Maternal and Child Health Journal

, Volume 19, Issue 6, pp 1189–1201 | Cite as

Tools for Improving Clinical Preventive Services Receipt Among Women with Disabilities of Childbearing Ages and Beyond

  • Lisa B. SinclairEmail author
  • Kate E. Taft
  • Michelle L. Sloan
  • Alissa C. Stevens
  • Gloria L. Krahn
Notes from the Field


Efforts to improve clinical preventive services (CPS) receipt among women with disabilities are poorly understood and not widely disseminated. The reported results represent a 2-year, Centers for Disease Control and Prevention and Association of Maternal and Child Health Programs partnership to develop a central resource for existing tools that are of potential use to maternal and child health practitioners who work with women with disabilities. Steps included contacting experts in the fields of disability and women’s health, searching the Internet to locate examples of existing tools that may facilitate CPS receipt, convening key stakeholders from state and community-based programs to determine their potential use of the tools, and developing an online Toolbox. Nine examples of existing tools were located. The tools focused on facilitating use of the CPS guidelines, monitoring CPS receipt among women with disabilities, improving the accessibility of communities and local transportation, and training clinicians and women with disabilities. Stakeholders affirmed the relevance of these tools to their work and encouraged developing a Toolbox. The Toolbox, launched in May 2013, provides information and links to existing tools and accepts feedback and proposals for additional tools. This Toolbox offers central access to existing tools. Maternal and child health stakeholders and other service providers can better locate, adopt and implement existing tools to facilitate CPS receipt among adolescent girls with disabilities who are transitioning into adult care as well as women with disabilities of childbearing ages and beyond.


Clinical preventive services Healthcare tools Women’s health Women with disabilities 



This project was funded by the Disability and Health Branch as part of the CDC, Office for State, Tribal, Local and Territorial Support (OSTLTS) Cooperative Agreement HM08-805. We thank all of the meeting participants for their expertise in reviewing examples of the tools for the Toolbox and appreciate the opening presenters Michael Fraser, Coleen Boyle, Rosaly Correa-De-Arraujo, Nancy Lee, and Marilyn Hartzell, as well as the tool presenters Michelle Sloan (co-author), Michelle Camicia, Donna Smith, Daniel Bailey, Marsha Saxton, Susan Parish, and Adriane Griffin. We thank Jacqui Butler and Lauren Ramos who oversaw the CDC/AMCHP agreement, Alma Reyes who arranged the stakeholder meeting, Sheri Jordan who assisted with the meeting agenda layout, Vincent Campbell who researched the Census estimates, Arlene Vincent-Mark who provided comments on the appendix layout, Michelle Reyes who oversaw the meeting planning and reviewed the manuscript along with Lacy Farhenbach, Dianna Carroll, and Michael Fox.


