Skip to main content
Log in

Prevalence of Births and Interactions with Child Protective Services of Children Born to Mothers Diagnosed with an Intellectual and/or Developmental Disability

  • Published:
Maternal and Child Health Journal Aims and scope Submit manuscript

Abstract

Objectives

Concerns have been raised that parents with intellectual and/or developmental disabilities (IDD) interact with child protective services (CPS) at disproportionate rates than the general population as a result of bias and discrimination. However, there has been little empirical evidence to ascertain if these concerns are grounded. This study’s objectives were to identify (a) the prevalence and sociodemographic characteristics of children born to mothers diagnosed with IDD diagnoses, (b) how many of these children interact with CPS (reports and removals) and (c) when these CPS interactions are occurring.

Methods

The dataset was comprised of linked administrative birth, hospital discharge, and CPS records for all children born in one U.S. state between 1999 and 2013 (N = 1,271,419). CPS records were available through the first quarter of 2018 and CPS reports and removals at the child’s first and fourth birthdays were identified. We conducted chi-square tests and multivariate survival Cox regression models.

Results

A total of 567 children were identified as born to mothers with IDD diagnoses, which is 4.5 per 10,000 births. Of these children, 21.7% were the subject of a CPS report within 1 year and 35.8% within 4 years. In terms of removals, 6.5% experienced removals by 1 year and 8.6% by 4 years.

Conclusions for Practice

This study provides population-based knowledge about how and when the children born to mothers diagnosed with IDD interact with CPS. These children have higher rates of CPS interactions than the general population, but these rates are not as high as previously reported.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

References

  • Azar, S., & Read, K. (2009). Parental cognitive disabilities and child protection services: The need for human capacity building. The Journal of Sociology & Social Welfare, 36(4), 127.

    Google Scholar 

  • Azar, S. T., Robinson, L. R., & Proctor, S. N. (2012). Chronic neglect and services without borders: A guiding model for social service enhancement to address the needs of parents with intellectual disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5(2), 130–156. https://doi.org/10.1080/19315864.2011.592238.

    Article  PubMed  PubMed Central  Google Scholar 

  • Azar, S. T., Stevenson, M. T., & Johnson, D. R. (2012). Intellectual disabilities and neglectful parenting: Preliminary findings on the role of cognition in parenting risk. Journal of Mental Health Research in Intellectual Disabilities, 5(2), 94–129.

    Article  Google Scholar 

  • Callow, E., Buckland, K., & Jones, S. (2011). Parents with disabilities in the United States: Prevalence, perspectives, and a proposal for legislative change to protect the right to family in the disability community. Texas Journal on Civil Liberties & Civil Rights, 17(1), 9–41.

    Google Scholar 

  • Chang, Y., Lin, J., Tung, H., Chiang, P., & Hsu, S. (2014). Outpatient physical therapy utilization for children and adolescents with intellectual disabilities in Taiwan: A population-based nationwide study. Research in Developmental Disabilities, 35(2), 498–505. https://doi.org/10.1016/j.ridd.2013.12.001.

    Article  PubMed  Google Scholar 

  • Dezelar, S., & Lightfoot, E. (2018). Use of parental disability as a removal reason for children in foster care in the U.S. Children and Youth Services Review, 86, 128–134. https://doi.org/10.1016/j.childyouth.2018.01.027.

    Article  Google Scholar 

  • Gelles, R. J. (2020). The child protection system. In J. G. Dwyer (Ed.), The oxford handbook of children and the law. New York: Oxford University Press.

    Google Scholar 

  • Herman, A., McCarthy, B., Bakewell, J., Ward, R., Mueller, B., Maconochie, N., Read, A., Zadka, P., & Skjaerven, R. (1997). Data linkage methods used in maternally‐linked birth and infant death surveillance data sets from the United States (Georgia, Missouri, Utah and Washington State), Israel, Norway, Scotland and Western Australia. Paediatric and Perinatal Epidemiology, 11(S1), 5–22. https://doi.org/10.1046/j.1365-3016.11.s1.11.x.

  • Horner-Johnson, W., Biel, F., Darney, B., & Caughey, A. (2017). Time trends in births and cesarean deliveries among women with disabilities. Disability and Health Journal, 10(3), 376–381. https://doi.org/10.1016/j.dhjo.2017.02.009.

    Article  PubMed  PubMed Central  Google Scholar 

  • Kancherla, V., Amendah, D. D., Grosse, S. D., Yeargin-Allsopp, M., & Van Naarden Braun, K. (2012). Medical expenditures attributable to cerebral palsy and intellectual disability among Medicaid-enrolled children. Research in Developmental Disabilities: A Multidisciplinary Journal, 33(3), 832–840.

    Article  Google Scholar 

  • Laliberte, T., Piescher, K., Mickelson, N., & Lee, M. (2017). Child protection services and parents with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 30(3), 521–532. https://doi.org/10.1111/jar.12323.

    Article  PubMed  Google Scholar 

  • Lightfoot, E., & DeZelar, S. (2016). The experiences and outcomes of children in foster care who were removed because of a parental disability. Children and Youth Services Review, 62, 22–28. https://doi.org/10.1016/j.childyouth.2015.11.029.

