Abstract
Background Black, Hispanic, and low income children bear a greater burden of chronic health conditions compared to wealthier white counterparts. Under federal law, schools provide services to children when their health conditions impair learning. These school services, called individualized education programs (IEPs) can reduce disparities in school outcomes. This paper examines the extent to which children with health conditions have an IEP plan, an important first step in understanding service utilization. Method Andersen’s Behavioral Model was used to examine IEP plan presence by using the 2012 National Survey of Children’s Health. School aged children (6–17), with at least one health condition (N = 16,496) were examined using multivariable logistic regression analysis to understand predisposing (age, sex, race/ethnicity), enabling (family and neighborhood), and need (health related) factors as predictors of having an IEP plan. Race/ethnicity interaction terms tested for moderating effects of race/ethnicity on the relationship between predisposing, enabling and need factors and having an IEP plan. Results Hispanic children were 93.4 % (OR = .066) less likely and Black children were 87.9 % (OR = .121) less likely to have an IEP plan compared to White children. Black, Hispanic, and Multiracial children were more likely to have an IEP plan if they had more family and neighborhood resources (OR range 1.37–1.62) and greater health needs and health care needs (OR range 1.29–2.57). Conclusion The Behavioral Model was useful in predicting the presence of IEP plans among racially/ethnically diverse children with health conditions as an important step in understanding disparities in healthcare access in schools.
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Adams, C. J., Robelen, E. W., & Shah, N. (2012). Civil rights data show retention disparities. Education Week, 31, 1–18.
Andersen, R. M. (1995). Revisiting the behavioral model and access to medical care: Does it matter? Journal of Health and Social Behavior, 36(1), 1–10.
Andersen, R., & Newman, J. F. (2005). Societal and individual determinants of medical care utilization in the United States. Milbank Quarterly, 83(4), 1–28.
Babitsch, B., Gohl, D., & Lengerke, T. (2012). Re-visiting Andersen’s Behavioral Model of health service use: Systematic review of studies from 1998 to 2011. Psychosocial Medicine. doi:10.3205/psm000089.
Basch, C. E. (2011). Healthier students are better learners: A missing link in school reforms to close the achievement gap. Journal of School Health, 81(10), 593–598.
Braverman, P., & Barclay, C. (2009). Health disparities beginning in childhood: A life course perspective. Pediatrics, 124(Suppl 3), S163–S175.
Burchinal, M., McCartney, K., Steinberg, L., Crosnoe, R., Friedman, S. J., McLoyd, V., et al. (2011). Examining the black-white achievement gap among low-income children using the NICHD study of early child care and youth development. Child Development, 82(5), 1404–1420.
Cheng, T. L., Dreyer, B. P., & Jenkins, R. R. (2009). Introduction: Child health disprities and health literacy. Pediatrics, 124(Suppl 3), S161–S162.
Child and Adolescent Health Measurement Initiative. (2012). Who are children with special health care needs (CSHCN). Data Resource Center, U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau.
Crosnoe, R. (2006). Health and the education of children from racial/ethnic minority and immigrant families. Journal of Health and Social Behavior, 47, 77–93.
Flores, G., & Committee on Pediatric Research CPR. (2010). Technical report–Racial and ethnic disparities in the health and health care of children. Pediatrics, 125(4), e979–e1020.
Flores, G., & Lin, H. (2013). Trends in racial/ethnic disparities in medical and oral health, access to care, and use of services in US children: Has anything changed over the years? International Journal for Equity in Health, 12, 1.
Green, J. G., McLaughlin, K. A., Margarita Alegria, E., Costello, J., Gruber, M. J., Hoagwood, K., et al. (2013). School mental health resources and adolescent mental health service use. Journal of the American Academy of Child and Adolescent Psychiatry, 52(5), 501–510.
Hass, S. A. (2006). Health selection and the process of social stratification: The effect of childhood health on socioeconomic attainment. Journal of Health and Social Behavior, 47, 339–354.
