Toward a Phenomenological Account of Embodied Subjectivity in Autism
Sensorimotor research is currently challenging the dominant understanding of autism as a deficit in the cognitive ability to ‘mindread’. This marks an emerging shift in autism research from a focus on the structure and processes of the mind to a focus on autistic behavior as grounded in the body. Contemporary researchers in sensorimotor differences in autism call for a reconciliation between the scientific understanding of autism and the first-person experience of autistic individuals. I argue that fulfilling this ambition requires a phenomenological understanding of the body as it presents itself in ordinary experience, namely as the subject of experience rather than a physical object. On this basis, I investigate how the phenomenology of Maurice Merleau-Ponty can be employed as a frame of understanding for bodily experience in autism. Through a phenomenological analysis of Tito Mukhopadhyay’s autobiographical work, How can I talk if my lips don’t move (2009), I illustrate the relevance and potential of phenomenological philosophy in autism research, arguing that this approach enables a deeper understanding of bodily and subjective experiences related to autism.
KeywordsAutism Phenomenology Embodied subjectivity Movement Perception Self-experience
Compliance with Ethical Standards
Conflict of interest
The author states that there is no conflict of interest.
- Arnold, Laurence 2012 Autism, Its Relationship to Science and to People with the Condition. Autonomy, the Critical Journal of Interdisciplinary Autism Studies 1(1). http://www.larryarnold.net/Autonomy/index.php/autonomy/article/view/AR2.
- Bakan, Michael B. 2014. “The Musicality of Stimming: Promoting Neurodiversity in the Ethnomusicology of Autism.” MUSICultures 41 (2): 133–61.Google Scholar
- Baron-Cohen, Simon. 1995. Mindblindness. An Essay on Autism and Theory of Mind. Cambridge, Massachusetts: The MIT Press.Google Scholar
- Biklen, Douglas, Richard Attfield, Larry Bissonnette, Lucy Blackman, Jamie Burke, Alberto Frugone, Tito Rajarshi Mukhopadhyay, and Sue Rubin. 2005. Autism and the Myth of the Person Alone. New York, NY: NYU Press.Google Scholar
- Blackburn, Ros. 2000. “Within and Without Autism.” Good Autism Practice 1 (1): 2–8.Google Scholar
- Blakeslee, Sandra 2002 A Boy, a Mother And a Rare Map Of Autism’s World.” The New York Times. 2002. http://www.nytimes.com/2002/11/19/science/a-boy-a-mother-and-a-rare-map-of-autism-s-world.html.
- Boldsen, Sofie 2016 A Phenomenology of the Autistic Body. The Relevance and Potential of Merleau-Ponty’s Phenomenology as Frame of Understanding in Autism Research. Roskilde University.Google Scholar
- Donnellan, Anne M, David A Hill, and Martha R Leary. 2012. “Rethinking Autism: Implications of Sensory and Movement Differences for Understanding and Support.” Frontiers in Integrative Neuroscience 6: 124.Google Scholar
- Eastham, David. 1985. Understand: Fifty Memowriter Poems. Ottawa: Oliver Pate.Google Scholar
- Giorgi, Amedeo. 2009. The Descriptive Phenomenological Method in Psychology: A Modified Husserlian Approach. Pittsburgh, Pennsylvania: Duquesne University Press.Google Scholar
- Graby, Steve 2012 To Be or Not to Be Disabled: Autism, Disablement and Identity Politics. Presented at the “Theorizing Normalcy and the Mundane” Conference, University of Chester, Chester, 27th of June.Google Scholar
- Grandin, Temple. 2006. Thinking in Pictures: And Other Reports from My Life with Autism. London: Bloomsbury Publishing Plc.Google Scholar