  1. 1.
    U.S. Department of Health and Human Services. (2013) Fiscal year 2014 justification of estimates for appropriation committees: Centers for Disease Control and Prevention. Available at: Accessed 18 Oct 2013.
  2. 2.
    Kim, M., et al. (2013). Health disparities among childrearing women with disabilities. Maternal and Child Health Journal, 17(7), 1260–1268.PubMedGoogle Scholar
  3. 3.
    Mitra, M., & Manning, S. E. (2012). Physical abuse around the time of pregnancy among women with disabilities. Maternal and Child Health Journal, 16(4), 802–806.CrossRefPubMedGoogle Scholar
  4. 4.
    Allen, D. (2011). Disability and maternal and child health. In D. J. Lollar & E. M. Andresen (Eds.), Public health perspectives on disability: Epidemiology to ethics and beyond (pp. 151–161). New York, NY: Springer Publisher.CrossRefGoogle Scholar
  5. 5.
    U.S. Census Bureau. (2010). Americans with disabilities: 2010; Table D-1: Prevalence of disability by sex and age—all races: 2010. Available at: Accessed 18 Oct 2013.
  6. 6.
    Weitz, T. A., Freund, K. M., & Wright, L. (2001). Identifying and caring for underserved populations: Experience of the national centers of excellence in women’s health. Journal of Women’s Health & Gender-Based Medicine, 10(10), 937–952.CrossRefGoogle Scholar
  7. 7.
    Wisdom, J. P., et al. (2010). Health disparities between women with and without disabilities: A review of the research. Social Work in Public Health, 25(3), 368–386.CrossRefPubMedCentralPubMedGoogle Scholar
  8. 8.
    Piotrowski, K., & Snell, L. (2007). Health needs of women with disabilities across the lifespan. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 36(1), 79–87.CrossRefPubMedGoogle Scholar
  9. 9.
    National Prevention Council. (2011). National prevention strategy. Available at: Accessed 15 March 2013.
  10. 10.
    U.S. Preventive Services Task Force. (2012) The guide to clinical preventive services, 2012. Rockville, MD: Agency for Healthcare Research and Quality. Available at: Accessed 18 Oct 2013.
  11. 11.
    Institute of Medicine. (2011). Clinical preventive services for women: Closing the gaps. Report Brief. Available at: Accessed 29 Oct 2013.
  12. 12.
    American Optometric Association. (2012). Recommended eye examination frequency for pediatric patients and adults. Available at: Accessed 29 Oct 2013.
  13. 13.
    American Speech-Language-Hearing Association. (1997). Guidelines for audiologic screening: ASHA session on audiologic assessment. Available at: Accessed 29 Oct 2013.
  14. 14.
    American Dental Association. (2006). For the dental patient: Healthy mouth, healthy body. Journal of the American Dental Association, 137(4), 563.CrossRefGoogle Scholar
  15. 15.
    Centers for Disease Control and Prevention. (2013). Advisory Committee on Immunization Practices (ACIP) recommended immunization schedules for persons aged 0 through 18 years and adults aged 19 years and older—United States, 2013. Morbidity and Mortality Weekly Report, 62(Supplement), 1–19.Google Scholar
  16. 16.
    Centers for Disease Control and Prevention. (2012). Disability and health data system DHDS) [online database]. Available at: Accessed 29 Oct 2013.
  17. 17.
    Centers for Disease Control and Prevention. (2010). DATA2010, Focus Area 9 [online database]. Available at: Accessed 15 March 2013.
  18. 18.
    Stevens, A.C. (2012). Behavioral risk factor surveillance system (BRFSS) data analysis [unpublished]. Atlanta (GA): CDC, National Center on Birth Defects and Developmental Disabilities, Division of human Development and Disability.Google Scholar
  19. 19.
    Partnership for Prevention. (2007). Data needed to assess use of high-value preventive care: A brief report from the National Commission on Prevention Priorities. Available at: Accessed 10 Oct 2013.
  20. 20.
    Wei, W., Findley, P. A., & Sambamoorthi, U. (2006). Disability and receipt of clinical preventive services among women. Women’s Health Issues, 16(6), 286–296.CrossRefPubMedCentralPubMedGoogle Scholar
  21. 21.
    DeVoe, J. E., et al. (2002). Insurance + Access ≠ Health Care: Typology of barriers to health care access for low-income families. Annals of Family Medicine, 5(6), 511–518.CrossRefGoogle Scholar
  22. 22.
    Parish, S. L., & Ellison-Martin, M. J. (2007). Health-care access of women Medicaid recipients. Journal of Disability Policy Studies, 18(2), 109–116.CrossRefGoogle Scholar
