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Toward a Phenomenological Account of Embodied Subjectivity in Autism

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Abstract

Sensorimotor research is currently challenging the dominant understanding of autism as a deficit in the cognitive ability to ‘mindread’. This marks an emerging shift in autism research from a focus on the structure and processes of the mind to a focus on autistic behavior as grounded in the body. Contemporary researchers in sensorimotor differences in autism call for a reconciliation between the scientific understanding of autism and the first-person experience of autistic individuals. I argue that fulfilling this ambition requires a phenomenological understanding of the body as it presents itself in ordinary experience, namely as the subject of experience rather than a physical object. On this basis, I investigate how the phenomenology of Maurice Merleau-Ponty can be employed as a frame of understanding for bodily experience in autism. Through a phenomenological analysis of Tito Mukhopadhyay’s autobiographical work, How can I talk if my lips don’t move (2009), I illustrate the relevance and potential of phenomenological philosophy in autism research, arguing that this approach enables a deeper understanding of bodily and subjective experiences related to autism.

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Notes

  1. E.g. the theory of mind deficit hypothesis, weak central coherence theory and executive functioning theory.

  2. Research has traditionally depicted repetitive, stereotyped or self-stimulatory behaviors in autism from a behaviorist perspective as something to be eliminated or treated (Boyd, McDonough, and Bodfish 2012). However, recent research emphasizes the productive and positive value of these behaviors as ways of managing a chaotic and overwhelming environment (Sinha et al. 2014; Davidson 2010), as sources of pleasure, social engagement between autistics or even as cultural and artistic expression (Bakan 2014; Nolan and McBride 2015; Conn 2015).

References

  • Arnold, Laurence 2012 Autism, Its Relationship to Science and to People with the Condition. Autonomy, the Critical Journal of Interdisciplinary Autism Studies 1(1). http://www.larryarnold.net/Autonomy/index.php/autonomy/article/view/AR2.

  • Bakan, Michael B. 2014. “The Musicality of Stimming: Promoting Neurodiversity in the Ethnomusicology of Autism.” MUSICultures 41 (2): 133–61.

    Google Scholar 

  • Baron-Cohen, Simon. 1995. Mindblindness. An Essay on Autism and Theory of Mind. Cambridge, Massachusetts: The MIT Press.

    Google Scholar 

  • Baron-Cohen, Simon, Alan M Leslie, and Uta Frith. 1985. “Does the Autistic Child Have a ‘Theory of Mind’?” Cognition 21: 37–46.

    Article  Google Scholar 

  • Bates, Gordon. 2010. “Autism in Fiction and Autobiography.” Advances in Psychiatric Treatment 16: 47–52.

    Article  Google Scholar 

  • Biklen, Douglas. 1990. “Communication Unbound: Autism and Praxis.” Harvard Educational Review 60: 291–314.

    Article  Google Scholar 

  • Biklen, Douglas, Richard Attfield, Larry Bissonnette, Lucy Blackman, Jamie Burke, Alberto Frugone, Tito Rajarshi Mukhopadhyay, and Sue Rubin. 2005. Autism and the Myth of the Person Alone. New York, NY: NYU Press.

    Google Scholar 

  • Blackburn, Ros. 2000. “Within and Without Autism.” Good Autism Practice 1 (1): 2–8.

    Google Scholar 

  • Blakeslee, Sandra 2002 A Boy, a Mother And a Rare Map Of Autism’s World.” The New York Times. 2002. http://www.nytimes.com/2002/11/19/science/a-boy-a-mother-and-a-rare-map-of-autism-s-world.html.

  • Boldsen, Sofie 2016 A Phenomenology of the Autistic Body. The Relevance and Potential of Merleau-Ponty’s Phenomenology as Frame of Understanding in Autism Research. Roskilde University.

  • Boyd, Brian A., Stephen G. McDonough, and James W. Bodfish. 2012. “Evidence-Based Behavioral Interventions for Repetitive Behaviors in Autism.” Journal of Autism and Developmental Disorders 42 (6): 1236–48.