    Article  Google Scholar 

  • Lightfoot, E., Hill, K., & LaLiberte, T. (2010). The inclusion of disability as a condition for termination of parental rights. Child Abuse & Neglect, 34(12), 927–934. https://doi.org/10.1016/j.chiabu.2010.07.001.

    Article  Google Scholar 

  • Lightfoot, E., LaLiberte, T., & Cho, M. (2017). A case record review of termination of parental rights cases involving parents with a disability. Children and Youth Services Review, 79, 399–407. https://doi.org/10.1016/j.childyouth.2017.06.037.

    Article  Google Scholar 

  • Lightfoot, E., & Slayter, E. (2014). Disentangling over-representation of parents with disabilities in the child welfare system: Exploring child maltreatment risk factors of parents with disabilities. Children and Youth Services Review, 47, 283–290. https://doi.org/10.1016/j.childyouth.2014.10.001.

    Article  Google Scholar 

  • Llewellyn, G., & Hindmarsh, G. (2015). Parents with intellectual disability in a population context. Current Developmental Disorders Reports, 2(2), 119–126. https://doi.org/10.1007/s40474-015-0042-x.

    Article  PubMed  PubMed Central  Google Scholar 

  • Llewellyn, G., McConnell, D., & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse & Neglect, 27(3), 235–251. https://doi.org/10.1016/S0145-2134(03)00004-8.

    Article  Google Scholar 

  • McConnell, D., & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 297–317.

    Article  Google Scholar 

  • Mitra, M., Parish, S., Akobirshoev, I., Rosenthal, E., & Moore Simas, T. (2018). Postpartum hospital utilization among Massachusetts women with intellectual and developmental disabilities: A retrospective cohort study. Maternal and Child Health Journal, 22(10), 1492–1501. https://doi.org/10.1007/s10995-018-2546-6.

    Article  PubMed  PubMed Central  Google Scholar 

  • National Council on Disability. (2012). Rocking the cradle: Ensuring the rights of parents with disabilities and their children. Retrieved June 14, 2018 from https://www.ncd.gov/publications/2012/Sep272012

  • Parish, S. L., Mitra, M., Son, E., Bonardi, A., Swoboda, P. T., & Igdalsky, L. (2015). Pregnancy outcomes among US women with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 120(5), 433–443. https://doi.org/10.1352/1944-7558-120.5.433.

    Article  PubMed  Google Scholar 

  • Parrish, J., Young, M., Perham-Hester, K., & Gessner, B. (2011). Identifying risk factors for child maltreatment in Alaska. American Journal of Preventive Medicine, 40(6), 666–673. https://doi.org/10.1016/j.amepre.2011.02.022.

    Article  PubMed  Google Scholar 

  • Putnam-Hornstein, E., & Needell, B. (2011). Predictors of child protective service contact between birth and age five: An examination of California’s 2002 birth cohort. Children and Youth Services Review, 33(8), 1337–1344.

    Article  Google Scholar 

  • R Core Team (2017). R: A language and environment for statistical computing. R Foundation for Statistical Computing, Vienna, Austria. https://www.R-project.org/.

  • Singer, J., & Willett, J. (2003). Applied longitudinal data analysis: Modeling change and event occurrence. New York: Oxford University Press.

    Book  Google Scholar 

  • Slayter, E. M., & Jensen, J. (2019). Parents with intellectual disabilities in the child protection system. Children and Youth Services Review, 98, 297–304. https://doi.org/10.1016/j.childyouth.2019.01.013.

    Article  Google Scholar 

  • U.S. Department of Health & Human Services, Administration for Children and Families, Administration on Children, Youth and Families, Children’s Bureau. (2015). Child maltreatment 2013. https://www.acf.hhs.gov/cb/research-data-technology/statistics-research/child-maltreatment.

  • U.S. Department of Health & Human Services, Administration for Children and Families, Administration on Children, Youth and Families, Children’s Bureau. (2020). Child maltreatment 2018. https://www.acf.hhs.gov/cb/research-data-technology/statistics-research/child-maltreatment.

  • Wilson, S., McKenzie, K., Quayle, E., & Murray, G. (2014). A systematic review of interventions to promote social support and parenting skills in parents with an intellectual disability. Child: Care, Health and Development, 40(1), 7–19.

    CAS  Google Scholar 

Download references

Acknowledgements

This work was supported by the Washington State ArcTrust Fund, Steve and Connie Ballmer Family Giving, Casey Family Programs, and the Stuart Foundation. Partial support for this research came from a Eunice Kennedy Shriver National Institute of Child Health and Human Development research infrastructure Grant, P2C HD042828, to the Center for Studies in Demography & Ecology at the University of Washington.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Rebecca Rebbe.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Rebbe, R., Brown, S.E., Matter, R.A. et al. Prevalence of Births and Interactions with Child Protective Services of Children Born to Mothers Diagnosed with an Intellectual and/or Developmental Disability. Matern Child Health J 25, 626–634 (2021). https://doi.org/10.1007/s10995-020-03105-z

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10995-020-03105-z

Keywords

Navigation