- Hale, Mary Jane Gray, and Charles Martel Hale. 1999. I Had No Means to Shout! Bloomington, IN: 1st Books.Google Scholar
- Kristensen, Stefan 2012 The Noisy World of the Flesh. Autism, the Feldenkrais Method and Merleau-Ponty’s Ontology. Presented September 20th at the 37th Annual Meeting: International Merleau-Ponty Circle, Fordham University, New York.Google Scholar
- Lang, Russell, Amy Harbison Tostanoski, Jason Travers, and James Todd. 2014. “The Only Study Investigating the Rapid Prompting Method Has Serious Methodological Flaws but Data Suggest the Most Likely Outcome Is Prompt Dependency.” Evidence-Based Communication Assessment and Intervention 8 (1): 40–48.CrossRefGoogle Scholar
- Leary, Martha R, and David A Hill. 1996. “Moving on: Autism and Movement Disturbance.” Mental Retardation 34: 39–53.Google Scholar
- Merleau-Ponty, Maurice. 2012. Phenomenology of Perception. Translated by Donald A. Landes. Oxon-New York: Routledge.Google Scholar
- Milton, Damian 2014a Becoming Autistic: An Aut-Ethnography. Cutting Edge Psychiatry in Practice 4: 185–92.Google Scholar
- Milton, Damian 2014b Embodied Sociality and the Conditioned Relativism of Dispositional Diversity. Autonomy, the Critical Journal of Interdisciplinary Autism Studies 1(3). http://www.larryarnold.net/Autonomy/index.php/autonomy/article/view/32.
- Milton, Damian, and Lyte Moon. 2012. “‘And That, Damian, Is What I Call Life-Changing’: Findings from an Action Research Project Involving Autistic Adults in an Online Sociology Study Group.” Good Autism Practice 13 (2): 32–39.Google Scholar
- Mukhopadhyay, Tito Rajarshi. 2011. How Can I Talk If My Lips Don’t Move: Inside My Autistic Mind. New York, NY: Arcade Publishing.Google Scholar
- Nazeer, Kamran. 2006. Send in the Idiots: Stories from the Other Side of Autism. London: Bloomsbury Publishing Plc.Google Scholar
- Newman, Claire, Andrew Cashin, and Cheryl D. Waters. 2010. “A Modified Hermeneutic Phenomenological Approach toward Individuals Who Have Autism.” Research in Nursing and Health 33 (3): 265–71.Google Scholar
- Pellicano, Elizabeth, Adam Dinsmore, and Tony Charman 2013 A Future Made Together: Shaping Autism Research in the UK. London.Google Scholar
- Rasmussen, Torben Hangaard unpublished The Lived World of the Autist: A Phenomenological Approach. The Society For Existential Phenomenology 1–18. http://www.livsverden.dk.
- Rose, Irene 2005 Autistic Autobiography—Introducing the Field. In Proceedings of the Autism and Representation: Writing, Cognition, Disability Conference.Google Scholar
- Terrill, Christopher (Producer), and Olivia Lichtenstein (Editor) 2000 Tito’s Story. England: BBC One London.Google Scholar
- Torres, Elizabeth B, and Anne M Donnellan. 2015. “Editorial for Research Topic ‘Autism: The Movement Perspective.’” Frontiers in Integrative Neuroscience 9: 12.Google Scholar
- Wallis, Claudia 2006 Inside the Autistic Mind. Time—New York—American Edition, 2006. http://content.time.com/time/magazine/article/0,9171,1191843,00.html.
- Willey, Liane Holliday. 1999. Pretending to Be Normal: Living with Asperger’s Syndrome (Autism Spectrum Disorder). London: Jessica Kingsley Publishers.Google Scholar
- Williams, Donna. 1992. Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl. London: Doubleday.Google Scholar
- Zahavi, Dan. 2005. Subjectiviy and Selfhood - Investigating the First Person Perspective. Cambridge, Massachusetts: The MIT Press.Google Scholar
- Zahavi, Dan, and Josef Parnas. 2003. “Conceptual Problems in Infantile Autism Research: Why Cognitive Science Needs Phenomenology.” Journal of Conciousness Studies 10 (9–10): 53–71.Google Scholar