    Article  Google Scholar 

  • Brincker, Maria, and Elizabeth B Torres. 2013. “Noise from the Periphery in Autism.” Frontiers in Integrative Neuroscience 7: 34.

    Article  Google Scholar 

  • Conn, Carmel. 2015. “‘Sensory Highs’, ‘Vivid Rememberings’ and ‘Interactive Stimming’: Children’s Play Cultures and Experiences of Friendship in Autistic Autobiographies.” Disability & Society 30 (8): 1192–1206.

    Article  Google Scholar 

  • Crossley, Rosemary. 1992. “Getting the Words out II: Case Studies in Facilitated Communication Training.” Topics in Language Disorders 12 (4): 46–59.

    Article  Google Scholar 

  • Dant, Tim. 2015. “In Two Minds: Theory of Mind, Intersubjectivity, and Autism.” Theory & Psychology 25 (1): 45–62.

    Article  Google Scholar 

  • Davidson, Joyce. 2010. “‘It Cuts Both Ways’: A Relational Approach to Access and Accommodation for Autism.” Social Science & Medicine 70 (2): 305–12.

    Article  Google Scholar 

  • Jaegher, Hanne De. 2013. “Embodiment and Sense-Making in Autism.” Frontiers in Integrative Neuroscience 7: 15.

    Article  Google Scholar 

  • Donnellan, Anne M, David A Hill, and Martha R Leary. 2012. “Rethinking Autism: Implications of Sensory and Movement Differences for Understanding and Support.” Frontiers in Integrative Neuroscience 6: 124.

    Google Scholar 

  • Eastham, David. 1985. Understand: Fifty Memowriter Poems. Ottawa: Oliver Pate.

    Google Scholar 

  • Giorgi, Amedeo. 2009. The Descriptive Phenomenological Method in Psychology: A Modified Husserlian Approach. Pittsburgh, Pennsylvania: Duquesne University Press.

    Google Scholar 

  • Glenberg, Arthur M., Jessica K. Witt, and Janet Metcalfe. 2013. “From the Revolution to Embodiment: 25 Years of Cognitive Psychology.” Perspectives on Psychological Science 8 (5): 573–85.

    Article  Google Scholar 

  • Graby, Steve 2012 To Be or Not to Be Disabled: Autism, Disablement and Identity Politics. Presented at the “Theorizing Normalcy and the Mundane” Conference, University of Chester, Chester, 27th of June.

  • Grandin, Temple. 2006. Thinking in Pictures: And Other Reports from My Life with Autism. London: Bloomsbury Publishing Plc.

    Google Scholar 

  • Hacking, I. 2009. “Autistic Autobiography.” Philosophical Transactions of the Royal Society B: Biological Sciences 364: 1467–73.

    Article  Google Scholar 

  • Hale, Mary Jane Gray, and Charles Martel Hale. 1999. I Had No Means to Shout! Bloomington, IN: 1st Books.

    Google Scholar 

  • He, Jing, and Ejgil Jespersen. 2015. “The Embodied Nature of Autistic Learning: Implications for Physical Education.” Physical Culture and Sport. Studies and Research 65 (1): 63–73.

    Article  Google Scholar 

  • Huws, Jaci C., and Robert S.P. Jones. 2015. “‘I’m Really Glad This Is Developmental’: Autism and Social Comparisons—An Interpretative Phenomenological Analysis.” Autism 19: 84–90.

    Article  Google Scholar 

  • Kapp, Steven K. 2013. “Empathizing with Sensory and Movement Differences: Moving toward Sensitive Understanding of Autism.” Frontiers in Integrative Neuroscience 7: 38.

    Article  Google Scholar 

  • Kristensen, Stefan 2012 The Noisy World of the Flesh. Autism, the Feldenkrais Method and Merleau-Ponty’s Ontology. Presented September 20th at the 37th Annual Meeting: International Merleau-Ponty Circle, Fordham University, New York.

  • Lang, Russell, Amy Harbison Tostanoski, Jason Travers, and James Todd. 2014. “The Only Study Investigating the Rapid Prompting Method Has Serious Methodological Flaws but Data Suggest the Most Likely Outcome Is Prompt Dependency.” Evidence-Based Communication Assessment and Intervention 8 (1): 40–48.

