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Journal of Occupational Rehabilitation

, Volume 24, Issue 4, pp 790–797 | Cite as

Employment-Related Concerns of HIV-Positive People in the Netherlands: Input for a Multidisciplinary Guideline

  • M. N. Wagener
  • S. E. M. van Opstal
  • H. S. Miedema
  • D. P. M. Brandjes
  • R. Dahmen
  • E. C. M. van Gorp
  • P. D. D. M. Roelofs
Article

Abstract

Purpose Finding and keeping employment is difficult for people with HIV. To improve supportive care for people with HIV and employment-related problems, a multidisciplinary guideline was developed in the Netherlands in 2010/2011. To identify the employment-related concerns of people with HIV and to formulate the key questions for the guideline, we conducted a qualitative study. The results of this study are described in this article. Methods This study was performed in three HIV-treatment centers in the Netherlands. In total 18 participants participated in three focus-group interviews and nine participants were interviewed individually. The data were transcribed ad verbatim and were analyzed according to the principle of constant comparison. Results Our findings indicate that people with HIV in the Netherlands face many work-related concerns. The themes which emerged from this study were disclosure, stigma and discrimination, knowledge about HIV, physical and psychological factors, working conditions, absenteeism, reintegration, and dismissal and counselling. Conclusions This study provides insight into employment-related concerns for people with HIV living in a Western country. It formed the basis for the key questions which were addressed in a multidisciplinary, evidence-based guideline “HIV and work”. Finally, it gives leads for further scientific research and opportunities for improving the vocational guidance of people with HIV.

Keywords

HIV Employment Qualitative research Vocational guidance 

Notes

Acknowledgments

We would like to thank the patients for their participation. We would also like to thank the HIV-treatment centers for their participation: Slotervaart Hospital Amsterdam, Leiden University Medical Center, and Erasmus MC Rotterdam.