  23. 23.
    Coyle, C. P., & Santiago, M. C. (2002). Healthcare utilization by women with physical disabilities. Medscape Women’s Health, 7(4), 2.PubMedGoogle Scholar
  24. 24.
    Diab, M. E., & Johnston, M. V. (2004). Relationships between level of disability and receipt of preventive health services. Archives of Physical Medical Rehabilitation, 85(5), 749–757.CrossRefGoogle Scholar
  25. 25.
    Kroll, T., Jones, G. C., & Kehn, M. (2006). Barriers and strategies affecting the utilisation of primary preventive services for people with physical disabilities: A qualitative inquiry. Health and Social Care in the Community, 14(40), 284–293.CrossRefPubMedGoogle Scholar
  26. 26.
    Braun, R., et al. (2013). Community health workers and mobile technology: A systematic review of the literature. PLoS One, 8(6), e65772.CrossRefPubMedCentralPubMedGoogle Scholar
  27. 27.
    Dubey, V., et al. (2006). Improving preventive service delivery at adult complete health check-ups: The preventive health evidence-based recommendation form (PERFORM) cluster randomized control trial. Bio Med Central Family Practice, 7, 44.CrossRefGoogle Scholar
  28. 28.
    Balas, E. A., et al. (2000). Improving preventive care by prompting physicians. Archives of Internal Medicine, 160(3), 301–308.CrossRefPubMedGoogle Scholar
  29. 29.
    Ayres, C. G., & Griffith, H. M. (2008). Consensus guidelines: Improving the delivery of clinical preventive services. Health Care Management Review, 33(4), 300–307.CrossRefPubMedGoogle Scholar
  30. 30.
    Coates, R.J., et al. (2012). Rationale for periodic reporting on the use of selected adult clinical preventive services—United States. Morbidity and Mortality Weekly Report, 16(Suppl 61), 3–10.Google Scholar
  31. 31.
    Mudrick, N. R., et al. (2012). Physical accessibility in primary health care settings: Results from California on-site reviews. Disability and Health Journal, 5(3), 159–167.CrossRefPubMedGoogle Scholar
  32. 32.
    Drum, C. E., Krahn, G., & Horner-Johnson, W. (2009). The Oregon community engagement initiative: A multi-case study of a disability coalition development process. Community Development, 40(1), 3–19.CrossRefGoogle Scholar
  33. 33.
    Salem, E. (2005). The promise of MAPP: A transformational tool for public health practice. Journal of Public Health Management and Practice, 12(6), 379–380.CrossRefGoogle Scholar
  34. 34.
    Roussos, S. T., & Fawcett, S. B. (2000). A review of collaborative partnerships as a strategy for improving community health. Annual Review of Public Health, 21, 369–402.CrossRefPubMedGoogle Scholar
  35. 35.
    Wilkinson, J. E., et al. (2011). It’s easier said than done: Perspectives on mammography from women with intellectual disabilities. Annals of Family Medicine, 9(2), 142–147.CrossRefPubMedCentralPubMedGoogle Scholar
  36. 36.
    Mele, N., Archer, J., & Pusch, B. D. (2005). Access to breast cancer screening services for women with disabilities. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 34(4), 453–464.CrossRefPubMedGoogle Scholar
  37. 37.
    Tamaskar, P., et al. (2000). Preventive attitudes and beliefs of deaf and hard-of-hearing individuals. Archives of Family Medicine, 9(6), 518–525, discussion 526.Google Scholar
  38. 38.
    Scheer, J., et al. (2003). Access barriers for persons with disabilities. Journal of Disability Policy Studies, 13(4), 221–230.CrossRefGoogle Scholar
  39. 39.
    Becker, H., Stuifbergen, A., & Tinkle, M. (1997). Reproductive health care experiences of women with physical disabilities: A qualitative study. Archives of Physical Medicine and Rehabilitation, 78(12 Suppl 5), S26–S33.CrossRefPubMedGoogle Scholar
  40. 40.
    Peter, N. G., et al. (2009). Transition from pediatric to adult care: Internists’ perspectives. Pediatrics, 123(2), 417–423.CrossRefPubMedGoogle Scholar
  41. 41.
    Morrison, E. H., George, G., & Mosqueda, L. (2008). Primary care for adults with physical disabilities: Perceptions from consumer and provider focus groups. Family Medicine, 40(9), 645–651.PubMedGoogle Scholar
  42. 42.
    Tervo, R. C., Palmer, G., & Redinius, P. (2004). Health professional student attitudes towards people with disability. Clinical Rehabilitation, 18(8), 908–915.CrossRefPubMedGoogle Scholar
  43. 43.