    Article  Google Scholar 

  • Leary, Martha R, and David A Hill. 1996. “Moving on: Autism and Movement Disturbance.” Mental Retardation 34: 39–53.

    Google Scholar 

  • Leudar, Ivan, and Alan Costall. 2009. “Introduction: Against ‘Theory of Mind.’” In Against Theory of Mind, edited by Ivan Leudar and Alan Costall, 1–16. London: Palgrave Macmillan UK.

    Chapter  Google Scholar 

  • Merleau-Ponty, Maurice. 2012. Phenomenology of Perception. Translated by Donald A. Landes. Oxon-New York: Routledge.

    Google Scholar 

  • Milton, Damian. 2012. “On the Ontological Status of Autism: The ‘Double Empathy Problem.’” Disability & Society 27 (6): 883–87.

    Article  Google Scholar 

  • Milton, Damian 2014a Becoming Autistic: An Aut-Ethnography. Cutting Edge Psychiatry in Practice 4: 185–92.

  • Milton, Damian 2014b Embodied Sociality and the Conditioned Relativism of Dispositional Diversity. Autonomy, the Critical Journal of Interdisciplinary Autism Studies 1(3). http://www.larryarnold.net/Autonomy/index.php/autonomy/article/view/32.

  • Milton, Damian, Richard Mills, and Elizabeth Pellicano. 2012. “Ethics and Autism: Where Is the Autistic Voice? Commentary on Post et al.” Journal of Autism and Developmental Disorders 44 (10): 2650–51.

    Article  Google Scholar 

  • Milton, Damian, and Lyte Moon. 2012. “‘And That, Damian, Is What I Call Life-Changing’: Findings from an Action Research Project Involving Autistic Adults in an Online Sociology Study Group.” Good Autism Practice 13 (2): 32–39.

    Google Scholar 

  • Mukhopadhyay, Tito Rajarshi. 2011. How Can I Talk If My Lips Don’t Move: Inside My Autistic Mind. New York, NY: Arcade Publishing.

    Google Scholar 

  • Murray, Dinah, Mike Lesser, and Wendy Lawson. 2005. “Attention, Monotropism and the Diagnostic Criteria for Autism.” Autism 9 (2): 139–56.

    Article  Google Scholar 

  • Nazeer, Kamran. 2006. Send in the Idiots: Stories from the Other Side of Autism. London: Bloomsbury Publishing Plc.

    Google Scholar 

  • Newman, Claire, Andrew Cashin, and Cheryl D. Waters. 2010. “A Modified Hermeneutic Phenomenological Approach toward Individuals Who Have Autism.” Research in Nursing and Health 33 (3): 265–71.

    Google Scholar 

  • Nolan, Jason, and Melanie McBride. 2015. “Embodied Semiosis: Autistic ‘Stimming’ as Sensory Praxis.” In International Handbook of Semiotics, edited by Peter Pericles Trifonas, 1069–78. Dordrecht: Springer Netherlands.

    Chapter  Google Scholar 

  • Parnas, Josef, Paul Møller, Tilo Kircher, Jørgen Thalbitzer, Lennart Jansson, Peter Handest, and Dan Zahavi. 2005. “EASE: Examination of Anomalous Self-Experience.” Psychopathology 38 (5): 236–58.

    Article  Google Scholar 

  • Pellicano, Elizabeth, Adam Dinsmore, and Tony Charman 2013 A Future Made Together: Shaping Autism Research in the UK. London.

  • Rasmussen, Torben Hangaard unpublished The Lived World of the Autist: A Phenomenological Approach. The Society For Existential Phenomenology 1–18. http://www.livsverden.dk.

  • Robledo, Jodi, Anne M Donnellan, and Karen Strandt-Conroy. 2012. “An Exploration of Sensory and Movement Differences from the Perspective of Individuals with Autism.” Frontiers in Integrative Neuroscience 6: 107.

