.1007/s11013-020-09669-3

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11013-020-09669-3

Keywords

Mots-clés

Navigation