Joseph, C. L. M., Williams, D. R., Ownby, J., Saltzgaber, J., & Johnson, C. C. (2006). Applying epidemiologic concepts of primary, secondary, and tertiary prevention to the elimination of racial disparities in asthma. Journal of Allergy and Clinical Immunology, 117(2), 233–240.
Mason-Jones, A. J., Crisp, C., Momberg, M., Koech, J., De Koker, P., & Matthews, C. (2012). A systematic review of the role of school-based healthcare in adolescent sexual, reproductive, and mental health. Systematic Reviews, 1, 1.
Mayer, M. L., Skinner, A. C., & Slifkin, R. T. (2004). Unmet need for routine and specialty care: Data from the national survey of children with special health care needs. Pediatrics, 113(2), e109–e115.
Mayer-Davis, E. J., Beyer, J., & Bell, R. A. (2009). Diabetes in African American youth. Diabetes Care, 32(2), S112–S122.
Nanninga, M., Jansen, D. E. M. C., Knorth, E. J., & Reijneveldd, S. A. (2014). Enrollment of children and adolescents in psychosocial care: More likely with low family support and poor parenting skills. European Child and Adolescent Psychiatry, 24, 407–416.
Newacheck, P. W., Hung, Y. Y., & Wright, K. (2002). Racial and ethnic disparities in access to care among children with special health care needs. Ambulatory Pediatrics, 2(4), 247–254.
Palloni, A. (2006). Reproducing inequalities: Luck, wallets, and the enduring effects of childhood health. Demography, 43, 415–587.
PL1080-446, Public Law. (2004). Individuals with disabilities education improvement Act of 2004. Public law, 108, 446.
Price, J. H., Khubchandani, J., McKinney, M., & Braun, R. (2013). Racial/ethnic disparities in chronic diseases of youth and access to health care in the United States. BioMed Research International, 2013(787616), 12. doi:10.1155/2013/787616.
Ryan, S. M., Jorm, A. F., Toumbourou, J. W., & Lubman, D. I. (2015). Parent and family factors associated with service use by young people with mental health problems: A systematic review. Early Intervention in Psychiatry, 9(6), 433–446.
Shah, N. (2012). Civil rights data offer count of Section 504 students. Education Week's Blogs. http://blogs.edweek.org/edweek/speced/2012/03/new_data_collected_by_the.html. Accessed 20 July 2016.
United States Department of Education. (2000). A guide to the individualized education program. Office of Special Education and Rehabilitative Services. http://www2.ed.gov/parents/needs/speced/iepguide/iepguide.pdf.
USDOE. (2015a). Percent children with disabilities 2013–2014. Accessed 17 November 2015. http://eddataexpress.ed.gov/data-element-explorer.cfm/tab/data/deid/5/.
USDOE. (2015b). Protecting students with disabilities: Frequently asked questions about Section 504 and the education of children with disabilities. http://www2.ed.gov/about/offices/list/ocr/504faq.html.
Acknowledgments
All data come from the 2011–2012 National Survey of Children’s Health under license from the Child and Adolescent Health Measurement Initiative (CAHMI) to Melanie Sberna Hinojosa. The research project was supported by a grant from the University of Central Florida Office of Research and Commercialization (105873; 2014–2015). We would like to acknowledge the members of the University of Central Florida Child Health Research Group in alphabetical order; Mandi Barringer, Sabrina Deaton, Enmanuel Espinales, Kaye-Alese Green, Matthew Hiesterman, Nya Ittai, Marisa Lucca, Rameika Newman, Boniface Noyongoyo, Emily Strohacker, Trisha Whitmire, and Lauren Wright.
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Hinojosa, M.S., Hinojosa, R., Nguyen, J. et al. Individualized Education Program Development Among Racially/Ethnically Diverse Children and Adolescents with Health Conditions. Matern Child Health J 21, 583–592 (2017). https://doi.org/10.1007/s10995-016-2142-6
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DOI: https://doi.org/10.1007/s10995-016-2142-6