    Article  Google Scholar 

  • Rose, Irene 2005 Autistic Autobiography—Introducing the Field. In Proceedings of the Autism and Representation: Writing, Cognition, Disability Conference.

  • Rubin, S., D. Biklen, C. Kasa-Hendrickson, P. Kluth, D. N. Cardinal, and A. Broderick. 2001. “Independence, Participation, and the Meaning of Intellectual Ability.” Disability and Society 16 (3): 415–29.

    Article  Google Scholar 

  • Sass, Louis A., and Josef Parnas. 2003. “Schizophrenia, Consciousness, and the Self.” Schizophrenia Bulletin 29 (3): 427–44.

    Article  Google Scholar 

  • Schlosser, Ralf W., Susan Balandin, Bronwyn Hemsley, Teresa Iacono, Paul Probst, and Stephen von Tetzchner. 2014. “Facilitated Communication and Authorship: A Systematic Review.” Augmentative and Alternative Communication 30 (4): 359–68.

    Article  Google Scholar 

  • Schmicking, Daniel. 2010. “A Toolbox of Phenomenological Methods.” In Handbook of Phenomenology and Cognitive Science, edited by Daniel Schmicking and Shaun Gallagher, 35–55. Dordrecht: Springer Netherlands.

    Chapter  Google Scholar 

  • Sinha, Pawan, Margaret M. Kjelgaard, Tapan K. Gandhi, Kleovoulos Tsourides, Annie L. Cardinaux, Dimitrios Pantazis, Sidney P. Diamond, and Richard M. Held. 2014. “Autism as a Disorder of Prediction.” Proceedings of the National Academy of Sciences 111 (42): 15220–25.

    Article  Google Scholar 

  • Stawarska, Beata. 2006. “Mutual Gaze and Social Cognition.” Phenomenology and the Cognitive Sciences 5 (1): 17–30.

    Article  Google Scholar 

  • Terrill, Christopher (Producer), and Olivia Lichtenstein (Editor) 2000 Tito’s Story. England: BBC One London.

  • Torres, Elizabeth B, and Anne M Donnellan. 2015. “Editorial for Research Topic ‘Autism: The Movement Perspective.’” Frontiers in Integrative Neuroscience 9: 12.

    Google Scholar 

  • Wallis, Claudia 2006 Inside the Autistic Mind. TimeNew YorkAmerican Edition, 2006. http://content.time.com/time/magazine/article/0,9171,1191843,00.html.

  • Whyatt, Caroline, and Cathy Craig. 2013. “Sensory-Motor Problems in Autism.” Frontiers in Integrative Neuroscience 7: 51.

    Article  Google Scholar 

  • Willey, Liane Holliday. 1999. Pretending to Be Normal: Living with Asperger’s Syndrome (Autism Spectrum Disorder). London: Jessica Kingsley Publishers.

    Google Scholar 

  • Williams, Donna. 1992. Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl. London: Doubleday.

    Google Scholar 

  • Williams, Emma. 2004. “Who Really Needs a ‘Theory’ of Mind?: An Interpretative Phenomenological Analysis of the Autobiographical Writings of Ten High-Functioning Individuals with an Autism Spectrum Disorder.” Theory & Psychology 14 (5): 704–24.

    Article  Google Scholar 

  • Zahavi, Dan. 2005. Subjectiviy and Selfhood - Investigating the First Person Perspective. Cambridge, Massachusetts: The MIT Press.

    Google Scholar 

  • Zahavi, Dan, and Josef Parnas. 2003. “Conceptual Problems in Infantile Autism Research: Why Cognitive Science Needs Phenomenology.” Journal of Conciousness Studies 10 (9–10): 53–71.

    Google Scholar 

  • Zukauskas, Patricia Ribeiro, Nava Silton, and Francisco Baptista Assumpção. 2009. “Temporality and Asperger’s Syndrome.” Journal of Phenomenological Psychology 40: 85–106.

    Article  Google Scholar 

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Boldsen, S. Toward a Phenomenological Account of Embodied Subjectivity in Autism. Cult Med Psychiatry 42, 893–913 (2018). https://doi.org/10.1007/s11013-018-9590-y

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