The Early Hearing Detection and Intervention (EHDI) system has three principal components designed to, “maximize language and communication competence, literacy development, and psychosocial well-being for children who are deaf or hard of hearing” (Joint Committee on Infant Hearing [JCIH] 2019, p. 3). These components or phases are designed to ensure infants are identified as early as possible in order to implement protocols and services with the goal of ensuring developmentally appropriate outcomes related to language and communication (JCIH 2019; National Center for Hearing Assessment and Management [NCHAM] 2019).
EHDI: Hearing Screening
Historically, the challenges and delays experienced by deaf children came from being identified late leading to missed opportunities for early intervention services to help with language acquisition (Hall et al. 2019). To address this issue, states began implementing mandatory newborn screening. As of 2019, 43 states have some form of legislation regarding Universal Newborn Hearing Screening (NCHAM 2019). However, the term ‘universal’ is a bit of a misnomer as only 28 of these 43 states require every newborn to be screened, and only 29 out of the 43 states are required to report newborn screening results to their state’s Department of Health (NCHAM 2019). Although numbers would indicate that the majority of babies seem to be screened, this statistical majority comes from a small group of states.
Screening of newborns’ hearing levels result in one of two options; pass (no identified hearing differences) or refer with explanationFootnote 4 (a failed hearing screening resulting in a referral to an audiologist for further testing and potential identification). In 2017, the prevalence was 1.7 identified babies for every 1000 babies screened (Centers for Disease Control and Prevention [CDC] 2017). Families that do not follow-up on referrals, receive services, and/or appear in EHDI tracking systems are labeled as loss to follow-up and/or loss of documentation (LFU/LTD). In 2017, 18.4% of all families screened in the United States and its territories were labeled as LFU/LTD (CDC 2017). These infants and their families need to become the focus on additional tracking for identification to increase positive child outcomes. Then after identification, the next step is enrolling the family and deaf child in early intervention services.
EHDI: Early Intervention
In 2017, it was reported that only 65.1% of identified children were enrolled in early intervention services (CDC 2017). This lack of enrollment compounded with the 18.4% of LFU/LTD children (CDC 2017) is a sizable gap in the EHDI system with ripple effects typically manifesting in K-12. The EHDI system is only successful if families and deaf children are able to locate, access, and utilize its services to the fullest extent possible.
Early intervention services are additionally important because 96% of deaf children are born to hearing parents (Mitchell and Karchmer 2004), who frequently have not met a deaf individual prior to their child’s identification. The goal(s) during early intervention typically center around speech, hearing, and/or language development (NCHAM 2019). Instead, we propose that optimal early intervention protocols should use a social model approach to disability in which the child is not seen as something to be ‘fixed.’ Protocols should utilize a strengths-based approach.
The Illusion of Neutrality
In theory, EHDI for deaf children is believed to remain neutral as far as providing balanced options with all communication approaches (Global Coalition of Parents of Deaf/Hard of Hearing Children [GCPDHHC] 2010). In reality, with the multiple communication approaches and the epistemology of professionals making recommendations, bias influences the system. The continued observation of gaps in language acquisition points to the inconsistencies that exist between research and practice. In practice, EHDI systems tend to largely focus on the listening and speaking modalities for language development (Greene-Woods 2020; Hamilton and Clark 2020). This practice, rather than supporting bilingualism, does not encourage including sign language due to the belief that it is detrimental to listening and speaking skills (Harmon 2013). The GCPDHHC (2010) position statement shows only “50.9% of families were given “complete and balanced information about all communication options” (p. 5). This data shows that there is no true balance as the field tends to align with the generally-dominant communication approach preferences, which simultaneously encourages spoken language acquisition and discourages sign language acquisition (Delgado 2020; Hall et al. 2019).
The use of sign language at the earliest suggestion of the possibility of being deaf is an efficacious choice for all families, regardless of their preference for modality, as research shows that the use of sign language in infancy stimulates and supports later acquisition of spoken language due to its visual nature being fully accessible to deaf infants (Hassanzadeh 2012; Humphries et al. 2012). Establishing an accessible and comprehensible language as early as possible is essential for neurological and later academic development (Mayberry et al. 2011; Pénicaud et al. 2013). As the delay in acquisition of language increases, the child’s neurological development is altered with observed lifelong effects on psycholinguistic processing (Mayberry et al. 2011).
Due to differences in hearing levels and the varying effectiveness of hearing technology, spoken language cannot always be assumed to be fully accessible to deaf children. First, deaf children are often considered to be born with a delay in listening age as hearing fetuses begin auditory learning in the prenatal period (DeCasper and Spence 1986). Then, early amplification at identification allows some children to be able to receive auditory access via traditional amplification methods (e.g., hearing aids), while others get access later through cochlear implants. However, the quality of access to sound is frequently not able to be determined until the child is able to respond using spoken language (e.g., speech discrimination), at which point the child’s language has possibly become severely delayed (Greene-Woods 2020). This inability to predict who will benefit from hearing technologies while solely relying on spoken language leads to a large variability in language proficiency (Greene-Woods 2020; Pisoni et al. 2008). In contrast, recent research demonstrates that bimodal bilingual strategies largely avoid these language delays, develop more effective spoken language, as well as provide more effective language and cognitive outcomes than do spoken language interventions alone (Davidson et al. 2014; Hassanzadeh 2012).