    O’day, B., et al. (2002). Health plan selection criteria by people with impaired mobility. Medical Care, 40(9), 732–742.CrossRefPubMedGoogle Scholar
  44. 44.
    Shakespeare, T., Iezzoni, L., & Groce, N. E. (2009). Disability and the training of health professionals. The Lancet, 374, 1815–1816.CrossRefGoogle Scholar
  45. 45.
    Pendo, E. (2008). Disability, equipment barriers, and women’s health: Using the ADA to provide meaningful access. 2 Saint Louis University Journal of Health Law & Policy, 2, 15.Google Scholar
  46. 46.
    Shogren, K. A., et al. (2006). Promoting self-determination in health and medical care: A critical component of addressing health disparities in people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 3(2), 105–113.CrossRefGoogle Scholar
  47. 47.
    Agency for Health Care Research and Quality. (2013) Electronic Preventive Services Selector [application]. Available at: Accessed 10 Oct 2013.
  48. 48.
    National Business Group on Health. (2006). A purchaser’s guide to clinical preventive services: Moving science into coverage [guide]. Available at: Accessed 10 Oct 2013.
  49. 49.
    Center for Disability Issues and the Health Professions. (2006). Making preventive health care work for you: For people with physical disabilities [workbook]. Available at: Accessed 10 Oct 2013.
  50. 50.
    Oregon Institute on Development and Disability. (2007). Community action guide (CAG). Available at: Accessed 10 Oct 2013.
  51. 51.
    Institute for Human Centered Design and ADA National Network. (2011). ADA checklist for readily achievable barrier removal. Available at: Accessed 10 Oct 2013.
  52. 52.
    Easter Seals. (2013). Project ACTION: Transportation and the ADA [hotline]. Available at: Accessed 10 Oct 2013.
  53. 53.
  54. 54.
    North Carolina Office on Disability and Health. Women be healthy [curriculum]. Available at: Accessed 18 Oct 2013.
  55. 55.
    Swinburn, B., Gill, T., & Kumanyika, S. (2005). Obesity prevention: a proposed framework for translating evidence into action. Obesity Reviews, 6(1), 23–33.CrossRefPubMedGoogle Scholar
  56. 56.
    Kaplan, D. L., et al. (2001). Assessing and improving accessibility of public accommodations in an urban Latino community. Journal of Disability Policy Studies, 12(1), 55–62.CrossRefGoogle Scholar
  57. 57.
    Lunsky, Y., Straiko, A., & Armstrong, S. (2003). Women be healthy: Evaluation of a women’s health curriculum for women with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 16(4), 247–253.CrossRefGoogle Scholar
  58. 58.
    Matson-Koffman, D. M., Andrew, L., & Campbell, K. P. (2008). A purchaser’s guide to clinical preventive services: A tool to improve health care coverage for prevention. Preventing Chronic Disease Public Health Research, Practice, and Policy, 5(2), 1–9.Google Scholar
  59. 59.
    Fawcett, S. B., et al. (2000). The community tool box: A web-based resource for building healthier communities. Public Health Reports, 115(2-3), 274–278.CrossRefPubMedCentralPubMedGoogle Scholar
  60. 60.
    Harrell, J.A., Baker, E.L., & the Essential Services Workgroup. (1994). The essential services of public health. Leadership in Public Health, 3(3), 27–30.Google Scholar
  61. 61.
    Grason, H.A. & Guyer, B. (1995). Public MCH program functions framework: Essential public health services to promote maternal and child health in America. Available at: Accessed 15 March 2013.
  62. 62.
    Frieden, T. R. (2010). A framework for public health action: The health impact pyramid. American Journal of Public Health, 100(4), 590–595.CrossRefPubMedCentralPubMedGoogle Scholar
  63. 63.
    Bindman, A. B., et al. (1996). Primary care and receipt of preventive services. Journal of General Internal Medicine, 11(5), 269–276.CrossRefPubMedGoogle Scholar

Copyright information

© Springer Science+Business Media New York (outside the USA) 2014

Authors and Affiliations

  • Lisa B. Sinclair
    • 1
    Email author
  • Kate E. Taft
    • 2
  • Michelle L. Sloan
    • 1
  • Alissa C. Stevens
    • 1
  • Gloria L. Krahn
    • 1
  1. 1.Disability and Health Branch, Division of Human Development and Disability, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and PreventionU.S. Department of Health and Human ServicesAtlantaUSA
  2. 2.Children and Youth with Special Health Care NeedsAssociation of Maternal and Child Health ProgramsWashingtonUSA

Personalised recommendations