References

  1. 1.
    Arns PG, Martin DJ, Chernoff RA. Psychosocial needs of HIV-positive individuals seeking workforce re-entry. AIDS Care. 2004;16(3):377–86.PubMedCrossRefGoogle Scholar
  2. 2.
    Ferrier SE, Lavis JN. With health comes work? People living with HIV/AIDS consider returning to work. AIDS Care. 2003;15(3):423–35.PubMedCrossRefGoogle Scholar
  3. 3.
    Brooks RA, et al. Perceived barriers to employment among persons living with HIV/AIDS. AIDS Care. 2004;16(6):756–66.PubMedCrossRefGoogle Scholar
  4. 4.
    Dray-Spira R, et al. Disease severity, self-reported experience of workplace discrimination and employment loss during the course of chronic HIV disease: differences according to gender and education. Occup Environ Med. 2008;65(2):112–9.PubMedCentralPubMedCrossRefGoogle Scholar
  5. 5.
    Lem M, et al. Back to work: correlates of employment among persons receiving highly active antiretroviral therapy. AIDS Care. 2005;17(6):740–6.PubMedCrossRefGoogle Scholar
  6. 6.
    Martin DJ, Steckart MJ, Arns PG. Returning to work with HIV/AIDS: a qualitative study. Work. 2006;27(3):209–19.PubMedGoogle Scholar
  7. 7.
    Bedell G. Balancing health, work, and daily life: design and evaluation of a pilot intervention for persons with HIV/AIDS. Work. 2008;31(2):131–44.PubMedGoogle Scholar
  8. 8.
    Conyers LM. The impact of vocational services and employment on people with HIV/AIDS. Work. 2004;23(3):205–14.PubMedGoogle Scholar
  9. 9.
    Chan F, et al. Drivers of workplace discrimination against people with disabilities: the utility of attribution theory. Work. 2005;25(1):77–88.PubMedGoogle Scholar
  10. 10.
    Studdert DM. Charges of human immunodeficiency virus discrimination in the workplace: the Americans with Disabilities Act in action. Am J Epidemiol. 2002;156(3):219–29.PubMedCrossRefGoogle Scholar
  11. 11.
    Dyer JL, Twillman N, Sequeira N. Determining the barriers to employment of HIV+ clients. J Soc Work Disabil Rehabil. 2006;5(1):21–43.CrossRefGoogle Scholar
  12. 12.
    Maticka-Tyndale E, Adam BD, Cohen JJ. To work or not to work: combination therapies and HIV. Qual Health Res. 2002;12(10):1353–72.PubMedCrossRefGoogle Scholar
  13. 13.
    McGinn F, Gahagan J, Gibson E. Back to work: vocational issues and strategies for Canadians living with HIV/AIDS. Work. 2005;25(2):163–71.PubMedGoogle Scholar
  14. 14.
    Jong E, et al. Predictors and treatment strategies of HIV-related fatigue in the combined antiretroviral therapy era. AIDS. 2010;24(10):1387–405.PubMedCrossRefGoogle Scholar
  15. 15.
    Vetter CJ, Donnelly JP. Living long-term with HIV/AIDS: exploring impact in psychosocial and vocational domains. Work. 2006;27(3):277–86.PubMedGoogle Scholar
  16. 16.
    Foley J, et al. Emerging issues in the neuropsychology of HIV infection. Curr HIV/AIDS Rep. 2008;5(4):204–11.PubMedCentralPubMedCrossRefGoogle Scholar
  17. 17.
    Braveman B, et al. HIV/AIDS and return to work: a literature review one-decade post-introduction of combination therapy (HAART). Work. 2006;27(3):295–303.PubMedGoogle Scholar
  18. 18.
    Rabkin JG, et al. Predictors of employment of men with HIV/AIDS: a longitudinal study. Psychosom Med. 2004;66(1):72–8.PubMedCrossRefGoogle Scholar
  19. 19.
    Strauss A, Corbin J. Basics of qualitative research. Thousand Oaks: Sage; 1998.Google Scholar
  20. 20.
    Boeije HR. Analysis in qualitative research. London: Sage; 2010.Google Scholar
  21. 21.
    Allen S, Carlson G. To conceal or disclose a disabling condition? A dilemma of employment transition. J Vocat Rehabil. 2003;19(1):19–30.Google Scholar
  22. 22.
    Arnold EM, et al. HIV disclosure among adults living with HIV. AIDS Care. 2008;20(1):80–92.CrossRefGoogle Scholar
  23. 23.
    Fesko SL. Disclosure of HIV status in the workplace: considerations and strategies. Health Soc Work. 2001;26(4):235–44.PubMedCrossRefGoogle Scholar
  24. 24.
    Burns SM, Young LRL, Maniss S. Predictors of employment and disability among people living with HIV/AIDS. Rehabil Psychol. 2006;51(2):127–34.CrossRefGoogle Scholar
  25. 25.
    Dray-Spira R, Lert F. Social health inequalities during the course of chronic HIV disease in the era of highly active antiretroviral therapy. AIDS. 2003;17(3):283–90.PubMedCrossRefGoogle Scholar
  26. 26.
    Goldblum P, Kohlenberg B. Vocational counseling for people with HIV: the client-focused considering work model. J Vocat Rehabil. 2005;22(2):115–24.Google Scholar
  27. 27.
    Timmons JC, Fesko SL. Responding to employment needs: strategies for supporting individuals with HIV/AIDS. J HIV/AIDS Soc Serv. 2002;1(3):7–25.CrossRefGoogle Scholar
  28. 28.
    Rotterdam University of applied sciences, Research Centre Innovations in Care (editor) Multidisciplinary, evidence-based guideline “HIV and work”. 2012. http://zorginnovatie.hr.nl/nl/Projecten/Zelfmanagement-en-Participatie/HIV-Arbeid/.

Copyright information

© Springer Science+Business Media New York 2014

Authors and Affiliations

  • M. N. Wagener
    • 1
  • S. E. M. van Opstal
    • 1
  • H. S. Miedema
    • 1
  • D. P. M. Brandjes
    • 2
  • R. Dahmen
    • 3
  • E. C. M. van Gorp
    • 4
  • P. D. D. M. Roelofs
    • 1
  1. 1.Research Centre Innovations in CareRotterdam University of Applied SciencesRotterdamThe Netherlands
  2. 2.Department of Internal MedicineSlotervaart HospitalAmsterdamThe Netherlands
  3. 3.Department of RehabilitationSlotervaart HospitalAmsterdamThe Netherlands
  4. 4.Department of Viroscience and Internal MedicineErasmus MCRotterdamThe Netherlands

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