Below, we proffer recommendations, or principles, that support (1) bimodal bilingual early intervention protocols, (2) the development of strong bimodal bilingual language foundations, and (3) align bimodal bilingual research to practices in the P-12 Deaf education system.
Principle #1: Reframing EHDI
Effective implementation of a bimodal bilingual philosophy begins at identification. An environment that allows for deaf children to become bimodal bilinguals is effective in avoiding language delays (Hamilton and Clark 2020; Hassanzadeh 2012) and language deprivation (Hall et al. 2017). This foundation for linguistic, cognitive, and academic successes appears to be access to ASL/English bimodal bilingual environments from the point of early deaf identification to at least two years of age (Henner et al. 2016; Hrastinski and Wilbur 2016). The benefits of bimodal bilingualism go beyond having access to both English and ASL; it also serves as a vehicle to scaffold and incorporate the home languages of families who do not speak English (Delgado 2020). Furthermore, it supports the development of a healthy deaf identity, a home cultural identity, and situates the deaf child comfortably between both the Deaf and hearing worlds (Cue 2020; Delgado 2020). In such a scenario, both spoken and signed languages are supported until the child is old enough to demonstrate their own effective language profile.
Protocols for EHDI team visits should include deaf professionals (e.g., Deaf Mentors) in order to introduce families to successful deaf adults utilizing a variety of communication approaches (Hamilton and Clark 2020). Being inclusive of all language opportunities serves to alleviate families' adjustment processes as well as introduce them to a broad range of possibilities for their deaf infant.
Early stages of the EHDI process should demonstrate a singular focus on supporting language opportunities rather than communication options (e.g., modalities and hearing technologies; Hall et al. 2019). At all stages of the EHDI system, the team should be unified in presenting information stressing the effectiveness of bimodal bilingualism. Furthermore, EHDI agencies should welcome partnerships with national Deaf agencies such as the National Association of the Deaf and the American Society for Deaf Children in working together to provide accessible information to families.
Principle #2: Focus on Language, Not Modality
We recommend families begin to learn ASL when their child is identified as deaf in order to immediately begin providing sign language exposure. To support that recommendation, family-friendly ASL curriculums needs to be made available and accessible to help hearing, non-signing parents navigate visual and joint attention with their infants. The above practices allow the child to have increased access to information, the environment at large, and to develop close bonds with their family.
Presenting families with timely information about the impact of bimodal bilingual research from the beginning can alleviate the common fear that their child may not be able to communicate with them and share their culture. As a result, deaf children who are bimodal bilinguals are given the agency to make decisions regarding their own communication profile (e.g., keeping, dropping, or continuing to develop their selected modalities and languages) typically around two years of age when toddlers have more control of complex linguistic structures.
Deaf children’s language acquisition, both signed and spoken/written, should be monitored in a way that just-in-timeFootnote 5 language interventions can be implemented. The Deaf Mentors, who would be part of the EHDI team, would function to provide language modeling and serve as an often-overlooked, yet important, source of support for families of deaf children (Hamilton and Clark 2020). Presenting a unified front as a diversified bimodal bilingual EHDI team will both validate and support parents in providing crucial language opportunities to their deaf infants. These opportunities will also establish the neurological basis for language acquisition and predict success in attaining developmentally appropriate milestones (Hall et al. 2019).
Principle #3: Continuity of Bimodal Bilingual Practices in K-12 Education
Early implementation of bimodal bilingual strategies should be continued into K-12 education for continued full language access and academic success. First, the interpretation of a least-restrictive environment and best educational opportunities for deaf children should be reconsidered as current legislation allows for multiple interpretations. Our recommendation is that having direct access to highly qualified teachers specifically trained in Deaf education is essential and translates to greater educational outcomes for deaf children (Chen Pichler et al. 2014). These professionals should be trained in bilingual bimodal educational philosophy and strategies for implementation in the classroom.
Initial research on Deaf schools,Footnote 6,Footnote 7Footnote 8 and programs utilizing a bimodal bilingual philosophy suggests positive outcomes although examples are limited (Hrastinski and Wilbur 2016; Chen Pichler et al. 2014). One such example is the Parent Infant Program at Kendall Demonostration Elementary School (KDES), which works with families to develop both sign and spoken languages as separate languages and modalities. This bimodal bilingual philosophy is continued in the KDES program, using the bilingual strategy of language separationFootnote 9 to develop strong foundations in both ASL and English. Greater opportunities are needed for deaf and hard of hearing students to develop bilingual bimodal skills to master both languages and modalities in the classroom and beyond. It is recommended that school settings review current practices to assess their alignment with the bilingual bimodal philosophy to boost outcomes.